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The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease
The Clinical Interview on the Sense of Grip on Chronic Disease has been administered to 68 mothers of children affected by Hereditary Angioedema (C1-Inh HAE), Type 1 Diabetes (T1D), Juvenile Rheumatoid Arthritis (JRA). The objectives are to detect general features of the experience of parenting chil...
Autores principales: | , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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SAGE Publications
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7727074/ https://www.ncbi.nlm.nih.gov/pubmed/33343914 http://dx.doi.org/10.1177/2055102920971496 |
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author | Savarese, Livia Freda, Maria Francesca De Luca Picione, Raffaele Dolce, Pasqaule De Falco, Raffaella Alessio, Maria Cancian, Mauro Franzese, Adriana Guarino, Maria Domenica Perricone, Roberto Petraroli, Angelica Senter, Riccardo Traverso, Claudia Zanichelli, Andrea Zito, Eugenio Bova, Maria |
author_facet | Savarese, Livia Freda, Maria Francesca De Luca Picione, Raffaele Dolce, Pasqaule De Falco, Raffaella Alessio, Maria Cancian, Mauro Franzese, Adriana Guarino, Maria Domenica Perricone, Roberto Petraroli, Angelica Senter, Riccardo Traverso, Claudia Zanichelli, Andrea Zito, Eugenio Bova, Maria |
author_sort | Savarese, Livia |
collection | PubMed |
description | The Clinical Interview on the Sense of Grip on Chronic Disease has been administered to 68 mothers of children affected by Hereditary Angioedema (C1-Inh HAE), Type 1 Diabetes (T1D), Juvenile Rheumatoid Arthritis (JRA). The objectives are to detect general features of the experience of parenting children with chronic illness as well as the specificities of this experience related to the different conditions. Four Profiles of Sense of Grip were identified: Adempitive, Controlling, Reactive, Dynamic. The Sense of Grip Interview is an effective clinical tool for understanding the characteristics of the disease in daily life, which can help clinicians to encourage family adjustment to disease. |
format | Online Article Text |
id | pubmed-7727074 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-77270742020-12-18 The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease Savarese, Livia Freda, Maria Francesca De Luca Picione, Raffaele Dolce, Pasqaule De Falco, Raffaella Alessio, Maria Cancian, Mauro Franzese, Adriana Guarino, Maria Domenica Perricone, Roberto Petraroli, Angelica Senter, Riccardo Traverso, Claudia Zanichelli, Andrea Zito, Eugenio Bova, Maria Health Psychol Open Report of Empirical Study The Clinical Interview on the Sense of Grip on Chronic Disease has been administered to 68 mothers of children affected by Hereditary Angioedema (C1-Inh HAE), Type 1 Diabetes (T1D), Juvenile Rheumatoid Arthritis (JRA). The objectives are to detect general features of the experience of parenting children with chronic illness as well as the specificities of this experience related to the different conditions. Four Profiles of Sense of Grip were identified: Adempitive, Controlling, Reactive, Dynamic. The Sense of Grip Interview is an effective clinical tool for understanding the characteristics of the disease in daily life, which can help clinicians to encourage family adjustment to disease. SAGE Publications 2020-12-08 /pmc/articles/PMC7727074/ /pubmed/33343914 http://dx.doi.org/10.1177/2055102920971496 Text en © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Report of Empirical Study Savarese, Livia Freda, Maria Francesca De Luca Picione, Raffaele Dolce, Pasqaule De Falco, Raffaella Alessio, Maria Cancian, Mauro Franzese, Adriana Guarino, Maria Domenica Perricone, Roberto Petraroli, Angelica Senter, Riccardo Traverso, Claudia Zanichelli, Andrea Zito, Eugenio Bova, Maria The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease |
title | The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease |
title_full | The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease |
title_fullStr | The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease |
title_full_unstemmed | The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease |
title_short | The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease |
title_sort | experience of living with a chronic disease in pediatrics from the mothers’ narratives: the clinical interview on parental sense of grip on the disease |
topic | Report of Empirical Study |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7727074/ https://www.ncbi.nlm.nih.gov/pubmed/33343914 http://dx.doi.org/10.1177/2055102920971496 |
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