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Singaporean Dementia Caregivers’ Preference for Care Recipients’ Life-Extending Interventions

Family caregivers of older adults with severe dementia are decisive in use of potentially life-extending interventions for their care recipients. We conducted in-depth interviews with 26 caregivers of community-dwelling older adults with severe dementia in Singapore to assess their preferences for i...

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Autores principales: Malhotra, Chetna, Mohamad, Hazirah, Østbye, Truls, Pollak, Kathryn, Balasundaram, Bharathi, Yoon, Sungwon, Malhotra, Rahul
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7741446/
http://dx.doi.org/10.1093/geroni/igaa057.1760
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author Malhotra, Chetna
Mohamad, Hazirah
Østbye, Truls
Pollak, Kathryn
Balasundaram, Bharathi
Yoon, Sungwon
Malhotra, Rahul
author_facet Malhotra, Chetna
Mohamad, Hazirah
Østbye, Truls
Pollak, Kathryn
Balasundaram, Bharathi
Yoon, Sungwon
Malhotra, Rahul
author_sort Malhotra, Chetna
collection PubMed
description Family caregivers of older adults with severe dementia are decisive in use of potentially life-extending interventions for their care recipients. We conducted in-depth interviews with 26 caregivers of community-dwelling older adults with severe dementia in Singapore to assess their preferences for intravenous (IV) antibiotics for a life threatening infection, tube feeding, and cardiopulmonary resuscitation (CPR), and reasons thereof. Most caregivers’ (77%) end-of-life care goal was ‘no life extension’. Yet, 80%, 60% and 45% preferred IV antibiotics, tube feeding and CPR, respectively, as they: 1) perceived letting go by withholding interventions as unethical, 2) felt they had no choice, deferring to health care providers (HCPs), 3) wanted to alleviate suffering, and 4) desired trying minimally invasive (and potentially withdrawable) interventions. There was discordance between caregivers’ end-of-life care goal and preferences for life-extending interventions. HCPs can suggest intervention options that concur with caregivers’ end-of-life care goal, and use a shared decision-making approach. Part of a symposium sponsored by the Aging Among Asians Interest Group.
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spelling pubmed-77414462020-12-21 Singaporean Dementia Caregivers’ Preference for Care Recipients’ Life-Extending Interventions Malhotra, Chetna Mohamad, Hazirah Østbye, Truls Pollak, Kathryn Balasundaram, Bharathi Yoon, Sungwon Malhotra, Rahul Innov Aging Abstracts Family caregivers of older adults with severe dementia are decisive in use of potentially life-extending interventions for their care recipients. We conducted in-depth interviews with 26 caregivers of community-dwelling older adults with severe dementia in Singapore to assess their preferences for intravenous (IV) antibiotics for a life threatening infection, tube feeding, and cardiopulmonary resuscitation (CPR), and reasons thereof. Most caregivers’ (77%) end-of-life care goal was ‘no life extension’. Yet, 80%, 60% and 45% preferred IV antibiotics, tube feeding and CPR, respectively, as they: 1) perceived letting go by withholding interventions as unethical, 2) felt they had no choice, deferring to health care providers (HCPs), 3) wanted to alleviate suffering, and 4) desired trying minimally invasive (and potentially withdrawable) interventions. There was discordance between caregivers’ end-of-life care goal and preferences for life-extending interventions. HCPs can suggest intervention options that concur with caregivers’ end-of-life care goal, and use a shared decision-making approach. Part of a symposium sponsored by the Aging Among Asians Interest Group. Oxford University Press 2020-12-16 /pmc/articles/PMC7741446/ http://dx.doi.org/10.1093/geroni/igaa057.1760 Text en © The Author(s) 2020. Published by Oxford University Press on behalf of The Gerontological Society of America. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Malhotra, Chetna
Mohamad, Hazirah
Østbye, Truls
Pollak, Kathryn
Balasundaram, Bharathi
Yoon, Sungwon
Malhotra, Rahul
Singaporean Dementia Caregivers’ Preference for Care Recipients’ Life-Extending Interventions
title Singaporean Dementia Caregivers’ Preference for Care Recipients’ Life-Extending Interventions
title_full Singaporean Dementia Caregivers’ Preference for Care Recipients’ Life-Extending Interventions
title_fullStr Singaporean Dementia Caregivers’ Preference for Care Recipients’ Life-Extending Interventions
title_full_unstemmed Singaporean Dementia Caregivers’ Preference for Care Recipients’ Life-Extending Interventions
title_short Singaporean Dementia Caregivers’ Preference for Care Recipients’ Life-Extending Interventions
title_sort singaporean dementia caregivers’ preference for care recipients’ life-extending interventions
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7741446/
http://dx.doi.org/10.1093/geroni/igaa057.1760
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