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Information Seeking Experiences of Family Caregivers of Patients with Persistent Vegetative State: A Qualitative Study

BACKGROUND: Providing care for patients in Persistent Vegetative State (PVS) by family caregivers without enough training and knowledge may be problematic both for the patients and for the caregivers. Therefore, the present study tries to explain the experiences of family caregivers of patients with...

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Autores principales: Goudarzi, Fateme, Abedi, Heidarali, Zarea, Kourosh
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer - Medknow 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7737835/
https://www.ncbi.nlm.nih.gov/pubmed/33344210
http://dx.doi.org/10.4103/ijnmr.IJNMR_187_18
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author Goudarzi, Fateme
Abedi, Heidarali
Zarea, Kourosh
author_facet Goudarzi, Fateme
Abedi, Heidarali
Zarea, Kourosh
author_sort Goudarzi, Fateme
collection PubMed
description BACKGROUND: Providing care for patients in Persistent Vegetative State (PVS) by family caregivers without enough training and knowledge may be problematic both for the patients and for the caregivers. Therefore, the present study tries to explain the experiences of family caregivers of patients with PVS of seeking information needed to provide adequate care. MATERIALS AND METHODS: Twenty two participants, including 17 family caregivers and 5 professional caregivers were enrolled by purposive sampling into this qualitative content analysis study, carried out between 2013 and 2015. Unstructured interviews and field notes were used to gather the data. Data collection was stopped when data saturation was achieved. Data analysis was performed by content analysis based on Graneheim and Lundman's approach. RESULTS: As a result of the analysis of the collected data a main theme emerged labeled as “Seeking constructive education” with three categories including “Neglected requisite education,” “Greedy search for useful education” and “Dynamic independence in care.” CONCLUSIONS: In this study, information seeking by family caregivers of patients with PVS was constructive. Family caregivers insistently sought needed information from various sources. Ultimately, they found these insistent efforts beneficial and fruitful, because their efforts made them independent in providing care for their patients.
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spelling pubmed-77378352020-12-18 Information Seeking Experiences of Family Caregivers of Patients with Persistent Vegetative State: A Qualitative Study Goudarzi, Fateme Abedi, Heidarali Zarea, Kourosh Iran J Nurs Midwifery Res Original Article BACKGROUND: Providing care for patients in Persistent Vegetative State (PVS) by family caregivers without enough training and knowledge may be problematic both for the patients and for the caregivers. Therefore, the present study tries to explain the experiences of family caregivers of patients with PVS of seeking information needed to provide adequate care. MATERIALS AND METHODS: Twenty two participants, including 17 family caregivers and 5 professional caregivers were enrolled by purposive sampling into this qualitative content analysis study, carried out between 2013 and 2015. Unstructured interviews and field notes were used to gather the data. Data collection was stopped when data saturation was achieved. Data analysis was performed by content analysis based on Graneheim and Lundman's approach. RESULTS: As a result of the analysis of the collected data a main theme emerged labeled as “Seeking constructive education” with three categories including “Neglected requisite education,” “Greedy search for useful education” and “Dynamic independence in care.” CONCLUSIONS: In this study, information seeking by family caregivers of patients with PVS was constructive. Family caregivers insistently sought needed information from various sources. Ultimately, they found these insistent efforts beneficial and fruitful, because their efforts made them independent in providing care for their patients. Wolters Kluwer - Medknow 2020-09-01 /pmc/articles/PMC7737835/ /pubmed/33344210 http://dx.doi.org/10.4103/ijnmr.IJNMR_187_18 Text en Copyright: © 2020 Iranian Journal of Nursing and Midwifery Research http://creativecommons.org/licenses/by-nc-sa/4.0 This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms.
spellingShingle Original Article
Goudarzi, Fateme
Abedi, Heidarali
Zarea, Kourosh
Information Seeking Experiences of Family Caregivers of Patients with Persistent Vegetative State: A Qualitative Study
title Information Seeking Experiences of Family Caregivers of Patients with Persistent Vegetative State: A Qualitative Study
title_full Information Seeking Experiences of Family Caregivers of Patients with Persistent Vegetative State: A Qualitative Study
title_fullStr Information Seeking Experiences of Family Caregivers of Patients with Persistent Vegetative State: A Qualitative Study
title_full_unstemmed Information Seeking Experiences of Family Caregivers of Patients with Persistent Vegetative State: A Qualitative Study
title_short Information Seeking Experiences of Family Caregivers of Patients with Persistent Vegetative State: A Qualitative Study
title_sort information seeking experiences of family caregivers of patients with persistent vegetative state: a qualitative study
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7737835/
https://www.ncbi.nlm.nih.gov/pubmed/33344210
http://dx.doi.org/10.4103/ijnmr.IJNMR_187_18
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