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Parental Stress and Family Quality of Life: Surveying Family Members of Persons with Intellectual Disabilities
(1) Background. This study assesses the quality of life in families with a member with an intellectual disability using the Family Adjustment and Adaptation Response framework. (2) Methods. The study included 515 Spanish participants whose family members with disabilities range in age from infancy t...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7731363/ https://www.ncbi.nlm.nih.gov/pubmed/33287284 http://dx.doi.org/10.3390/ijerph17239007 |
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author | Jenaro, Cristina Flores, Noelia Gutiérrez-Bermejo, Belén Vega, Vanessa Pérez, Carmen Cruz, Maribel |
author_facet | Jenaro, Cristina Flores, Noelia Gutiérrez-Bermejo, Belén Vega, Vanessa Pérez, Carmen Cruz, Maribel |
author_sort | Jenaro, Cristina |
collection | PubMed |
description | (1) Background. This study assesses the quality of life in families with a member with an intellectual disability using the Family Adjustment and Adaptation Response framework. (2) Methods. The study included 515 Spanish participants whose family members with disabilities range in age from infancy to adulthood. We hypothesized that it is possible to predict parenting stress by paying attention to the meaning families give to themselves and their circumstances while controlling for the impact of other variables such as family capabilities and characteristics of the family member with disabilities. We used the Beach Center Family Quality of Life Scale and the section on Exceptional needs of medical and behavioral support from the Supports Intensity Scale, together with other potential predictors. The subscale on parental stress from the Parenting Stress Index–Short Form was utilized as a criterion measure. (3) Results. Hierarchical multiple regression analysis revealed that 49% of parental stress was predicted by dysfunctional interaction, difficult behaviors, low emotional wellbeing, poor family interaction, as well as kinship as parents, and the severity of both the medical needs and intellectual disability. (4) Conclusions. The stress experienced by those families is mostly predicted by the meaning they give to themselves and their circumstances. Implications of these findings for service delivery are discussed. |
format | Online Article Text |
id | pubmed-7731363 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-77313632020-12-12 Parental Stress and Family Quality of Life: Surveying Family Members of Persons with Intellectual Disabilities Jenaro, Cristina Flores, Noelia Gutiérrez-Bermejo, Belén Vega, Vanessa Pérez, Carmen Cruz, Maribel Int J Environ Res Public Health Article (1) Background. This study assesses the quality of life in families with a member with an intellectual disability using the Family Adjustment and Adaptation Response framework. (2) Methods. The study included 515 Spanish participants whose family members with disabilities range in age from infancy to adulthood. We hypothesized that it is possible to predict parenting stress by paying attention to the meaning families give to themselves and their circumstances while controlling for the impact of other variables such as family capabilities and characteristics of the family member with disabilities. We used the Beach Center Family Quality of Life Scale and the section on Exceptional needs of medical and behavioral support from the Supports Intensity Scale, together with other potential predictors. The subscale on parental stress from the Parenting Stress Index–Short Form was utilized as a criterion measure. (3) Results. Hierarchical multiple regression analysis revealed that 49% of parental stress was predicted by dysfunctional interaction, difficult behaviors, low emotional wellbeing, poor family interaction, as well as kinship as parents, and the severity of both the medical needs and intellectual disability. (4) Conclusions. The stress experienced by those families is mostly predicted by the meaning they give to themselves and their circumstances. Implications of these findings for service delivery are discussed. MDPI 2020-12-03 2020-12 /pmc/articles/PMC7731363/ /pubmed/33287284 http://dx.doi.org/10.3390/ijerph17239007 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Jenaro, Cristina Flores, Noelia Gutiérrez-Bermejo, Belén Vega, Vanessa Pérez, Carmen Cruz, Maribel Parental Stress and Family Quality of Life: Surveying Family Members of Persons with Intellectual Disabilities |
title | Parental Stress and Family Quality of Life: Surveying Family Members of Persons with Intellectual Disabilities |
title_full | Parental Stress and Family Quality of Life: Surveying Family Members of Persons with Intellectual Disabilities |
title_fullStr | Parental Stress and Family Quality of Life: Surveying Family Members of Persons with Intellectual Disabilities |
title_full_unstemmed | Parental Stress and Family Quality of Life: Surveying Family Members of Persons with Intellectual Disabilities |
title_short | Parental Stress and Family Quality of Life: Surveying Family Members of Persons with Intellectual Disabilities |
title_sort | parental stress and family quality of life: surveying family members of persons with intellectual disabilities |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7731363/ https://www.ncbi.nlm.nih.gov/pubmed/33287284 http://dx.doi.org/10.3390/ijerph17239007 |
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