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The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease

The Clinical Interview on the Sense of Grip on Chronic Disease has been administered to 68 mothers of children affected by Hereditary Angioedema (C1-Inh HAE), Type 1 Diabetes (T1D), Juvenile Rheumatoid Arthritis (JRA). The objectives are to detect general features of the experience of parenting chil...

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Autores principales: Savarese, Livia, Freda, Maria Francesca, De Luca Picione, Raffaele, Dolce, Pasqaule, De Falco, Raffaella, Alessio, Maria, Cancian, Mauro, Franzese, Adriana, Guarino, Maria Domenica, Perricone, Roberto, Petraroli, Angelica, Senter, Riccardo, Traverso, Claudia, Zanichelli, Andrea, Zito, Eugenio, Bova, Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7727074/
https://www.ncbi.nlm.nih.gov/pubmed/33343914
http://dx.doi.org/10.1177/2055102920971496
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author Savarese, Livia
Freda, Maria Francesca
De Luca Picione, Raffaele
Dolce, Pasqaule
De Falco, Raffaella
Alessio, Maria
Cancian, Mauro
Franzese, Adriana
Guarino, Maria Domenica
Perricone, Roberto
Petraroli, Angelica
Senter, Riccardo
Traverso, Claudia
Zanichelli, Andrea
Zito, Eugenio
Bova, Maria
author_facet Savarese, Livia
Freda, Maria Francesca
De Luca Picione, Raffaele
Dolce, Pasqaule
De Falco, Raffaella
Alessio, Maria
Cancian, Mauro
Franzese, Adriana
Guarino, Maria Domenica
Perricone, Roberto
Petraroli, Angelica
Senter, Riccardo
Traverso, Claudia
Zanichelli, Andrea
Zito, Eugenio
Bova, Maria
author_sort Savarese, Livia
collection PubMed
description The Clinical Interview on the Sense of Grip on Chronic Disease has been administered to 68 mothers of children affected by Hereditary Angioedema (C1-Inh HAE), Type 1 Diabetes (T1D), Juvenile Rheumatoid Arthritis (JRA). The objectives are to detect general features of the experience of parenting children with chronic illness as well as the specificities of this experience related to the different conditions. Four Profiles of Sense of Grip were identified: Adempitive, Controlling, Reactive, Dynamic. The Sense of Grip Interview is an effective clinical tool for understanding the characteristics of the disease in daily life, which can help clinicians to encourage family adjustment to disease.
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spelling pubmed-77270742020-12-18 The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease Savarese, Livia Freda, Maria Francesca De Luca Picione, Raffaele Dolce, Pasqaule De Falco, Raffaella Alessio, Maria Cancian, Mauro Franzese, Adriana Guarino, Maria Domenica Perricone, Roberto Petraroli, Angelica Senter, Riccardo Traverso, Claudia Zanichelli, Andrea Zito, Eugenio Bova, Maria Health Psychol Open Report of Empirical Study The Clinical Interview on the Sense of Grip on Chronic Disease has been administered to 68 mothers of children affected by Hereditary Angioedema (C1-Inh HAE), Type 1 Diabetes (T1D), Juvenile Rheumatoid Arthritis (JRA). The objectives are to detect general features of the experience of parenting children with chronic illness as well as the specificities of this experience related to the different conditions. Four Profiles of Sense of Grip were identified: Adempitive, Controlling, Reactive, Dynamic. The Sense of Grip Interview is an effective clinical tool for understanding the characteristics of the disease in daily life, which can help clinicians to encourage family adjustment to disease. SAGE Publications 2020-12-08 /pmc/articles/PMC7727074/ /pubmed/33343914 http://dx.doi.org/10.1177/2055102920971496 Text en © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Report of Empirical Study
Savarese, Livia
Freda, Maria Francesca
De Luca Picione, Raffaele
Dolce, Pasqaule
De Falco, Raffaella
Alessio, Maria
Cancian, Mauro
Franzese, Adriana
Guarino, Maria Domenica
Perricone, Roberto
Petraroli, Angelica
Senter, Riccardo
Traverso, Claudia
Zanichelli, Andrea
Zito, Eugenio
Bova, Maria
The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease
title The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease
title_full The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease
title_fullStr The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease
title_full_unstemmed The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease
title_short The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease
title_sort experience of living with a chronic disease in pediatrics from the mothers’ narratives: the clinical interview on parental sense of grip on the disease
topic Report of Empirical Study
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7727074/
https://www.ncbi.nlm.nih.gov/pubmed/33343914
http://dx.doi.org/10.1177/2055102920971496
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