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Evaluation of a research awareness training programme to support research involvement of older people with dementia and their care partners

BACKGROUND: Best‐practice guidelines recommend that appropriate support be provided to public contributors to facilitate their involvement in research. One form of support is research awareness training. Older people with dementia and care partners were involved in four Research User Groups (RUGs) i...

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Autores principales: Miah, Jahanara, Dawes, Piers, Leroi, Iracema, Starling, Bella, Lovell, Karina, Price, Owen, Grundy, Andrew, Parsons, Suzanne
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7696121/
https://www.ncbi.nlm.nih.gov/pubmed/32810357
http://dx.doi.org/10.1111/hex.13096
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author Miah, Jahanara
Dawes, Piers
Leroi, Iracema
Starling, Bella
Lovell, Karina
Price, Owen
Grundy, Andrew
Parsons, Suzanne
author_facet Miah, Jahanara
Dawes, Piers
Leroi, Iracema
Starling, Bella
Lovell, Karina
Price, Owen
Grundy, Andrew
Parsons, Suzanne
author_sort Miah, Jahanara
collection PubMed
description BACKGROUND: Best‐practice guidelines recommend that appropriate support be provided to public contributors to facilitate their involvement in research. One form of support is research awareness training. Older people with dementia and care partners were involved in four Research User Groups (RUGs) in the UK, France, Cyprus and Greece. We delivered research awareness training (RAT) to the RUGs. The aim of this study was to evaluate the acceptability and perceived outcomes of the training from the perspective of RUG members. METHODS: At the end of each research training session, participants completed the Training Acceptability Rating Scale‐section 2, which records the respondent's impressions of the training process and the outcomes of training. Participants were also invited to take part in semi‐structured interviews at the end of the programme. RESULTS: Thirty‐four RUG members completed the TARS‐section 2 with 23 completing semi‐structured interviews. Over two‐thirds (67%) of participants rated their overall satisfaction with the RAT ‘a great deal’. Qualitative responses indicated that participants found group work to be beneficial for learning, the structure of training activities and topics covered appropriate. The type and format of the training materials were viewed as helpful, and they valued the new knowledge gained. CONCLUSIONS: The training contents were applicable, useful and relevant to the participants’ role within the research. We highlight the importance of facilitating participation by (a) fostering awareness of relevant research issues and (b) tailoring delivery of training according to the needs of the participants.
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spelling pubmed-76961212020-12-10 Evaluation of a research awareness training programme to support research involvement of older people with dementia and their care partners Miah, Jahanara Dawes, Piers Leroi, Iracema Starling, Bella Lovell, Karina Price, Owen Grundy, Andrew Parsons, Suzanne Health Expect Original Research Papers BACKGROUND: Best‐practice guidelines recommend that appropriate support be provided to public contributors to facilitate their involvement in research. One form of support is research awareness training. Older people with dementia and care partners were involved in four Research User Groups (RUGs) in the UK, France, Cyprus and Greece. We delivered research awareness training (RAT) to the RUGs. The aim of this study was to evaluate the acceptability and perceived outcomes of the training from the perspective of RUG members. METHODS: At the end of each research training session, participants completed the Training Acceptability Rating Scale‐section 2, which records the respondent's impressions of the training process and the outcomes of training. Participants were also invited to take part in semi‐structured interviews at the end of the programme. RESULTS: Thirty‐four RUG members completed the TARS‐section 2 with 23 completing semi‐structured interviews. Over two‐thirds (67%) of participants rated their overall satisfaction with the RAT ‘a great deal’. Qualitative responses indicated that participants found group work to be beneficial for learning, the structure of training activities and topics covered appropriate. The type and format of the training materials were viewed as helpful, and they valued the new knowledge gained. CONCLUSIONS: The training contents were applicable, useful and relevant to the participants’ role within the research. We highlight the importance of facilitating participation by (a) fostering awareness of relevant research issues and (b) tailoring delivery of training according to the needs of the participants. John Wiley and Sons Inc. 2020-08-18 2020-10 /pmc/articles/PMC7696121/ /pubmed/32810357 http://dx.doi.org/10.1111/hex.13096 Text en © 2020 The Authors Health Expectations published by John Wiley & Sons Ltd. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Research Papers
Miah, Jahanara
Dawes, Piers
Leroi, Iracema
Starling, Bella
Lovell, Karina
Price, Owen
Grundy, Andrew
Parsons, Suzanne
Evaluation of a research awareness training programme to support research involvement of older people with dementia and their care partners
title Evaluation of a research awareness training programme to support research involvement of older people with dementia and their care partners
title_full Evaluation of a research awareness training programme to support research involvement of older people with dementia and their care partners
title_fullStr Evaluation of a research awareness training programme to support research involvement of older people with dementia and their care partners
title_full_unstemmed Evaluation of a research awareness training programme to support research involvement of older people with dementia and their care partners
title_short Evaluation of a research awareness training programme to support research involvement of older people with dementia and their care partners
title_sort evaluation of a research awareness training programme to support research involvement of older people with dementia and their care partners
topic Original Research Papers
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7696121/
https://www.ncbi.nlm.nih.gov/pubmed/32810357
http://dx.doi.org/10.1111/hex.13096
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