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Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare
The disease and treatment of patients with head and neck cancer can lead to multiple late and long-term sequelae. Especially pain, psychosocial problems, and voice issues can have a high impact on patients’ health-related quality of life. The aim was to show the feasibility of implementing an electr...
Autores principales: | , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7724103/ https://www.ncbi.nlm.nih.gov/pubmed/33324544 http://dx.doi.org/10.3389/fonc.2020.549915 |
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author | Zebralla, Veit Müller, Juliane Wald, Theresa Boehm, Andreas Wichmann, Gunnar Berger, Thomas Birnbaum, Klemens Heuermann, Katharina Oeltze-Jafra, Steffen Neumuth, Thomas Singer, Susanne Büttner, Matthias Dietz, Andreas Wiegand, Susanne |
author_facet | Zebralla, Veit Müller, Juliane Wald, Theresa Boehm, Andreas Wichmann, Gunnar Berger, Thomas Birnbaum, Klemens Heuermann, Katharina Oeltze-Jafra, Steffen Neumuth, Thomas Singer, Susanne Büttner, Matthias Dietz, Andreas Wiegand, Susanne |
author_sort | Zebralla, Veit |
collection | PubMed |
description | The disease and treatment of patients with head and neck cancer can lead to multiple late and long-term sequelae. Especially pain, psychosocial problems, and voice issues can have a high impact on patients’ health-related quality of life. The aim was to show the feasibility of implementing an electronic Patient-Reported Outcome Measure (PROM) in patients with head and neck cancer (HNC). Driven by our department’s intention to assess Patient-Reported Outcomes (PRO) based on the International Classification of Functioning during tumor aftercare, the program “OncoFunction” has been implemented and continuously refined in everyday practice. The new version of “OncoFunction” was evaluated by 20 head and neck surgeons and radiation oncologists in an interview. From 7/2013 until 7/2017, 846 patients completed the PROM during 2,833 of 3,610 total visits (78.5%). The latest software version implemented newly developed add-ins and increased the already high approval ratings in the evaluation as the number of errors and the time required decreased (6 vs. 0 errors, 1.35 vs. 0.95 min; p<0.01). Notably, patients had different requests using PRO in homecare use. An additional examination shows that only 59% of HNC patients use the world wide web. Using OncoFunction for online-recording and interpretation of PROM improved data acquisition in daily HNC patients’ follow-up. An accessory timeline grants access to former consultations and their visualization supported and simplified structured examinations. This provides an easy-to-use representation of the patient’s functional outcome supporting comprehensive aftercare, considering all aspects of the patient’s life. |
format | Online Article Text |
id | pubmed-7724103 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | Frontiers Media S.A. |
record_format | MEDLINE/PubMed |
spelling | pubmed-77241032020-12-14 Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare Zebralla, Veit Müller, Juliane Wald, Theresa Boehm, Andreas Wichmann, Gunnar Berger, Thomas Birnbaum, Klemens Heuermann, Katharina Oeltze-Jafra, Steffen Neumuth, Thomas Singer, Susanne Büttner, Matthias Dietz, Andreas Wiegand, Susanne Front Oncol Oncology The disease and treatment of patients with head and neck cancer can lead to multiple late and long-term sequelae. Especially pain, psychosocial problems, and voice issues can have a high impact on patients’ health-related quality of life. The aim was to show the feasibility of implementing an electronic Patient-Reported Outcome Measure (PROM) in patients with head and neck cancer (HNC). Driven by our department’s intention to assess Patient-Reported Outcomes (PRO) based on the International Classification of Functioning during tumor aftercare, the program “OncoFunction” has been implemented and continuously refined in everyday practice. The new version of “OncoFunction” was evaluated by 20 head and neck surgeons and radiation oncologists in an interview. From 7/2013 until 7/2017, 846 patients completed the PROM during 2,833 of 3,610 total visits (78.5%). The latest software version implemented newly developed add-ins and increased the already high approval ratings in the evaluation as the number of errors and the time required decreased (6 vs. 0 errors, 1.35 vs. 0.95 min; p<0.01). Notably, patients had different requests using PRO in homecare use. An additional examination shows that only 59% of HNC patients use the world wide web. Using OncoFunction for online-recording and interpretation of PROM improved data acquisition in daily HNC patients’ follow-up. An accessory timeline grants access to former consultations and their visualization supported and simplified structured examinations. This provides an easy-to-use representation of the patient’s functional outcome supporting comprehensive aftercare, considering all aspects of the patient’s life. Frontiers Media S.A. 2020-11-25 /pmc/articles/PMC7724103/ /pubmed/33324544 http://dx.doi.org/10.3389/fonc.2020.549915 Text en Copyright © 2020 Zebralla, Müller, Wald, Boehm, Wichmann, Berger, Birnbaum, Heuermann, Oeltze-Jafra, Neumuth, Singer, Büttner, Dietz and Wiegand http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
spellingShingle | Oncology Zebralla, Veit Müller, Juliane Wald, Theresa Boehm, Andreas Wichmann, Gunnar Berger, Thomas Birnbaum, Klemens Heuermann, Katharina Oeltze-Jafra, Steffen Neumuth, Thomas Singer, Susanne Büttner, Matthias Dietz, Andreas Wiegand, Susanne Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare |
title | Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare |
title_full | Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare |
title_fullStr | Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare |
title_full_unstemmed | Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare |
title_short | Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare |
title_sort | obtaining patient-reported outcomes electronically with “oncofunction” in head and neck cancer patients during aftercare |
topic | Oncology |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7724103/ https://www.ncbi.nlm.nih.gov/pubmed/33324544 http://dx.doi.org/10.3389/fonc.2020.549915 |
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