Cargando…

A Program of Research to Evaluate the Impact of Deceased Organ Donation Legislative Reform in Nova Scotia: The LEADDR Program

BACKGROUND. This is the first time deemed consent, where the entire population of a jurisdiction is considered to have consented for donation unless they have registered otherwise, will be implemented in North America. While relatively common in other regions of the world—notably Western Europe—it i...

Descripción completa

Detalles Bibliográficos
Autores principales: Weiss, Matthew J., Krmpotic, Kristina, Cyr, Tim, Dhanani, Sonny, Dieudé, Mélanie, Dirk, Jade S., Hartell, David, Isenor, Cynthia, James, Lee, Lucas, Amanda, Patriquin, Chelsea, Simpson, Christy, Sullivan, Victoria L., Tennankore, Karthik K., Thurlow, Jennifer, Urquhart, Robin, Vorster, Hans, Beed, Stephen D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Lippincott Williams & Wilkins 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7738157/
https://www.ncbi.nlm.nih.gov/pubmed/33335980
http://dx.doi.org/10.1097/TXD.0000000000001093
_version_ 1783623074455748608
author Weiss, Matthew J.
Krmpotic, Kristina
Cyr, Tim
Dhanani, Sonny
Dieudé, Mélanie
Dirk, Jade S.
Hartell, David
Isenor, Cynthia
James, Lee
Lucas, Amanda
Patriquin, Chelsea
Simpson, Christy
Sullivan, Victoria L.
Tennankore, Karthik K.
Thurlow, Jennifer
Urquhart, Robin
Vorster, Hans
Beed, Stephen D.
author_facet Weiss, Matthew J.
Krmpotic, Kristina
Cyr, Tim
Dhanani, Sonny
Dieudé, Mélanie
Dirk, Jade S.
Hartell, David
Isenor, Cynthia
James, Lee
Lucas, Amanda
Patriquin, Chelsea
Simpson, Christy
Sullivan, Victoria L.
Tennankore, Karthik K.
Thurlow, Jennifer
Urquhart, Robin
Vorster, Hans
Beed, Stephen D.
author_sort Weiss, Matthew J.
collection PubMed
description BACKGROUND. This is the first time deemed consent, where the entire population of a jurisdiction is considered to have consented for donation unless they have registered otherwise, will be implemented in North America. While relatively common in other regions of the world—notably Western Europe—it is uncertain how this practice will influence deceased donation practices and attitudes in Canada. METHODS. We describe a Health Canada funded program of research that will evaluate the implementation process and full impact of the deceased organ donation legislation and the health system transformation in Nova Scotia that includes opt-out consent. RESULTS. There is a need to evaluate the impact of these changes to inform not only Nova Scotia and Atlantic Canada, but also other provincial, national, and international stakeholders. CONCLUSIONS. We establish a rigorous academic framework that we will use to evaluate this significant health system transformation.
format Online
Article
Text
id pubmed-7738157
institution National Center for Biotechnology Information
language English
publishDate 2020
publisher Lippincott Williams & Wilkins
record_format MEDLINE/PubMed
spelling pubmed-77381572020-12-16 A Program of Research to Evaluate the Impact of Deceased Organ Donation Legislative Reform in Nova Scotia: The LEADDR Program Weiss, Matthew J. Krmpotic, Kristina Cyr, Tim Dhanani, Sonny Dieudé, Mélanie Dirk, Jade S. Hartell, David Isenor, Cynthia James, Lee Lucas, Amanda Patriquin, Chelsea Simpson, Christy Sullivan, Victoria L. Tennankore, Karthik K. Thurlow, Jennifer Urquhart, Robin Vorster, Hans Beed, Stephen D. Transplant Direct Organ Donation and Procurement BACKGROUND. This is the first time deemed consent, where the entire population of a jurisdiction is considered to have consented for donation unless they have registered otherwise, will be implemented in North America. While relatively common in other regions of the world—notably Western Europe—it is uncertain how this practice will influence deceased donation practices and attitudes in Canada. METHODS. We describe a Health Canada funded program of research that will evaluate the implementation process and full impact of the deceased organ donation legislation and the health system transformation in Nova Scotia that includes opt-out consent. RESULTS. There is a need to evaluate the impact of these changes to inform not only Nova Scotia and Atlantic Canada, but also other provincial, national, and international stakeholders. CONCLUSIONS. We establish a rigorous academic framework that we will use to evaluate this significant health system transformation. Lippincott Williams & Wilkins 2020-12-15 /pmc/articles/PMC7738157/ /pubmed/33335980 http://dx.doi.org/10.1097/TXD.0000000000001093 Text en Copyright © 2020 The Author(s). Transplantation Direct. Published by Wolters Kluwer Health, Inc. This is an open-access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (CCBY-NC-ND) (http://creativecommons.org/licenses/by-nc-nd/4.0/) , where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal.
spellingShingle Organ Donation and Procurement
Weiss, Matthew J.
Krmpotic, Kristina
Cyr, Tim
Dhanani, Sonny
Dieudé, Mélanie
Dirk, Jade S.
Hartell, David
Isenor, Cynthia
James, Lee
Lucas, Amanda
Patriquin, Chelsea
Simpson, Christy
Sullivan, Victoria L.
Tennankore, Karthik K.
Thurlow, Jennifer
Urquhart, Robin
Vorster, Hans
Beed, Stephen D.
A Program of Research to Evaluate the Impact of Deceased Organ Donation Legislative Reform in Nova Scotia: The LEADDR Program
title A Program of Research to Evaluate the Impact of Deceased Organ Donation Legislative Reform in Nova Scotia: The LEADDR Program
title_full A Program of Research to Evaluate the Impact of Deceased Organ Donation Legislative Reform in Nova Scotia: The LEADDR Program
title_fullStr A Program of Research to Evaluate the Impact of Deceased Organ Donation Legislative Reform in Nova Scotia: The LEADDR Program
title_full_unstemmed A Program of Research to Evaluate the Impact of Deceased Organ Donation Legislative Reform in Nova Scotia: The LEADDR Program
title_short A Program of Research to Evaluate the Impact of Deceased Organ Donation Legislative Reform in Nova Scotia: The LEADDR Program
title_sort program of research to evaluate the impact of deceased organ donation legislative reform in nova scotia: the leaddr program
topic Organ Donation and Procurement
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7738157/
https://www.ncbi.nlm.nih.gov/pubmed/33335980
http://dx.doi.org/10.1097/TXD.0000000000001093
work_keys_str_mv AT weissmatthewj aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT krmpotickristina aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT cyrtim aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT dhananisonny aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT dieudemelanie aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT dirkjades aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT hartelldavid aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT isenorcynthia aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT jameslee aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT lucasamanda aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT patriquinchelsea aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT simpsonchristy aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT sullivanvictorial aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT tennankorekarthikk aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT thurlowjennifer aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT urquhartrobin aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT vorsterhans aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT beedstephend aprogramofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT weissmatthewj programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT krmpotickristina programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT cyrtim programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT dhananisonny programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT dieudemelanie programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT dirkjades programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT hartelldavid programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT isenorcynthia programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT jameslee programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT lucasamanda programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT patriquinchelsea programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT simpsonchristy programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT sullivanvictorial programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT tennankorekarthikk programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT thurlowjennifer programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT urquhartrobin programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT vorsterhans programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram
AT beedstephend programofresearchtoevaluatetheimpactofdeceasedorgandonationlegislativereforminnovascotiatheleaddrprogram