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The Sense of Dignity at the End of Life: Reflections on Lifetime Values through the Family Photo Album

This study focuses on the dimensions of dignity, linking Chochinov’s Dignity Therapy to Schwartz’s Theory of Values. The use of family photo albums has enriched the application of dignity therapy. Seven terminal patients in home-based palliative care participated in the therapeutic intervention. To...

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Autores principales: Testoni, Ines, Baroni, Vera, Iacona, Erika, Zamperini, Adriano, Keisari, Shoshi, Ronconi, Lucia, Grassi, Luigi
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7700553/
https://www.ncbi.nlm.nih.gov/pubmed/33238420
http://dx.doi.org/10.3390/bs10110177
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author Testoni, Ines
Baroni, Vera
Iacona, Erika
Zamperini, Adriano
Keisari, Shoshi
Ronconi, Lucia
Grassi, Luigi
author_facet Testoni, Ines
Baroni, Vera
Iacona, Erika
Zamperini, Adriano
Keisari, Shoshi
Ronconi, Lucia
Grassi, Luigi
author_sort Testoni, Ines
collection PubMed
description This study focuses on the dimensions of dignity, linking Chochinov’s Dignity Therapy to Schwartz’s Theory of Values. The use of family photo albums has enriched the application of dignity therapy. Seven terminal patients in home-based palliative care participated in the therapeutic intervention. To measure the effects of the intervention, we administered the Edmonton Symptom Assessment Scale and the Patient Dignity Inventory, then, at the end of the meetings, collected the opinions of participants, available nurses, and relatives who attended the sessions. The resulting generativity documents were then analyzed through thematic analysis, which revealed three main themes linked to both fundamental values and the dimensions of dignity: The relationship between continuity of self and myriad values in the context of family relationships; personal dignity as characterized by the values of personal success, hope, and wisdom; and hope and generativity. The fourth theme reflected the participants’ final judgements on the intervention, which were highly positive and greatly encouraged further use of photographs in similar therapeutic interventions. The assessment protocol highlighted a significant decrease in tiredness amongst the participants and a trend towards a significant decrease in drowsiness after the intervention.
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spelling pubmed-77005532020-11-30 The Sense of Dignity at the End of Life: Reflections on Lifetime Values through the Family Photo Album Testoni, Ines Baroni, Vera Iacona, Erika Zamperini, Adriano Keisari, Shoshi Ronconi, Lucia Grassi, Luigi Behav Sci (Basel) Article This study focuses on the dimensions of dignity, linking Chochinov’s Dignity Therapy to Schwartz’s Theory of Values. The use of family photo albums has enriched the application of dignity therapy. Seven terminal patients in home-based palliative care participated in the therapeutic intervention. To measure the effects of the intervention, we administered the Edmonton Symptom Assessment Scale and the Patient Dignity Inventory, then, at the end of the meetings, collected the opinions of participants, available nurses, and relatives who attended the sessions. The resulting generativity documents were then analyzed through thematic analysis, which revealed three main themes linked to both fundamental values and the dimensions of dignity: The relationship between continuity of self and myriad values in the context of family relationships; personal dignity as characterized by the values of personal success, hope, and wisdom; and hope and generativity. The fourth theme reflected the participants’ final judgements on the intervention, which were highly positive and greatly encouraged further use of photographs in similar therapeutic interventions. The assessment protocol highlighted a significant decrease in tiredness amongst the participants and a trend towards a significant decrease in drowsiness after the intervention. MDPI 2020-11-23 /pmc/articles/PMC7700553/ /pubmed/33238420 http://dx.doi.org/10.3390/bs10110177 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Testoni, Ines
Baroni, Vera
Iacona, Erika
Zamperini, Adriano
Keisari, Shoshi
Ronconi, Lucia
Grassi, Luigi
The Sense of Dignity at the End of Life: Reflections on Lifetime Values through the Family Photo Album
title The Sense of Dignity at the End of Life: Reflections on Lifetime Values through the Family Photo Album
title_full The Sense of Dignity at the End of Life: Reflections on Lifetime Values through the Family Photo Album
title_fullStr The Sense of Dignity at the End of Life: Reflections on Lifetime Values through the Family Photo Album
title_full_unstemmed The Sense of Dignity at the End of Life: Reflections on Lifetime Values through the Family Photo Album
title_short The Sense of Dignity at the End of Life: Reflections on Lifetime Values through the Family Photo Album
title_sort sense of dignity at the end of life: reflections on lifetime values through the family photo album
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7700553/
https://www.ncbi.nlm.nih.gov/pubmed/33238420
http://dx.doi.org/10.3390/bs10110177
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