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Interface management concepts in healthcare for rare diseases in Germany: a study protocol for a mixed-methods study to develop best practice recommendations

INTRODUCTION: Patients and families affected by a rare disease are burdened in multiple ways. Functional interface management can unburden patients or relatives from the need to be solely accountable for the navigation through the healthcare system. This study aims at (1) providing an assessment of...

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Detalles Bibliográficos
Autores principales:	Inhestern, Laura, Zybarth, David, Otto, Ramona, Brandt, Maja, Härter, Martin, Bergelt, Corinna
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2020
Materias:	Health Services Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7705519/ https://www.ncbi.nlm.nih.gov/pubmed/33257484 http://dx.doi.org/10.1136/bmjopen-2020-040470

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