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Preparing Students to Interact With Persons With Dementia in a Research Context
By U.S. Centers for Disease Control and Prevention estimates, the number of older adults with Alzheimer’s Disease and related dementias (ADRD) is expected to increase 278% by 2060 to affect approximately 13.9 million individuals. Research is needed to not only improve understanding and treatment of...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7740301/ http://dx.doi.org/10.1093/geroni/igaa057.007 |
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author | Peterson, Roberta Avent, Elizabeth Gassoumis, Zachary Cho, Jeanine Yonashiro Olsen, Bonnie |
author_facet | Peterson, Roberta Avent, Elizabeth Gassoumis, Zachary Cho, Jeanine Yonashiro Olsen, Bonnie |
author_sort | Peterson, Roberta |
collection | PubMed |
description | By U.S. Centers for Disease Control and Prevention estimates, the number of older adults with Alzheimer’s Disease and related dementias (ADRD) is expected to increase 278% by 2060 to affect approximately 13.9 million individuals. Research is needed to not only improve understanding and treatment of ADRD but to also study its effect on the physical, emotional, and psychological well-being of persons with dementia (PWD) and their care partners (CP). However, due to the diminishing cognitive and functional capacities of PWDs associated with the progression of ADRD over time, research efforts are sometimes hampered by a plethora of potential scientific, logistical, ethical, and emotional barriers. This session will introduce an educational approach used to train students who are interested in conducting in-home research among PWDs and their CPs and share lessons learned through the program’s pilot training of undergraduate and graduate students (N=6). Through didactic training, role-playing exercises, and experiential learning processes, trainees are equipped to accompany research project interviewers into the homes of PWD and assist in implementing research protocols. Students receive extensive training in the disease trajectories of ADRD, the impacts of disease on PWDs and their CPs, ways to communicate and interact with PWDs, best practices in promoting the protection and autonomy of human subjects with dementia, and approaches to obtaining quality data for research. |
format | Online Article Text |
id | pubmed-7740301 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-77403012020-12-21 Preparing Students to Interact With Persons With Dementia in a Research Context Peterson, Roberta Avent, Elizabeth Gassoumis, Zachary Cho, Jeanine Yonashiro Olsen, Bonnie Innov Aging Abstracts By U.S. Centers for Disease Control and Prevention estimates, the number of older adults with Alzheimer’s Disease and related dementias (ADRD) is expected to increase 278% by 2060 to affect approximately 13.9 million individuals. Research is needed to not only improve understanding and treatment of ADRD but to also study its effect on the physical, emotional, and psychological well-being of persons with dementia (PWD) and their care partners (CP). However, due to the diminishing cognitive and functional capacities of PWDs associated with the progression of ADRD over time, research efforts are sometimes hampered by a plethora of potential scientific, logistical, ethical, and emotional barriers. This session will introduce an educational approach used to train students who are interested in conducting in-home research among PWDs and their CPs and share lessons learned through the program’s pilot training of undergraduate and graduate students (N=6). Through didactic training, role-playing exercises, and experiential learning processes, trainees are equipped to accompany research project interviewers into the homes of PWD and assist in implementing research protocols. Students receive extensive training in the disease trajectories of ADRD, the impacts of disease on PWDs and their CPs, ways to communicate and interact with PWDs, best practices in promoting the protection and autonomy of human subjects with dementia, and approaches to obtaining quality data for research. Oxford University Press 2020-12-16 /pmc/articles/PMC7740301/ http://dx.doi.org/10.1093/geroni/igaa057.007 Text en © The Author(s) 2020. Published by Oxford University Press on behalf of The Gerontological Society of America. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Abstracts Peterson, Roberta Avent, Elizabeth Gassoumis, Zachary Cho, Jeanine Yonashiro Olsen, Bonnie Preparing Students to Interact With Persons With Dementia in a Research Context |
title | Preparing Students to Interact With Persons With Dementia in a Research Context |
title_full | Preparing Students to Interact With Persons With Dementia in a Research Context |
title_fullStr | Preparing Students to Interact With Persons With Dementia in a Research Context |
title_full_unstemmed | Preparing Students to Interact With Persons With Dementia in a Research Context |
title_short | Preparing Students to Interact With Persons With Dementia in a Research Context |
title_sort | preparing students to interact with persons with dementia in a research context |
topic | Abstracts |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7740301/ http://dx.doi.org/10.1093/geroni/igaa057.007 |
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