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Sexuality in Patients with Hidradenitis Suppurativa: Beliefs, Behaviors and Needs

Little is known about the impact of hidradenitis suppurativa (HS) on patients’ sexuality. The aim of this research is to investigate the impact of HS on several previously unexplored aspects of sexuality. In March 2018, we conducted a crowd-sourced cross-sectional online survey hosted by the Spanish...

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Autores principales: Cuenca-Barrales, Carlos, Molina-Leyva, Alejandro
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7730576/
https://www.ncbi.nlm.nih.gov/pubmed/33260862
http://dx.doi.org/10.3390/ijerph17238808
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author Cuenca-Barrales, Carlos
Molina-Leyva, Alejandro
author_facet Cuenca-Barrales, Carlos
Molina-Leyva, Alejandro
author_sort Cuenca-Barrales, Carlos
collection PubMed
description Little is known about the impact of hidradenitis suppurativa (HS) on patients’ sexuality. The aim of this research is to investigate the impact of HS on several previously unexplored aspects of sexuality. In March 2018, we conducted a crowd-sourced cross-sectional online survey hosted by the Spanish association of patients with HS (ASENDHI) and available in Spanish. A panel of experts and patients from ASENDHI designed various questions in order to explore the extent to which HS influenced participants’ sex lives. The final sample consisted of 386 participants, 79.27% (306/386) of which were women and 20.73% (80/306) of which were men. Seventy-seven point one percent (236/306) of women and 67.5% (54/80) of men were in stable relationships; the rest of the participants were single. Forty-seven point nine percent (185/386) admitted to feeling fear of rejection. Pain was the symptom that most interfered with sexual relations in women and suppuration in men. Forty-four point three percent (171/386) of the participants considered themselves to be less attractive than average. Considering the participants in a stable relationship, women described receiving more emotional support from their partners, while men received more help with lesion dressing in intimate areas. Seventy-one point four percent (207/290) of participants stated that HS negatively affected their relationship. Among single patients, women experienced greater fear of rejection and were less willing to meet new people because of HS. Ninety-four point three percent (66/70) of women and 80.8% (21/26) of men stated that HS had a negative influence on their chances of having a relationship or sexual relations. In conclusion, HS has a significant, unrecognized and misunderstood impact on sexuality which must be addressed.
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spelling pubmed-77305762020-12-12 Sexuality in Patients with Hidradenitis Suppurativa: Beliefs, Behaviors and Needs Cuenca-Barrales, Carlos Molina-Leyva, Alejandro Int J Environ Res Public Health Article Little is known about the impact of hidradenitis suppurativa (HS) on patients’ sexuality. The aim of this research is to investigate the impact of HS on several previously unexplored aspects of sexuality. In March 2018, we conducted a crowd-sourced cross-sectional online survey hosted by the Spanish association of patients with HS (ASENDHI) and available in Spanish. A panel of experts and patients from ASENDHI designed various questions in order to explore the extent to which HS influenced participants’ sex lives. The final sample consisted of 386 participants, 79.27% (306/386) of which were women and 20.73% (80/306) of which were men. Seventy-seven point one percent (236/306) of women and 67.5% (54/80) of men were in stable relationships; the rest of the participants were single. Forty-seven point nine percent (185/386) admitted to feeling fear of rejection. Pain was the symptom that most interfered with sexual relations in women and suppuration in men. Forty-four point three percent (171/386) of the participants considered themselves to be less attractive than average. Considering the participants in a stable relationship, women described receiving more emotional support from their partners, while men received more help with lesion dressing in intimate areas. Seventy-one point four percent (207/290) of participants stated that HS negatively affected their relationship. Among single patients, women experienced greater fear of rejection and were less willing to meet new people because of HS. Ninety-four point three percent (66/70) of women and 80.8% (21/26) of men stated that HS had a negative influence on their chances of having a relationship or sexual relations. In conclusion, HS has a significant, unrecognized and misunderstood impact on sexuality which must be addressed. MDPI 2020-11-27 2020-12 /pmc/articles/PMC7730576/ /pubmed/33260862 http://dx.doi.org/10.3390/ijerph17238808 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Cuenca-Barrales, Carlos
Molina-Leyva, Alejandro
Sexuality in Patients with Hidradenitis Suppurativa: Beliefs, Behaviors and Needs
title Sexuality in Patients with Hidradenitis Suppurativa: Beliefs, Behaviors and Needs
title_full Sexuality in Patients with Hidradenitis Suppurativa: Beliefs, Behaviors and Needs
title_fullStr Sexuality in Patients with Hidradenitis Suppurativa: Beliefs, Behaviors and Needs
title_full_unstemmed Sexuality in Patients with Hidradenitis Suppurativa: Beliefs, Behaviors and Needs
title_short Sexuality in Patients with Hidradenitis Suppurativa: Beliefs, Behaviors and Needs
title_sort sexuality in patients with hidradenitis suppurativa: beliefs, behaviors and needs
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7730576/
https://www.ncbi.nlm.nih.gov/pubmed/33260862
http://dx.doi.org/10.3390/ijerph17238808
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