Collaboration between patient organisations and a clinical research sponsor in a rare disease condition: learnings from a community advisory board and best practice for future collaborations

Introduction Transparent collaborations between patient organisations (POs) and clinical research sponsors (CRS) can identify and address the unmet needs of patients and caregivers. These insights can improve clinical trial participant experience and delivery of medical innovations necessary to adva...

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Detalles Bibliográficos
Autores principales: Roennow, Annelise, Sauvé, Maureen, Welling, Joep, Riggs, Robert J, Kennedy, Ann Tyrrell, Galetti, Ilaria, Brown, Edith, Leite, Catarina, Gonzalez, Alex, Portales Guiraud, Alexandra Paula, Houÿez, François, Camp, Rob, Gilbert, Annie, Gahlemann, Martina, Moros, Lizette, Luna Flores, Jose Luis, Schmidt, Friedrich, Sauter, Wiebke, Finnern, Henrik
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2020
Materias:
Patient-Centred Medicine
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7745690/
https://www.ncbi.nlm.nih.gov/pubmed/33328257
http://dx.doi.org/10.1136/bmjopen-2020-039473

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