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Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare

The disease and treatment of patients with head and neck cancer can lead to multiple late and long-term sequelae. Especially pain, psychosocial problems, and voice issues can have a high impact on patients’ health-related quality of life. The aim was to show the feasibility of implementing an electr...

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Autores principales: Zebralla, Veit, Müller, Juliane, Wald, Theresa, Boehm, Andreas, Wichmann, Gunnar, Berger, Thomas, Birnbaum, Klemens, Heuermann, Katharina, Oeltze-Jafra, Steffen, Neumuth, Thomas, Singer, Susanne, Büttner, Matthias, Dietz, Andreas, Wiegand, Susanne
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7724103/
https://www.ncbi.nlm.nih.gov/pubmed/33324544
http://dx.doi.org/10.3389/fonc.2020.549915
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author Zebralla, Veit
Müller, Juliane
Wald, Theresa
Boehm, Andreas
Wichmann, Gunnar
Berger, Thomas
Birnbaum, Klemens
Heuermann, Katharina
Oeltze-Jafra, Steffen
Neumuth, Thomas
Singer, Susanne
Büttner, Matthias
Dietz, Andreas
Wiegand, Susanne
author_facet Zebralla, Veit
Müller, Juliane
Wald, Theresa
Boehm, Andreas
Wichmann, Gunnar
Berger, Thomas
Birnbaum, Klemens
Heuermann, Katharina
Oeltze-Jafra, Steffen
Neumuth, Thomas
Singer, Susanne
Büttner, Matthias
Dietz, Andreas
Wiegand, Susanne
author_sort Zebralla, Veit
collection PubMed
description The disease and treatment of patients with head and neck cancer can lead to multiple late and long-term sequelae. Especially pain, psychosocial problems, and voice issues can have a high impact on patients’ health-related quality of life. The aim was to show the feasibility of implementing an electronic Patient-Reported Outcome Measure (PROM) in patients with head and neck cancer (HNC). Driven by our department’s intention to assess Patient-Reported Outcomes (PRO) based on the International Classification of Functioning during tumor aftercare, the program “OncoFunction” has been implemented and continuously refined in everyday practice. The new version of “OncoFunction” was evaluated by 20 head and neck surgeons and radiation oncologists in an interview. From 7/2013 until 7/2017, 846 patients completed the PROM during 2,833 of 3,610 total visits (78.5%). The latest software version implemented newly developed add-ins and increased the already high approval ratings in the evaluation as the number of errors and the time required decreased (6 vs. 0 errors, 1.35 vs. 0.95 min; p<0.01). Notably, patients had different requests using PRO in homecare use. An additional examination shows that only 59% of HNC patients use the world wide web. Using OncoFunction for online-recording and interpretation of PROM improved data acquisition in daily HNC patients’ follow-up. An accessory timeline grants access to former consultations and their visualization supported and simplified structured examinations. This provides an easy-to-use representation of the patient’s functional outcome supporting comprehensive aftercare, considering all aspects of the patient’s life.
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spelling pubmed-77241032020-12-14 Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare Zebralla, Veit Müller, Juliane Wald, Theresa Boehm, Andreas Wichmann, Gunnar Berger, Thomas Birnbaum, Klemens Heuermann, Katharina Oeltze-Jafra, Steffen Neumuth, Thomas Singer, Susanne Büttner, Matthias Dietz, Andreas Wiegand, Susanne Front Oncol Oncology The disease and treatment of patients with head and neck cancer can lead to multiple late and long-term sequelae. Especially pain, psychosocial problems, and voice issues can have a high impact on patients’ health-related quality of life. The aim was to show the feasibility of implementing an electronic Patient-Reported Outcome Measure (PROM) in patients with head and neck cancer (HNC). Driven by our department’s intention to assess Patient-Reported Outcomes (PRO) based on the International Classification of Functioning during tumor aftercare, the program “OncoFunction” has been implemented and continuously refined in everyday practice. The new version of “OncoFunction” was evaluated by 20 head and neck surgeons and radiation oncologists in an interview. From 7/2013 until 7/2017, 846 patients completed the PROM during 2,833 of 3,610 total visits (78.5%). The latest software version implemented newly developed add-ins and increased the already high approval ratings in the evaluation as the number of errors and the time required decreased (6 vs. 0 errors, 1.35 vs. 0.95 min; p<0.01). Notably, patients had different requests using PRO in homecare use. An additional examination shows that only 59% of HNC patients use the world wide web. Using OncoFunction for online-recording and interpretation of PROM improved data acquisition in daily HNC patients’ follow-up. An accessory timeline grants access to former consultations and their visualization supported and simplified structured examinations. This provides an easy-to-use representation of the patient’s functional outcome supporting comprehensive aftercare, considering all aspects of the patient’s life. Frontiers Media S.A. 2020-11-25 /pmc/articles/PMC7724103/ /pubmed/33324544 http://dx.doi.org/10.3389/fonc.2020.549915 Text en Copyright © 2020 Zebralla, Müller, Wald, Boehm, Wichmann, Berger, Birnbaum, Heuermann, Oeltze-Jafra, Neumuth, Singer, Büttner, Dietz and Wiegand http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Oncology
Zebralla, Veit
Müller, Juliane
Wald, Theresa
Boehm, Andreas
Wichmann, Gunnar
Berger, Thomas
Birnbaum, Klemens
Heuermann, Katharina
Oeltze-Jafra, Steffen
Neumuth, Thomas
Singer, Susanne
Büttner, Matthias
Dietz, Andreas
Wiegand, Susanne
Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare
title Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare
title_full Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare
title_fullStr Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare
title_full_unstemmed Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare
title_short Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare
title_sort obtaining patient-reported outcomes electronically with “oncofunction” in head and neck cancer patients during aftercare
topic Oncology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7724103/
https://www.ncbi.nlm.nih.gov/pubmed/33324544
http://dx.doi.org/10.3389/fonc.2020.549915
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