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Non-visible disease, the hidden disruptive experiences of chronic illness in adversity

Objective: This study’s principal aim was to describe the lived reality for people with cardiovascular disease (CVD) and other chronic health conditions, who live in economically deprived neighbourhoods in a city in North West England. Methodology: This is a qualitative, exploratory study based on i...

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Autores principales: Estecha Querol, Sara, Clarke, Pam, Sattler, Elisabeth Lilian Pia, Halford, Jason C. G., Gabbay, Mark
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Taylor & Francis 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7733900/
https://www.ncbi.nlm.nih.gov/pubmed/33287691
http://dx.doi.org/10.1080/17482631.2020.1857579
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author Estecha Querol, Sara
Clarke, Pam
Sattler, Elisabeth Lilian Pia
Halford, Jason C. G.
Gabbay, Mark
author_facet Estecha Querol, Sara
Clarke, Pam
Sattler, Elisabeth Lilian Pia
Halford, Jason C. G.
Gabbay, Mark
author_sort Estecha Querol, Sara
collection PubMed
description Objective: This study’s principal aim was to describe the lived reality for people with cardiovascular disease (CVD) and other chronic health conditions, who live in economically deprived neighbourhoods in a city in North West England. Methodology: This is a qualitative, exploratory study based on in-depth, semi-structured interviews with participants experiencing compromised cardiovascular health, conducted in August 2017. The study sample comprised 14 adults (3 females) aged 54 to 76. Thematic analysis was used for data analysis, and the biographical disruption concept was used as theoretical reference to explore the results. Wider health inequalities literature supplemented the individual experiences of chronic illness. Results: Four main themes were developed from the data: (1) chronic illness as a disruptive experience; (2) struggling for money; (3) lifestyle and health risks; and (4) reflections on current inequalities. The varied nature of participants’ narratives about their chronic illness indicated that the experience of biographical disruption depends on the wider socioeconomic and cultural factors of the individual. Discussion: This study suggests that biographical disruption theory combined with health inequalities contexts highlights the role of hidden suffering and enhances the understanding of chronic illness experiences and thus informs clinical management, service and public health planning.
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spelling pubmed-77339002020-12-18 Non-visible disease, the hidden disruptive experiences of chronic illness in adversity Estecha Querol, Sara Clarke, Pam Sattler, Elisabeth Lilian Pia Halford, Jason C. G. Gabbay, Mark Int J Qual Stud Health Well-being Empirical Studies Objective: This study’s principal aim was to describe the lived reality for people with cardiovascular disease (CVD) and other chronic health conditions, who live in economically deprived neighbourhoods in a city in North West England. Methodology: This is a qualitative, exploratory study based on in-depth, semi-structured interviews with participants experiencing compromised cardiovascular health, conducted in August 2017. The study sample comprised 14 adults (3 females) aged 54 to 76. Thematic analysis was used for data analysis, and the biographical disruption concept was used as theoretical reference to explore the results. Wider health inequalities literature supplemented the individual experiences of chronic illness. Results: Four main themes were developed from the data: (1) chronic illness as a disruptive experience; (2) struggling for money; (3) lifestyle and health risks; and (4) reflections on current inequalities. The varied nature of participants’ narratives about their chronic illness indicated that the experience of biographical disruption depends on the wider socioeconomic and cultural factors of the individual. Discussion: This study suggests that biographical disruption theory combined with health inequalities contexts highlights the role of hidden suffering and enhances the understanding of chronic illness experiences and thus informs clinical management, service and public health planning. Taylor & Francis 2020-12-07 /pmc/articles/PMC7733900/ /pubmed/33287691 http://dx.doi.org/10.1080/17482631.2020.1857579 Text en © 2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Empirical Studies
Estecha Querol, Sara
Clarke, Pam
Sattler, Elisabeth Lilian Pia
Halford, Jason C. G.
Gabbay, Mark
Non-visible disease, the hidden disruptive experiences of chronic illness in adversity
title Non-visible disease, the hidden disruptive experiences of chronic illness in adversity
title_full Non-visible disease, the hidden disruptive experiences of chronic illness in adversity
title_fullStr Non-visible disease, the hidden disruptive experiences of chronic illness in adversity
title_full_unstemmed Non-visible disease, the hidden disruptive experiences of chronic illness in adversity
title_short Non-visible disease, the hidden disruptive experiences of chronic illness in adversity
title_sort non-visible disease, the hidden disruptive experiences of chronic illness in adversity
topic Empirical Studies
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7733900/
https://www.ncbi.nlm.nih.gov/pubmed/33287691
http://dx.doi.org/10.1080/17482631.2020.1857579
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