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Biomedical Data Sharing Among Researchers: A Study from Jordan

BACKGROUND: Data sharing is an encouraged practice to support research in all fields. For that purpose, it is important to examine perceptions and concerns of researchers about biomedical data sharing, which was investigated in the current study. METHODS: This is a cross-sectional survey study that...

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Autores principales: Al-Ebbini, Lina, Khabour, Omar F, Alzoubi, Karem H, Alkaraki, Almuthanna K
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7695599/
https://www.ncbi.nlm.nih.gov/pubmed/33262602
http://dx.doi.org/10.2147/JMDH.S284294
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author Al-Ebbini, Lina
Khabour, Omar F
Alzoubi, Karem H
Alkaraki, Almuthanna K
author_facet Al-Ebbini, Lina
Khabour, Omar F
Alzoubi, Karem H
Alkaraki, Almuthanna K
author_sort Al-Ebbini, Lina
collection PubMed
description BACKGROUND: Data sharing is an encouraged practice to support research in all fields. For that purpose, it is important to examine perceptions and concerns of researchers about biomedical data sharing, which was investigated in the current study. METHODS: This is a cross-sectional survey study that was distributed among biomedical researchers in Jordan, as an example of developing countries. The study survey consisted of questions about demographics and about respondent’s attitudes toward sharing of biomedical data. RESULTS: Among study participants, 46.9% (n=82) were positive regarding making their research data available to the public, whereas 53.1% refused the idea. The reasons for refusing to publicly share their data included “lack of regulations” (33.5%), “access to research data should be limited to the research team” (29.5%), “no place to deposit the data” (6.5%), and “lack of funding for data deposition” (6.0%). Agreement with the idea of making data available was associated with academic rank (P=0.003). Moreover, gender (P-value=0.043) and number of publications (P-value=0.005) were associated with a time frame for data sharing (ie, agreeing to share data before vs after publication). CONCLUSION: About half of the respondents reported a positive attitude toward biomedical data sharing. Proper regulations and facilitation data deposition can enhance data sharing in Jordan.
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spelling pubmed-76955992020-11-30 Biomedical Data Sharing Among Researchers: A Study from Jordan Al-Ebbini, Lina Khabour, Omar F Alzoubi, Karem H Alkaraki, Almuthanna K J Multidiscip Healthc Original Research BACKGROUND: Data sharing is an encouraged practice to support research in all fields. For that purpose, it is important to examine perceptions and concerns of researchers about biomedical data sharing, which was investigated in the current study. METHODS: This is a cross-sectional survey study that was distributed among biomedical researchers in Jordan, as an example of developing countries. The study survey consisted of questions about demographics and about respondent’s attitudes toward sharing of biomedical data. RESULTS: Among study participants, 46.9% (n=82) were positive regarding making their research data available to the public, whereas 53.1% refused the idea. The reasons for refusing to publicly share their data included “lack of regulations” (33.5%), “access to research data should be limited to the research team” (29.5%), “no place to deposit the data” (6.5%), and “lack of funding for data deposition” (6.0%). Agreement with the idea of making data available was associated with academic rank (P=0.003). Moreover, gender (P-value=0.043) and number of publications (P-value=0.005) were associated with a time frame for data sharing (ie, agreeing to share data before vs after publication). CONCLUSION: About half of the respondents reported a positive attitude toward biomedical data sharing. Proper regulations and facilitation data deposition can enhance data sharing in Jordan. Dove 2020-11-23 /pmc/articles/PMC7695599/ /pubmed/33262602 http://dx.doi.org/10.2147/JMDH.S284294 Text en © 2020 Al-Ebbini et al. http://creativecommons.org/licenses/by-nc/3.0/ This work is published and licensed by Dove Medical Press Limited. The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution – Non Commercial (unported, v3.0) License (http://creativecommons.org/licenses/by-nc/3.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed. For permission for commercial use of this work, please see paragraphs 4.2 and 5 of our Terms (https://www.dovepress.com/terms.php).
spellingShingle Original Research
Al-Ebbini, Lina
Khabour, Omar F
Alzoubi, Karem H
Alkaraki, Almuthanna K
Biomedical Data Sharing Among Researchers: A Study from Jordan
title Biomedical Data Sharing Among Researchers: A Study from Jordan
title_full Biomedical Data Sharing Among Researchers: A Study from Jordan
title_fullStr Biomedical Data Sharing Among Researchers: A Study from Jordan
title_full_unstemmed Biomedical Data Sharing Among Researchers: A Study from Jordan
title_short Biomedical Data Sharing Among Researchers: A Study from Jordan
title_sort biomedical data sharing among researchers: a study from jordan
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7695599/
https://www.ncbi.nlm.nih.gov/pubmed/33262602
http://dx.doi.org/10.2147/JMDH.S284294
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