Cargando…

SWK-03. CAREGIVER EXPERIENCES FOR PEDIATRIC BRAIN TUMOR PATIENTS AND THEIR FAMILIES AT A DEDICATED MEDICAL SPECIALTY CAMP

BACKGROUND: Medical specialty camps have provided children with unique psychosocial experiences; however, dedicated pediatric brain tumor camps are rare in the United States, except in limited locations. This study aimed to glean caregiver perceptions from a dedicated family brain tumor camp, and to...

Descripción completa

Detalles Bibliográficos
Autores principales:	Brownfield, Ryan, Galantowicz, Barb, Russell, Claire, Chabot, Jennifer, Coven, Scott
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Oxford University Press 2020
Materias:	Social Work/Patient Support/Palliative Care
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7715292/ http://dx.doi.org/10.1093/neuonc/noaa222.820

Ejemplares similares

SWK-03. Neuroimaging in CNS tumours: To GA , or not to GA, that is the question.
por: Ryles, Jade, et al.
Publicado: (2022)

SWK-05. EDUCATIONAL APPROACH TO GRIEF MANAGEMENT
por: DeRosa, Veronica, et al.
Publicado: (2020)

SWK-08. Implementing awareness practice in Neuro-Oncology
por: DeRosa, Veronica
Publicado: (2022)

SWK-10. TELEHEALTH IN OUTPATIENT PEDIATRIC NEURO-ONCOLOGY CARE
por: Raber, Shannon, et al.
Publicado: (2020)

SWK-10. Survivorship: Education, Clinical Guidelines, and Transition to Adult Care
por: Hemenway, Molly, et al.
Publicado: (2022)

SWK-01. Partnership between caregivers, patients and healthcare professionals: promoting collaboration in a complex care pathway in pediatric neuro-oncology
por: Granero, Anita, et al.
Publicado: (2022)

SWK-02. WEAVING COMFORT AND SUPPORT FOR CHILDREN WITH BRAIN TUMORS AND THEIR FAMILIES IN AN OUTPATIENT CLINIC
por: Hawks, Ria, et al.
Publicado: (2020)

SWK-04. Investigation on Anxiety and Depression of Parents of Children with Central Nervous System Tumors
por: Yang, Huajun, et al.
Publicado: (2022)

SWK-04. A MOBILE AUGMENTED REALITY APP FOR SURGICAL PREPARATION FOR CHILDREN WITH BRAIN TUMORS
por: Granville, Sharon, et al.
Publicado: (2020)

SWK-12. PEDIATRIC NEURO-ONCOLOGY PARENT PERSPECTIVE ON ASPECTS OF SOCIAL AND EMOTIONAL SUPPORT FOR ONLINE APPLICATION
por: Koch, Kendra, et al.
Publicado: (2020)

SWK-08. DELAYED DIAGNOSIS OF CENTRAL NERVOUS SYSTEM (CNS) TUMORS IN CHILDREN: PERSPECTIVE FROM THE FRONTLINE
por: Jogendran, Manisha, et al.
Publicado: (2020)

SWK-07. Family mental health screening early after a diagnosis of pediatric brain tumor
por: Rodemann, Ashley, et al.
Publicado: (2022)

SWK-11. ASSESSMENT OF THE INDIRECT COSTS ASSOCIATED WITH PROTON THERAPY TREATMENT FOR ALBERTA PATIENTS REFERRED OUT OF COUNTRY
por: Black, Karina, et al.
Publicado: (2020)

SWK-07. A MULTINATIONAL SURVEY OF PAEDIATRIC NEURO-ONCOLOGY SERVICES: A EUROPEAN RESEARCH NETWORK (ERN) PAEDCAN PROJECT
por: Cooper, Katherine, et al.
Publicado: (2020)

SWK-02. Palliative sedation in pediatric patients suffering from brain tumors: choosing the best drugs to improve end of life
por: Podda, Marta, et al.
Publicado: (2022)

SWK-05. Clinical social work in pediatric neuro-oncology – A research project on the social dimension using social diagnostics
por: Krottendorfer, Kerstin, et al.
Publicado: (2022)

SWK-06. Structured transition from pediatric neuro-oncology to adult survivorship follow-up care - Can we close the gap?
por: Krottendorfer, Kerstin, et al.
Publicado: (2022)

SWK-06. ANSWERING 900 VOICES: A NATIONAL NONPROFIT ORGANIZATION RESPONDS TO A NATIONWIDE COMMUNITY HEALTH NEEDS ASSESSMENT THAT ELUCIDATED KEY CHALLENGES FACED BY PEDIATRIC BRAIN TUMOR FAMILIES
por: Riley, Kathy
Publicado: (2020)

