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Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges

AIM: To identify and summarize the challenges of conducting qualitative research exploring end‐of‐life communication between healthcare providers and bereaved family carers in nursing homes. DESIGN: A descriptive qualitative study based on in‐the‐field‐notes and research diaries collected during a p...

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Autores principales: Gonella, Silvia, Di Giulio, Paola, Palese, Alvisa, Dimonte, Valerio, Campagna, Sara
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7729536/
https://www.ncbi.nlm.nih.gov/pubmed/33318826
http://dx.doi.org/10.1002/nop2.617
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author Gonella, Silvia
Di Giulio, Paola
Palese, Alvisa
Dimonte, Valerio
Campagna, Sara
author_facet Gonella, Silvia
Di Giulio, Paola
Palese, Alvisa
Dimonte, Valerio
Campagna, Sara
author_sort Gonella, Silvia
collection PubMed
description AIM: To identify and summarize the challenges of conducting qualitative research exploring end‐of‐life communication between healthcare providers and bereaved family carers in nursing homes. DESIGN: A descriptive qualitative study based on in‐the‐field‐notes and research diaries collected during a primary study involving 32 bereaved family carers and 14 nurses across 13 Italian nursing homes in 2018–2019. METHODS: Two trained female nurses conducted semi‐structured, in‐depth, open‐ended interviews and recorded “in action” (i.e. reflections reported as in‐the‐field‐notes) and “on action” (i.e. retrospective reflections within the team reported immediately in the research diaries) narratives, with the aim of identifying challenges encountered during the research process. A content analysis process was performed to analyse the narratives collected. RESULTS: We identified three major categories of challenges: (a) obtaining approval from the ethical committee; (b) approaching nursing homes and family carers; and (c) dealing with participant‐related impairments (i.e. memory, emotional, physical).
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spelling pubmed-77295362020-12-13 Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges Gonella, Silvia Di Giulio, Paola Palese, Alvisa Dimonte, Valerio Campagna, Sara Nurs Open Research Articles AIM: To identify and summarize the challenges of conducting qualitative research exploring end‐of‐life communication between healthcare providers and bereaved family carers in nursing homes. DESIGN: A descriptive qualitative study based on in‐the‐field‐notes and research diaries collected during a primary study involving 32 bereaved family carers and 14 nurses across 13 Italian nursing homes in 2018–2019. METHODS: Two trained female nurses conducted semi‐structured, in‐depth, open‐ended interviews and recorded “in action” (i.e. reflections reported as in‐the‐field‐notes) and “on action” (i.e. retrospective reflections within the team reported immediately in the research diaries) narratives, with the aim of identifying challenges encountered during the research process. A content analysis process was performed to analyse the narratives collected. RESULTS: We identified three major categories of challenges: (a) obtaining approval from the ethical committee; (b) approaching nursing homes and family carers; and (c) dealing with participant‐related impairments (i.e. memory, emotional, physical). John Wiley and Sons Inc. 2020-09-19 /pmc/articles/PMC7729536/ /pubmed/33318826 http://dx.doi.org/10.1002/nop2.617 Text en © 2020 The Authors. Nursing Open published by John Wiley & Sons Ltd This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Articles
Gonella, Silvia
Di Giulio, Paola
Palese, Alvisa
Dimonte, Valerio
Campagna, Sara
Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges
title Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges
title_full Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges
title_fullStr Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges
title_full_unstemmed Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges
title_short Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges
title_sort qualitative research on end‐of‐life communication with family carers in nursing homes: a discussion of methodological issues and challenges
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7729536/
https://www.ncbi.nlm.nih.gov/pubmed/33318826
http://dx.doi.org/10.1002/nop2.617
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