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Adapting the SHARE Program for Use With Families Facing the Challenges of Chronic Illness
Advances in diagnostic procedures have helped to make diagnosing Alzheimer’s disease and other dementias more accurate and to occur earlier in the disease progression. For persons living with dementia and their family care partners, finding programs that meet their needs for support post diagnosis c...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7742086/ http://dx.doi.org/10.1093/geroni/igaa057.2134 |
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author | Orsulic-Jeras, Silvia Whitlatch, Carol |
author_facet | Orsulic-Jeras, Silvia Whitlatch, Carol |
author_sort | Orsulic-Jeras, Silvia |
collection | PubMed |
description | Advances in diagnostic procedures have helped to make diagnosing Alzheimer’s disease and other dementias more accurate and to occur earlier in the disease progression. For persons living with dementia and their family care partners, finding programs that meet their needs for support post diagnosis can be challenging. Likewise, for persons with chronic conditions, few programs exist which help care dyads to create a manageable plan of care that addresses each person’s concerns and fears. SHARE, (Support, Health, Activities, Resources, and Education), originally designed for dementia care partners, has shown positive outcomes for both members of the care partnership. This presentation describes the development of the six-session SHARE intervention, its implementation in community settings, and its current standing as an evidence-based program and product that has been commercialized. Discussion will also focus on adapting SHARE for use with chronic illness families, highlighting revisions to program procedures, materials, recruitment, and evaluation. |
format | Online Article Text |
id | pubmed-7742086 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-77420862020-12-21 Adapting the SHARE Program for Use With Families Facing the Challenges of Chronic Illness Orsulic-Jeras, Silvia Whitlatch, Carol Innov Aging Abstracts Advances in diagnostic procedures have helped to make diagnosing Alzheimer’s disease and other dementias more accurate and to occur earlier in the disease progression. For persons living with dementia and their family care partners, finding programs that meet their needs for support post diagnosis can be challenging. Likewise, for persons with chronic conditions, few programs exist which help care dyads to create a manageable plan of care that addresses each person’s concerns and fears. SHARE, (Support, Health, Activities, Resources, and Education), originally designed for dementia care partners, has shown positive outcomes for both members of the care partnership. This presentation describes the development of the six-session SHARE intervention, its implementation in community settings, and its current standing as an evidence-based program and product that has been commercialized. Discussion will also focus on adapting SHARE for use with chronic illness families, highlighting revisions to program procedures, materials, recruitment, and evaluation. Oxford University Press 2020-12-16 /pmc/articles/PMC7742086/ http://dx.doi.org/10.1093/geroni/igaa057.2134 Text en © The Author(s) 2020. Published by Oxford University Press on behalf of The Gerontological Society of America. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Abstracts Orsulic-Jeras, Silvia Whitlatch, Carol Adapting the SHARE Program for Use With Families Facing the Challenges of Chronic Illness |
title | Adapting the SHARE Program for Use With Families Facing the Challenges of Chronic Illness |
title_full | Adapting the SHARE Program for Use With Families Facing the Challenges of Chronic Illness |
title_fullStr | Adapting the SHARE Program for Use With Families Facing the Challenges of Chronic Illness |
title_full_unstemmed | Adapting the SHARE Program for Use With Families Facing the Challenges of Chronic Illness |
title_short | Adapting the SHARE Program for Use With Families Facing the Challenges of Chronic Illness |
title_sort | adapting the share program for use with families facing the challenges of chronic illness |
topic | Abstracts |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7742086/ http://dx.doi.org/10.1093/geroni/igaa057.2134 |
work_keys_str_mv | AT orsulicjerassilvia adaptingtheshareprogramforusewithfamiliesfacingthechallengesofchronicillness AT whitlatchcarol adaptingtheshareprogramforusewithfamiliesfacingthechallengesofchronicillness |