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Discussions Between People With Dementia and Care Partners About End-of-Life Care Planning
Advanced care planning (ACP) leads to better end-of-life (EoL) care. Yet, some care-partners are unaware of the person with dementia’s (PwD) preferences. Care-partners play an important role in urging PwD to consider their EoL care wishes early in their disease course and to document those wishes. H...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7740244/ http://dx.doi.org/10.1093/geroni/igaa057.526 |
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author | Shepherd-Banigan, Megan Ford, Cassie Belanger, Emmanuelle Van Houtven, Courtney |
author_facet | Shepherd-Banigan, Megan Ford, Cassie Belanger, Emmanuelle Van Houtven, Courtney |
author_sort | Shepherd-Banigan, Megan |
collection | PubMed |
description | Advanced care planning (ACP) leads to better end-of-life (EoL) care. Yet, some care-partners are unaware of the person with dementia’s (PwD) preferences. Care-partners play an important role in urging PwD to consider their EoL care wishes early in their disease course and to document those wishes. However, it is unknown whether discussions between care-partners and PwD are associated with documenting EoL care plans. We apply generalized linear models to baseline data from the CARE-IDEAS study which includes a sample of patients who received an amyloid PET scan and their care-partners (n=1,672). We examine the association between PwD report of having discussed EoL care with their care-partner and PwD report of having documented their plans through an advanced directive, a living will, or designating a health care proxy. PwD who reported speaking with their care-partners about EoL care were 10% (marginal probability (MP) 0.10; 95% CI: 0.8, 0.13) more likely to have documented their EoL care wishes. Furthermore, if PwD and care-partners agreed that they had discussed EoL care, PwD were 7% (MP 0.7; 95% CI 0.04, 0.10) more likely to report that they documented their EoL care plans. The positive association between communicating with care-partners about EoL care and having formal EoL care plans suggests that the ACP process could be a systematic approach to increase the care-partner’s knowledge of PwD EoL wishes. These results also suggest that increasing involvement of care partners in ACP may encourage patients to document their wishes at end of life. |
format | Online Article Text |
id | pubmed-7740244 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-77402442020-12-21 Discussions Between People With Dementia and Care Partners About End-of-Life Care Planning Shepherd-Banigan, Megan Ford, Cassie Belanger, Emmanuelle Van Houtven, Courtney Innov Aging Abstracts Advanced care planning (ACP) leads to better end-of-life (EoL) care. Yet, some care-partners are unaware of the person with dementia’s (PwD) preferences. Care-partners play an important role in urging PwD to consider their EoL care wishes early in their disease course and to document those wishes. However, it is unknown whether discussions between care-partners and PwD are associated with documenting EoL care plans. We apply generalized linear models to baseline data from the CARE-IDEAS study which includes a sample of patients who received an amyloid PET scan and their care-partners (n=1,672). We examine the association between PwD report of having discussed EoL care with their care-partner and PwD report of having documented their plans through an advanced directive, a living will, or designating a health care proxy. PwD who reported speaking with their care-partners about EoL care were 10% (marginal probability (MP) 0.10; 95% CI: 0.8, 0.13) more likely to have documented their EoL care wishes. Furthermore, if PwD and care-partners agreed that they had discussed EoL care, PwD were 7% (MP 0.7; 95% CI 0.04, 0.10) more likely to report that they documented their EoL care plans. The positive association between communicating with care-partners about EoL care and having formal EoL care plans suggests that the ACP process could be a systematic approach to increase the care-partner’s knowledge of PwD EoL wishes. These results also suggest that increasing involvement of care partners in ACP may encourage patients to document their wishes at end of life. Oxford University Press 2020-12-16 /pmc/articles/PMC7740244/ http://dx.doi.org/10.1093/geroni/igaa057.526 Text en © The Author(s) 2020. Published by Oxford University Press on behalf of The Gerontological Society of America. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Abstracts Shepherd-Banigan, Megan Ford, Cassie Belanger, Emmanuelle Van Houtven, Courtney Discussions Between People With Dementia and Care Partners About End-of-Life Care Planning |
title | Discussions Between People With Dementia and Care Partners About End-of-Life Care Planning |
title_full | Discussions Between People With Dementia and Care Partners About End-of-Life Care Planning |
title_fullStr | Discussions Between People With Dementia and Care Partners About End-of-Life Care Planning |
title_full_unstemmed | Discussions Between People With Dementia and Care Partners About End-of-Life Care Planning |
title_short | Discussions Between People With Dementia and Care Partners About End-of-Life Care Planning |
title_sort | discussions between people with dementia and care partners about end-of-life care planning |
topic | Abstracts |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7740244/ http://dx.doi.org/10.1093/geroni/igaa057.526 |
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