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Illness Experiences and Attitudes towards Medication in Online Communities for People with Fibromyalgia
Fibromyalgia is a chronic disabling syndrome, and the legitimacy of its diagnosis is still debated. Internet and online communities may become a relevant resource for affected people. This present study aims to understand the role of online communities relating to fibromyalgia syndrome (FMS) patient...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7700602/ https://www.ncbi.nlm.nih.gov/pubmed/33238467 http://dx.doi.org/10.3390/ijerph17228683 |
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author | Cipolletta, Sabrina Tomaino, Silvia Caterina Maria Lo Magno, Eliana Faccio, Elena |
author_facet | Cipolletta, Sabrina Tomaino, Silvia Caterina Maria Lo Magno, Eliana Faccio, Elena |
author_sort | Cipolletta, Sabrina |
collection | PubMed |
description | Fibromyalgia is a chronic disabling syndrome, and the legitimacy of its diagnosis is still debated. Internet and online communities may become a relevant resource for affected people. This present study aims to understand the role of online communities relating to fibromyalgia syndrome (FMS) patients’ illness experiences and their attitudes towards medication. A qualitative content analysis based on the grounded theory approach was conducted on 19 conversations from an online forum, and 14 online interviews. Illness experience, lack of reference points, online communities, personal role and attitude towards medication were the five categories identified, with the search for recognition as the core category. The study highlighted that online communities represent a resource that allows users to express and share their needs, especially in terms of legitimacy and recognition. |
format | Online Article Text |
id | pubmed-7700602 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-77006022020-11-30 Illness Experiences and Attitudes towards Medication in Online Communities for People with Fibromyalgia Cipolletta, Sabrina Tomaino, Silvia Caterina Maria Lo Magno, Eliana Faccio, Elena Int J Environ Res Public Health Article Fibromyalgia is a chronic disabling syndrome, and the legitimacy of its diagnosis is still debated. Internet and online communities may become a relevant resource for affected people. This present study aims to understand the role of online communities relating to fibromyalgia syndrome (FMS) patients’ illness experiences and their attitudes towards medication. A qualitative content analysis based on the grounded theory approach was conducted on 19 conversations from an online forum, and 14 online interviews. Illness experience, lack of reference points, online communities, personal role and attitude towards medication were the five categories identified, with the search for recognition as the core category. The study highlighted that online communities represent a resource that allows users to express and share their needs, especially in terms of legitimacy and recognition. MDPI 2020-11-23 2020-11 /pmc/articles/PMC7700602/ /pubmed/33238467 http://dx.doi.org/10.3390/ijerph17228683 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Cipolletta, Sabrina Tomaino, Silvia Caterina Maria Lo Magno, Eliana Faccio, Elena Illness Experiences and Attitudes towards Medication in Online Communities for People with Fibromyalgia |
title | Illness Experiences and Attitudes towards Medication in Online Communities for People with Fibromyalgia |
title_full | Illness Experiences and Attitudes towards Medication in Online Communities for People with Fibromyalgia |
title_fullStr | Illness Experiences and Attitudes towards Medication in Online Communities for People with Fibromyalgia |
title_full_unstemmed | Illness Experiences and Attitudes towards Medication in Online Communities for People with Fibromyalgia |
title_short | Illness Experiences and Attitudes towards Medication in Online Communities for People with Fibromyalgia |
title_sort | illness experiences and attitudes towards medication in online communities for people with fibromyalgia |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7700602/ https://www.ncbi.nlm.nih.gov/pubmed/33238467 http://dx.doi.org/10.3390/ijerph17228683 |
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