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Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events

African American (AA) family dementia caregivers report high unmet needs, which often culminate in crisis – an unplanned stressful situation requiring immediate decision. However, perspectives from AA caregivers regarding crisis are lacking. To gain insight into caregivers’ conceptualization and exp...

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Detalles Bibliográficos
Autores principales: Cotton, Quinton, Block, Laura, Morgan, Jennifer, Gilmore-Bykovskyi, Andrea
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7743251/
http://dx.doi.org/10.1093/geroni/igaa057.2778
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author Cotton, Quinton
Block, Laura
Morgan, Jennifer
Gilmore-Bykovskyi, Andrea
author_facet Cotton, Quinton
Block, Laura
Morgan, Jennifer
Gilmore-Bykovskyi, Andrea
author_sort Cotton, Quinton
collection PubMed
description African American (AA) family dementia caregivers report high unmet needs, which often culminate in crisis – an unplanned stressful situation requiring immediate decision. However, perspectives from AA caregivers regarding crisis are lacking. To gain insight into caregivers’ conceptualization and experiences of crisis, we used community/coalitional-based recruitment of AA caregivers to conduct semi-structured interviews with 34 AA caregivers which were analyzed using thematic analysis (N=34, 94% female, 56% ages 65 to 74). AA caregivers largely perceived crisis as stressful events, a normal part of caregiving and viewed management of these events as routine. Crisis was characterized as ongoing, lengthy or emergent, sometimes necessitating external support (.e.g. hospitalization). Caregivers managed crisis by increasing caregiving work, de-prioritizing their own health and needs, involving family and friends, and accessing emotional support through neighborhood connections. These perspectives can inform future culturally-tailored interventions that are responsive to AA strengths, values, and help seeking preferences.
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spelling pubmed-77432512020-12-21 Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events Cotton, Quinton Block, Laura Morgan, Jennifer Gilmore-Bykovskyi, Andrea Innov Aging Abstracts African American (AA) family dementia caregivers report high unmet needs, which often culminate in crisis – an unplanned stressful situation requiring immediate decision. However, perspectives from AA caregivers regarding crisis are lacking. To gain insight into caregivers’ conceptualization and experiences of crisis, we used community/coalitional-based recruitment of AA caregivers to conduct semi-structured interviews with 34 AA caregivers which were analyzed using thematic analysis (N=34, 94% female, 56% ages 65 to 74). AA caregivers largely perceived crisis as stressful events, a normal part of caregiving and viewed management of these events as routine. Crisis was characterized as ongoing, lengthy or emergent, sometimes necessitating external support (.e.g. hospitalization). Caregivers managed crisis by increasing caregiving work, de-prioritizing their own health and needs, involving family and friends, and accessing emotional support through neighborhood connections. These perspectives can inform future culturally-tailored interventions that are responsive to AA strengths, values, and help seeking preferences. Oxford University Press 2020-12-16 /pmc/articles/PMC7743251/ http://dx.doi.org/10.1093/geroni/igaa057.2778 Text en © The Author(s) 2020. Published by Oxford University Press on behalf of The Gerontological Society of America. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Cotton, Quinton
Block, Laura
Morgan, Jennifer
Gilmore-Bykovskyi, Andrea
Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events
title Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events
title_full Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events
title_fullStr Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events
title_full_unstemmed Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events
title_short Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events
title_sort examining how african american family dementia caregivers conceptualize and manage crisis events
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7743251/
http://dx.doi.org/10.1093/geroni/igaa057.2778
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