SWK-09. SELF-CARE OUTCOMES AND INTERVENTIONS FOR CHILDREN WHO HAVE HAD A BRAIN TUMOUR: EVIDENCE AND HYPOTHESES. WHAT SHOULD SELF-CARE INTERVENTIONS FOR CHILDREN WITH PAST OR PRESENT BRAIN TUMOUR BE?
por: Rowen, Elizabeth, et al.
Publicado: (2020)

IMPACT OF COVID-19 PANDEMIC ON DELAY OF CHILDHOOD CANCER DIAGNOSIS AND THE OUTCOMES IN A PEDIATRIC HEMATOLOGY/ONCOLOGY DEPARTMENT
por: CAKMAKCI, Selma, et al.
Publicado: (2022)

Development of a home-visit nursing scale for helping spousal caregivers of terminal cancer patients develop positive perspectives of their caregiving experiences: a cross-sectional study
por: Karikawa, Mari, et al.
Publicado: (2019)

Financial interventions for family caregivers of individuals with chronic illness: a scoping review protocol
por: Thomas Hebdon, Megan C, et al.
Publicado: (2022)

Emergency Medicine Palliative Care Access (EMPallA): protocol for a multicentre randomised controlled trial comparing the effectiveness of specialty outpatient versus nurse-led telephonic palliative care of older adults with advanced illness
por: Grudzen, Corita R, et al.
Publicado: (2019)

Existential distress in patients with advanced cancer and their caregivers: study protocol of a longitudinal cohort study
por: Philipp, Rebecca, et al.
Publicado: (2021)

Experiences and support needs of informal long-distance caregivers at the end of life: a scoping review
por: Ülgüt, Rojda, et al.
Publicado: (2023)

Sleep among bereaved caregivers of patients admitted to hospice: a 1-year longitudinal pilot study
por: Lerdal, Anners, et al.
Publicado: (2016)

Inclusion of informal caregivers in the palliative and end-of-life care of older adults: a scoping review protocol
por: Auclair, Isabelle, et al.
Publicado: (2022)

Psychoeducational and rehabilitative intervention to manage cancer cachexia (PRICC) for patients and their caregivers: protocol for a single-arm feasibility trial
por: Buonaccorso, Loredana, et al.
Publicado: (2021)

Development of a novel COMPAssion focused online psyChoTherapy for bereaved informal caregivers: the COMPACT feasibility trial protocol
por: Uneno, Yu, et al.
Publicado: (2022)

Experiences and perspectives of healthcare professionals, patients and caregivers toward the serious illness conversation guide: protocol for a qualitative meta-synthesis
por: Yang, Liu, et al.
Publicado: (2023)

Care needs of dying patients and their family caregivers in hospice and palliative care in mainland China: a meta-synthesis of qualitative and quantitative studies
por: Zhu, Shuqin, et al.
Publicado: (2021)

Factors associated with carer psychological and physical health during end-of-life caregiving: an observational analysis of a population-based post-bereavement survey of carers of people with cancer
por: Grande, Gunn, et al.
Publicado: (2021)

Effects of the Namaste Care Family programme on quality of life of nursing home residents with advanced dementia and on family caregiving experiences: study protocol of a cluster-randomised controlled trial
por: Smaling, Hanneke J A, et al.
Publicado: (2018)

Challenges and facilitators of hospice decision-making: a retrospective review of family caregivers of home hospice patients in a rural US–Mexico border region—a qualitative study
por: Ko, Eunjeong, et al.
Publicado: (2020)

Prevalence of Anxiety, Depression, and Perceived Stress Among Family Caregivers of Patients Diagnosed With Oral Cancer in a Tertiary Care Hospital in Central India: A Cross-Sectional Study
por: Belapurkar, Parth, et al.
Publicado: (2023)

Practitioners’ perceptions of acceptability of a question prompt list about palliative care for advance care planning with people living with dementia and their family caregivers: a mixed-methods evaluation study
por: van der Steen, Jenny T, et al.
Publicado: (2021)

Comparison of attitudes towards five end-of-life care interventions (active pain control, withdrawal of futile life-sustaining treatment, passive euthanasia, active euthanasia and physician-assisted suicide): a multicentred cross-sectional survey of Korean patients with cancer, their family caregivers, physicians and the general Korean population
por: Yun, Young Ho, et al.
Publicado: (2018)

Nurses’ decision-making about cancer patients’ end-of-life skin care in Wales: an exploratory mixed-method vignette study protocol
por: Samuriwo, Ray, et al.
Publicado: (2020)

Occurrence and timely management of problems requiring prompt intervention among Indigenous compared with non-Indigenous Australian palliative care patients: a multijurisdictional cohort study
por: Woods, John A, et al.
Publicado: (2021)

Provision of end-of-life care in primary care: a survey of issues and outcomes in the Australian context
por: Ding, Jinfeng, et al.
Publicado: (2022)

Cannot write session to /tmp/vufind_sessions/sess_btkl0gbhglbb1hd9j4deisroro