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Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study

The aim of this study was to analyze the perceptions and experiences of relatives of patients dying from a terminal disease with regard to the care they received during the dying process, considering the oncological or non-oncological nature of the terminal disease, and the place where care was prov...

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Autores principales: Martí-García, Celia, Fernández-Alcántara, Manuel, Suárez López, Patricia, Romero Ruiz, Carolina, Muñoz Martín, Rocío, Garcia-Caro, Mᵃ Paz
Formato: Online Artículo Texto
Lenguaje:English
Publicado: PeerJ Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7745673/
https://www.ncbi.nlm.nih.gov/pubmed/33362972
http://dx.doi.org/10.7717/peerj.10516
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author Martí-García, Celia
Fernández-Alcántara, Manuel
Suárez López, Patricia
Romero Ruiz, Carolina
Muñoz Martín, Rocío
Garcia-Caro, Mᵃ Paz
author_facet Martí-García, Celia
Fernández-Alcántara, Manuel
Suárez López, Patricia
Romero Ruiz, Carolina
Muñoz Martín, Rocío
Garcia-Caro, Mᵃ Paz
author_sort Martí-García, Celia
collection PubMed
description The aim of this study was to analyze the perceptions and experiences of relatives of patients dying from a terminal disease with regard to the care they received during the dying process, considering the oncological or non-oncological nature of the terminal disease, and the place where care was provided (at home, emergency department, hospital room, or palliative care unit). For this purpose, we conducted a mixed-methods observational study in which two studies were triangulated, one qualitative using semi-structured interviews (n = 30) and the other quantitative, using questionnaires (n = 129). The results showed that the perception of relatives on the quality of care was highly positive in the quantitative evaluation but more critical and negative in the qualitative interview. Experience of the support received and palliative measures was more positive for patients attended in hospital in the case of oncological patients but more positive for those attended at home in the case of non-oncological patients.
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spelling pubmed-77456732020-12-24 Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study Martí-García, Celia Fernández-Alcántara, Manuel Suárez López, Patricia Romero Ruiz, Carolina Muñoz Martín, Rocío Garcia-Caro, Mᵃ Paz PeerJ Geriatrics The aim of this study was to analyze the perceptions and experiences of relatives of patients dying from a terminal disease with regard to the care they received during the dying process, considering the oncological or non-oncological nature of the terminal disease, and the place where care was provided (at home, emergency department, hospital room, or palliative care unit). For this purpose, we conducted a mixed-methods observational study in which two studies were triangulated, one qualitative using semi-structured interviews (n = 30) and the other quantitative, using questionnaires (n = 129). The results showed that the perception of relatives on the quality of care was highly positive in the quantitative evaluation but more critical and negative in the qualitative interview. Experience of the support received and palliative measures was more positive for patients attended in hospital in the case of oncological patients but more positive for those attended at home in the case of non-oncological patients. PeerJ Inc. 2020-12-14 /pmc/articles/PMC7745673/ /pubmed/33362972 http://dx.doi.org/10.7717/peerj.10516 Text en ©2020 Martí-García et al. https://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, reproduction and adaptation in any medium and for any purpose provided that it is properly attributed. For attribution, the original author(s), title, publication source (PeerJ) and either DOI or URL of the article must be cited.
spellingShingle Geriatrics
Martí-García, Celia
Fernández-Alcántara, Manuel
Suárez López, Patricia
Romero Ruiz, Carolina
Muñoz Martín, Rocío
Garcia-Caro, Mᵃ Paz
Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study
title Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study
title_full Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study
title_fullStr Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study
title_full_unstemmed Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study
title_short Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study
title_sort experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study
topic Geriatrics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7745673/
https://www.ncbi.nlm.nih.gov/pubmed/33362972
http://dx.doi.org/10.7717/peerj.10516
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