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Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events
African American (AA) family dementia caregivers report high unmet needs, which often culminate in crisis – an unplanned stressful situation requiring immediate decision. However, perspectives from AA caregivers regarding crisis are lacking. To gain insight into caregivers’ conceptualization and exp...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7743251/ http://dx.doi.org/10.1093/geroni/igaa057.2778 |
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author | Cotton, Quinton Block, Laura Morgan, Jennifer Gilmore-Bykovskyi, Andrea |
author_facet | Cotton, Quinton Block, Laura Morgan, Jennifer Gilmore-Bykovskyi, Andrea |
author_sort | Cotton, Quinton |
collection | PubMed |
description | African American (AA) family dementia caregivers report high unmet needs, which often culminate in crisis – an unplanned stressful situation requiring immediate decision. However, perspectives from AA caregivers regarding crisis are lacking. To gain insight into caregivers’ conceptualization and experiences of crisis, we used community/coalitional-based recruitment of AA caregivers to conduct semi-structured interviews with 34 AA caregivers which were analyzed using thematic analysis (N=34, 94% female, 56% ages 65 to 74). AA caregivers largely perceived crisis as stressful events, a normal part of caregiving and viewed management of these events as routine. Crisis was characterized as ongoing, lengthy or emergent, sometimes necessitating external support (.e.g. hospitalization). Caregivers managed crisis by increasing caregiving work, de-prioritizing their own health and needs, involving family and friends, and accessing emotional support through neighborhood connections. These perspectives can inform future culturally-tailored interventions that are responsive to AA strengths, values, and help seeking preferences. |
format | Online Article Text |
id | pubmed-7743251 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-77432512020-12-21 Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events Cotton, Quinton Block, Laura Morgan, Jennifer Gilmore-Bykovskyi, Andrea Innov Aging Abstracts African American (AA) family dementia caregivers report high unmet needs, which often culminate in crisis – an unplanned stressful situation requiring immediate decision. However, perspectives from AA caregivers regarding crisis are lacking. To gain insight into caregivers’ conceptualization and experiences of crisis, we used community/coalitional-based recruitment of AA caregivers to conduct semi-structured interviews with 34 AA caregivers which were analyzed using thematic analysis (N=34, 94% female, 56% ages 65 to 74). AA caregivers largely perceived crisis as stressful events, a normal part of caregiving and viewed management of these events as routine. Crisis was characterized as ongoing, lengthy or emergent, sometimes necessitating external support (.e.g. hospitalization). Caregivers managed crisis by increasing caregiving work, de-prioritizing their own health and needs, involving family and friends, and accessing emotional support through neighborhood connections. These perspectives can inform future culturally-tailored interventions that are responsive to AA strengths, values, and help seeking preferences. Oxford University Press 2020-12-16 /pmc/articles/PMC7743251/ http://dx.doi.org/10.1093/geroni/igaa057.2778 Text en © The Author(s) 2020. Published by Oxford University Press on behalf of The Gerontological Society of America. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Abstracts Cotton, Quinton Block, Laura Morgan, Jennifer Gilmore-Bykovskyi, Andrea Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events |
title | Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events |
title_full | Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events |
title_fullStr | Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events |
title_full_unstemmed | Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events |
title_short | Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events |
title_sort | examining how african american family dementia caregivers conceptualize and manage crisis events |
topic | Abstracts |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7743251/ http://dx.doi.org/10.1093/geroni/igaa057.2778 |
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