Cargando…
The Motion of the Italian National Bioethics Committee on Aggressive Treatment towards Children with Limited Life Expectancy
The motion of the Italian National Bioethics Committee entitled “Aggressive treatment or therapeutic obstinacy on young children with limited life expectancy” comprises a premise that rejects therapeutic obstinacy and makes 12 recommendations. Recommendation no. 1 states the general rules: it ascrib...
Autores principales: | , , , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2020
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7712670/ https://www.ncbi.nlm.nih.gov/pubmed/33139649 http://dx.doi.org/10.3390/healthcare8040448 |
_version_ | 1783618421681815552 |
---|---|
author | Bolcato, Matteo Russo, Marianna Feola, Alessandro Della Pietra, Bruno Tettamanti, Camilla Bonsignore, Alessandro Ciliberti, Rosagemma Rodriguez, Daniele Aprile, Anna |
author_facet | Bolcato, Matteo Russo, Marianna Feola, Alessandro Della Pietra, Bruno Tettamanti, Camilla Bonsignore, Alessandro Ciliberti, Rosagemma Rodriguez, Daniele Aprile, Anna |
author_sort | Bolcato, Matteo |
collection | PubMed |
description | The motion of the Italian National Bioethics Committee entitled “Aggressive treatment or therapeutic obstinacy on young children with limited life expectancy” comprises a premise that rejects therapeutic obstinacy and makes 12 recommendations. Recommendation no. 1 states the general rules: it ascribes a cardinal role to a shared care plan, it supports pain management therapy and pain relief, it opposes ineffective and disproportionate clinical treatment and defensive medicine. The other recommendations are correlated to the enacting of a national law establishing clinical ethics committees in paediatric hospitals; participation of parents and their fiduciaries in the decision-making processes; recourse to courts only as extrema ratio in the event of irremediable disagreement between the medical team and the family members; accompaniment at the end of life also through continuous deep sedation combined with pain therapy; access to palliative care; the need to reinforce research on pain and suffering in children; clinical trials and research studies conducted in children; the training of doctors, healthcare personnel and psychologists, to support parents in emotional and practical terms; the facilitation of the closeness of parents to children in extremely precarious clinical conditions; the relevant role of the associations of parents of sick children. Comments are made, in particular, about the innovative recommendations respectively relating to the adoption of care planning, the establishment, by law, of clinical ethics committees in paediatric hospitals and the limitation of recourse to courts—only as extrema ratio—in the event of irremediable disagreement between the medical team and the family members. |
format | Online Article Text |
id | pubmed-7712670 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-77126702020-12-04 The Motion of the Italian National Bioethics Committee on Aggressive Treatment towards Children with Limited Life Expectancy Bolcato, Matteo Russo, Marianna Feola, Alessandro Della Pietra, Bruno Tettamanti, Camilla Bonsignore, Alessandro Ciliberti, Rosagemma Rodriguez, Daniele Aprile, Anna Healthcare (Basel) Commentary The motion of the Italian National Bioethics Committee entitled “Aggressive treatment or therapeutic obstinacy on young children with limited life expectancy” comprises a premise that rejects therapeutic obstinacy and makes 12 recommendations. Recommendation no. 1 states the general rules: it ascribes a cardinal role to a shared care plan, it supports pain management therapy and pain relief, it opposes ineffective and disproportionate clinical treatment and defensive medicine. The other recommendations are correlated to the enacting of a national law establishing clinical ethics committees in paediatric hospitals; participation of parents and their fiduciaries in the decision-making processes; recourse to courts only as extrema ratio in the event of irremediable disagreement between the medical team and the family members; accompaniment at the end of life also through continuous deep sedation combined with pain therapy; access to palliative care; the need to reinforce research on pain and suffering in children; clinical trials and research studies conducted in children; the training of doctors, healthcare personnel and psychologists, to support parents in emotional and practical terms; the facilitation of the closeness of parents to children in extremely precarious clinical conditions; the relevant role of the associations of parents of sick children. Comments are made, in particular, about the innovative recommendations respectively relating to the adoption of care planning, the establishment, by law, of clinical ethics committees in paediatric hospitals and the limitation of recourse to courts—only as extrema ratio—in the event of irremediable disagreement between the medical team and the family members. MDPI 2020-11-01 /pmc/articles/PMC7712670/ /pubmed/33139649 http://dx.doi.org/10.3390/healthcare8040448 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Commentary Bolcato, Matteo Russo, Marianna Feola, Alessandro Della Pietra, Bruno Tettamanti, Camilla Bonsignore, Alessandro Ciliberti, Rosagemma Rodriguez, Daniele Aprile, Anna The Motion of the Italian National Bioethics Committee on Aggressive Treatment towards Children with Limited Life Expectancy |
title | The Motion of the Italian National Bioethics Committee on Aggressive Treatment towards Children with Limited Life Expectancy |
title_full | The Motion of the Italian National Bioethics Committee on Aggressive Treatment towards Children with Limited Life Expectancy |
title_fullStr | The Motion of the Italian National Bioethics Committee on Aggressive Treatment towards Children with Limited Life Expectancy |
title_full_unstemmed | The Motion of the Italian National Bioethics Committee on Aggressive Treatment towards Children with Limited Life Expectancy |
title_short | The Motion of the Italian National Bioethics Committee on Aggressive Treatment towards Children with Limited Life Expectancy |
title_sort | motion of the italian national bioethics committee on aggressive treatment towards children with limited life expectancy |
topic | Commentary |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7712670/ https://www.ncbi.nlm.nih.gov/pubmed/33139649 http://dx.doi.org/10.3390/healthcare8040448 |
work_keys_str_mv | AT bolcatomatteo themotionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT russomarianna themotionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT feolaalessandro themotionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT dellapietrabruno themotionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT tettamanticamilla themotionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT bonsignorealessandro themotionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT cilibertirosagemma themotionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT rodriguezdaniele themotionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT aprileanna themotionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT bolcatomatteo motionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT russomarianna motionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT feolaalessandro motionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT dellapietrabruno motionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT tettamanticamilla motionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT bonsignorealessandro motionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT cilibertirosagemma motionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT rodriguezdaniele motionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy AT aprileanna motionoftheitaliannationalbioethicscommitteeonaggressivetreatmenttowardschildrenwithlimitedlifeexpectancy |