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Impact of the COVID-19 Pandemic on Family Caregivers

The COVID-19 pandemic has affected human life in unprecedented ways. Lives of older persons and their families have been especially adversely affected. Eleven Caregiver Resource Centers (CRCs) support family caregivers across the state of California, providing services such as assessment, counseling...

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Autores principales: Kilaberia, Tina, Bell, Janice, Bettega, Kristen, Mongoven, Jennifer, Kelly, Kathleen, Young, Heather
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7741794/
http://dx.doi.org/10.1093/geroni/igaa057.3475
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author Kilaberia, Tina
Bell, Janice
Bettega, Kristen
Mongoven, Jennifer
Kelly, Kathleen
Young, Heather
author_facet Kilaberia, Tina
Bell, Janice
Bettega, Kristen
Mongoven, Jennifer
Kelly, Kathleen
Young, Heather
author_sort Kilaberia, Tina
collection PubMed
description The COVID-19 pandemic has affected human life in unprecedented ways. Lives of older persons and their families have been especially adversely affected. Eleven Caregiver Resource Centers (CRCs) support family caregivers across the state of California, providing services such as assessment, counseling and respite. This presentation is part of a larger evaluation study and addresses the impact of the COVID-19 pandemic on family caregivers and systems supporting them. We interviewed directors, clinical staff and family consultants (n=35) from CRCs across diverse communities and geography in California, conducting semi-structured focus group interviews by Zoom. Questions explored perceptions of staff about effects on caregivers and implications for systems of support for caregivers. Interviews were transcribed and analyzed using the Dedoose software. Caregiver effects included increased isolation, higher stress, loss of support, neglected health needs, and accelerated technology adoption. Caregivers at particular risk were those facing multiple demands and experiencing compromised resources under the pandemic, such as closure of adult day care. System effects included challenges with hastened virtual delivery, disruption in services, and new opportunities to serve clients virtually. Community resources, such as internet connectivity, exacerbated disparities for family caregivers. We make recommendations to mitigate these challenges including technology platforms to support service delivery and education, training and preparedness for both caregivers and providers. These recommendations are relevant to the ongoing COVID-19 pandemic and adaptable to other crisis situations such as natural disasters.
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spelling pubmed-77417942020-12-21 Impact of the COVID-19 Pandemic on Family Caregivers Kilaberia, Tina Bell, Janice Bettega, Kristen Mongoven, Jennifer Kelly, Kathleen Young, Heather Innov Aging Abstracts The COVID-19 pandemic has affected human life in unprecedented ways. Lives of older persons and their families have been especially adversely affected. Eleven Caregiver Resource Centers (CRCs) support family caregivers across the state of California, providing services such as assessment, counseling and respite. This presentation is part of a larger evaluation study and addresses the impact of the COVID-19 pandemic on family caregivers and systems supporting them. We interviewed directors, clinical staff and family consultants (n=35) from CRCs across diverse communities and geography in California, conducting semi-structured focus group interviews by Zoom. Questions explored perceptions of staff about effects on caregivers and implications for systems of support for caregivers. Interviews were transcribed and analyzed using the Dedoose software. Caregiver effects included increased isolation, higher stress, loss of support, neglected health needs, and accelerated technology adoption. Caregivers at particular risk were those facing multiple demands and experiencing compromised resources under the pandemic, such as closure of adult day care. System effects included challenges with hastened virtual delivery, disruption in services, and new opportunities to serve clients virtually. Community resources, such as internet connectivity, exacerbated disparities for family caregivers. We make recommendations to mitigate these challenges including technology platforms to support service delivery and education, training and preparedness for both caregivers and providers. These recommendations are relevant to the ongoing COVID-19 pandemic and adaptable to other crisis situations such as natural disasters. Oxford University Press 2020-12-16 /pmc/articles/PMC7741794/ http://dx.doi.org/10.1093/geroni/igaa057.3475 Text en © The Author(s) 2020. Published by Oxford University Press on behalf of The Gerontological Society of America. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Kilaberia, Tina
Bell, Janice
Bettega, Kristen
Mongoven, Jennifer
Kelly, Kathleen
Young, Heather
Impact of the COVID-19 Pandemic on Family Caregivers
title Impact of the COVID-19 Pandemic on Family Caregivers
title_full Impact of the COVID-19 Pandemic on Family Caregivers
title_fullStr Impact of the COVID-19 Pandemic on Family Caregivers
title_full_unstemmed Impact of the COVID-19 Pandemic on Family Caregivers
title_short Impact of the COVID-19 Pandemic on Family Caregivers
title_sort impact of the covid-19 pandemic on family caregivers
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7741794/
http://dx.doi.org/10.1093/geroni/igaa057.3475
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