Rare Disease Research Partnership (RAinDRoP): a collaborative approach to identify research priorities for rare diseases in Ireland

Background: Rare diseases are individually rare, but collectively these conditions are common. Research on rare diseases are currently focused on disease-specific needs rather than a life-course perspective. The Rare Disease Research Partnership (RAinDRoP) was established in 2018 to bring together a...

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Detalles Bibliográficos
Autores principales: Somanadhan, Suja, Nicholson, Emma, Dorris, Emma, Brinkley, Aoife, Kennan, Avril, Treacy, Eileen, Atif, Awan, Ennis, Sean, McGrath, Vicky, Mitchell, Derick, O’Sullivan, Grace, Power, Julie, Lawlor, Anne, Harkin, Paul, Lynch, Sally Ann, Watt, Philip, Daly, Avril, Donnelly, Susie, Kroll, Thilo
Formato: Online Artículo Texto
Lenguaje:English
Publicado: F1000 Research Limited 2020
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7702160/
https://www.ncbi.nlm.nih.gov/pubmed/33299965
http://dx.doi.org/10.12688/hrbopenres.13017.2

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