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Discussing personalized prognosis in amyotrophic lateral sclerosis: development of a communication guide

BACKGROUND: Personalized ENCALS survival prediction model reliably estimates the personalized prognosis of patients with amyotrophic lateral sclerosis. Concerns were raised on discussing personalized prognosis without causing anxiety and destroying hope. Tailoring communication to patient readiness...

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Detalles Bibliográficos
Autores principales:	van Eenennaam, Remko M., Kruithof, Willeke J., van Es, Michael A., Kruitwagen-van Reenen, Esther T., Westeneng, Henk-Jan, Visser-Meily, Johanna M. A., van den Berg, Leonard H., Beelen, Anita
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2020
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7734773/ https://www.ncbi.nlm.nih.gov/pubmed/33308184 http://dx.doi.org/10.1186/s12883-020-02004-8

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