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Health-related quality of life in Marfan syndrome: a 10-year follow-up

BACKGROUND: Marfan syndrome, a rare hereditary connective tissue disorder caused by mutations in fibrillin-1, can affect many organ systems, especially the cardiovascular system. Previous research has paid less attention to health-related quality of life and prospective studies on this topic are nee...

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Detalles Bibliográficos
Autores principales:	Vanem, Thy Thy, Rand-Hendriksen, Svend, Brunborg, Cathrine, Geiran, Odd Ragnar, Røe, Cecilie
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2020
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7706277/ https://www.ncbi.nlm.nih.gov/pubmed/33256748 http://dx.doi.org/10.1186/s12955-020-01633-4

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