Cargando…

The impact of prenatal counselling on mothers of surviving children with hypoplastic left heart syndrome: A qualitative interview study

OBJECTIVE: To explore the role of antenatal counselling in how parents make treatment decisions following an antenatal diagnosis of Hypoplastic Left Heart Syndrome (HLHS). BACKGROUND: Antenatal counselling is a critical part of patient management following a diagnosis of fetal congenital heart disea...

Descripción completa

Detalles Bibliográficos
Autores principales:	Bertaud, Sophie, Lloyd, David F. A., Sharland, Gurleen, Razavi, Reza, Bluebond‐Langner, Myra
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2020
Materias:	Original Research Papers
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7696135/ https://www.ncbi.nlm.nih.gov/pubmed/32671929 http://dx.doi.org/10.1111/hex.13103

Ejemplares similares

The neurodevelopmental implications of hypoplastic left heart syndrome in the fetus
por: Lloyd, David F. A., et al.
Publicado: (2017)

Prenatal Sonographic Diagnosis of Hypoplastic Left Heart Syndrome
por: Sadineni, Raghu Teja, et al.
Publicado: (2017)

Inter-stage right ventricular remodeling in hypoplastic left heart syndrome
por: Bell, Aaron, et al.
Publicado: (2011)

Myocardial contractile response to dobutamine in hypoplastic left heart syndrome post-Fontan
por: Wong, James, et al.
Publicado: (2014)

Right ventricular function and adaption after hemi-Fontan completion in children with hypoplastic left heart syndrome
por: Ruijsink, Bram, et al.
Publicado: (2016)

Hypoplastic left heart syndrome
por: Connor, Jean Anne, et al.
Publicado: (2007)

Current understanding of decision-making in adolescents with cancer: A narrative systematic review
por: Day, Emma, et al.
Publicado: (2016)

Children’s and Parents’ Conceptualization of Quality of Life in Children With Brain Tumors: A Meta-Ethnographic Exploration
por: Beecham, Emma, et al.
Publicado: (2018)

‘I have to live with the decisions I make’: laying a foundation for decision making for children with life-limiting conditions and life-threatening illnesses
por: Bluebond-Langner, Myra, et al.
Publicado: (2017)

Case Report: 5 Cases of Variant Hypoplastic Left Heart Syndrome Diagnosed on Prenatal Fetal Ultrasound
por: Pribadi, Adhi, et al.
Publicado: (2023)

What Is the Hypoplastic Left Heart Syndrome?
por: Anderson, Robert H., et al.
Publicado: (2023)

The Left Ventricular Myocardium in Hypoplastic Left Heart Syndrome
por: Chaudhry, Bill, et al.
Publicado: (2022)

Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study
por: Coombes, Lucy, et al.
Publicado: (2022)

Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study
por: Scott, Hannah May, et al.
Publicado: (2023)

Advances and Challenges in European Paediatric Palliative Care
por: Fraser, Lorna K, et al.
Publicado: (2020)

Insights into the perception that research ethics committees are a barrier to research with seriously ill children: A study of committee minutes and correspondence with researchers studying seriously ill children
por: Butler, Ashleigh E, et al.
Publicado: (2019)

Preferred place of death for children and young people with life-limiting and life-threatening conditions: A systematic review of the literature and recommendations for future inquiry and policy
por: Bluebond-Langner, Myra, et al.
Publicado: (2013)

Prenatal diagnosis of recurrent hypoplastic left heart syndrome associated with MYH6 variants: a case report
por: Najib, B., et al.
Publicado: (2023)

Hypoplastic Left Heart Syndrome – Unresolved Issues
por: Arnold, Raoul Roman, et al.
Publicado: (2014)

Hypoplastic left heart syndrome: a review
por: Gobergs, Roberts, et al.
Publicado: (2016)

Hypoplastic left heart syndrome—pushing the limits
por: Ozturk, Mahmut, et al.
Publicado: (2022)

Experiences of children with trisomy 18 referred to pediatric palliative care services on two continents
por: Mullin, Jonathan, et al.
Publicado: (2019)

Global improvement in right ventricular function after Stage II Norwood operation in children with hypoplastic left heart assessed by serial MRI
por: Bellsham-Revell, Hannah R, et al.
Publicado: (2011)

Effect of left atrial ligation-driven altered inflow hemodynamics on embryonic heart development: clues for prenatal progression of hypoplastic left heart syndrome
por: Salman, Huseyin Enes, et al.
Publicado: (2021)

Growth of hypoplastic mitral valves in hypoplastic left heart complex and similar constellations after anatomical left superior vena cava correction
por: Cesnjevar, Robert A, et al.
Publicado: (2020)

Dobutamine stress MRI catheterisation in patients with hypoplastic left heart syndrome after Fontan completion: preliminary results
por: Bellsham-Revell, Hannah R, et al.
Publicado: (2011)

Serial Magnetic Resonance Imaging in Hypoplastic Left Heart Syndrome Gives Valuable Insight Into Ventricular and Vascular Adaptation
por: Bellsham-Revell, Hannah R., et al.
Publicado: (2013)

Ethics of Cardiac Transplantation in Hypoplastic Left Heart Syndrome
por: Kon, Alexander A.
Publicado: (2009)

Hypoplastic Left Lobe of Liver with Accessory Caudate Lobe
por: Singh, Rajani
Publicado: (2013)

Sirenomelia associated with Hypoplastic Left Heart in a Newborn
por: Turgut, H, et al.
Publicado: (2017)

Hypoplastic Left Heart Stage I: No Norwood, No Hybrid
por: Schranz, Dietmar, et al.
Publicado: (2020)

Isolated Chylopericardium in an Infant With Hypoplastic Left Heart Syndrome
por: Jha, Prashant, et al.
Publicado: (2020)

Whole Genome Sequencing in Hypoplastic Left Heart Syndrome
por: Theis, Jeanne L., et al.
Publicado: (2022)

Biventricular Conversion for Hypoplastic Left Heart Variants: An Update
por: Greenleaf, Christopher E., et al.
Publicado: (2022)

Hypoplastic left heart syndrome with an intact atrial septum
por: Sood, Vikram, et al.
Publicado: (2020)

Considering the Genetic Architecture of Hypoplastic Left Heart Syndrome
por: Belmont, John W.
Publicado: (2022)

Current state of the art in hypoplastic left heart syndrome
por: Birla, Aditya K., et al.
Publicado: (2022)

Hypoplastic Left Heart Syndrome: A Case Report
por: Manandhar, Sunil Raja, et al.
Publicado: (2023)

Hypoplastic left heart syndrome: from comfort care to long-term survival
por: Yabrodi, Mouhammad, et al.
Publicado: (2017)

Prenatal Diagnosis and Successful Palliation of Absent Aortic Valve with Hypoplastic Left Heart Syndrome: A Case Report and Review of Literature
por: Qasim, Amna, et al.
Publicado: (2019)

Cannot write session to /tmp/vufind_sessions/sess_kp71hesto5ji0rvnproit5ab1i