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A Blockchain-Based Consent Platform for Active Assisted Living: Modeling Study and Conceptual Framework

BACKGROUND: Recent advancements in active assisted living (AAL) technologies allow older adults to age well in place. However, sensing technologies increase the complexity of data collection points, making it difficult for users to consent to data collection. One possible solution for improving tran...

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Autores principales: Velmovitsky, Pedro Elkind, Miranda, Pedro Augusto Da Silva E Souza, Vaillancourt, Hélène, Donovska, Tania, Teague, Jennifer, Morita, Plinio Pelegrini
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7748951/
https://www.ncbi.nlm.nih.gov/pubmed/33275111
http://dx.doi.org/10.2196/20832
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author Velmovitsky, Pedro Elkind
Miranda, Pedro Augusto Da Silva E Souza
Vaillancourt, Hélène
Donovska, Tania
Teague, Jennifer
Morita, Plinio Pelegrini
author_facet Velmovitsky, Pedro Elkind
Miranda, Pedro Augusto Da Silva E Souza
Vaillancourt, Hélène
Donovska, Tania
Teague, Jennifer
Morita, Plinio Pelegrini
author_sort Velmovitsky, Pedro Elkind
collection PubMed
description BACKGROUND: Recent advancements in active assisted living (AAL) technologies allow older adults to age well in place. However, sensing technologies increase the complexity of data collection points, making it difficult for users to consent to data collection. One possible solution for improving transparency in the consent management process is the use of blockchain, an immutable and timestamped ledger. OBJECTIVE: This study aims to provide a conceptual framework based on technology aimed at mitigating trust issues in the consent management process. METHODS: The consent management process was modeled using established methodologies to obtain a mapping of trust issues. This mapping was then used to develop a conceptual framework based on previous monitoring and surveillance architectures for connected devices. RESULTS: In this paper, we present a model that maps trust issues in the informed consent process; a conceptual framework capable of providing all the necessary underlining technologies, components, and functionalities required to develop applications capable of managing the process of informed consent for AAL, powered by blockchain technology to ensure transparency; and a diagram showing an instantiation of the framework with entities comprising the participants in the blockchain network, suggesting possible technologies that can be used. CONCLUSIONS: Our conceptual framework provides all the components and technologies that are required to enhance the informed consent process. Blockchain technology can help overcome several privacy challenges and mitigate trust issues that are currently present in the consent management process of data collection involving AAL technologies.
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spelling pubmed-77489512020-12-30 A Blockchain-Based Consent Platform for Active Assisted Living: Modeling Study and Conceptual Framework Velmovitsky, Pedro Elkind Miranda, Pedro Augusto Da Silva E Souza Vaillancourt, Hélène Donovska, Tania Teague, Jennifer Morita, Plinio Pelegrini J Med Internet Res Original Paper BACKGROUND: Recent advancements in active assisted living (AAL) technologies allow older adults to age well in place. However, sensing technologies increase the complexity of data collection points, making it difficult for users to consent to data collection. One possible solution for improving transparency in the consent management process is the use of blockchain, an immutable and timestamped ledger. OBJECTIVE: This study aims to provide a conceptual framework based on technology aimed at mitigating trust issues in the consent management process. METHODS: The consent management process was modeled using established methodologies to obtain a mapping of trust issues. This mapping was then used to develop a conceptual framework based on previous monitoring and surveillance architectures for connected devices. RESULTS: In this paper, we present a model that maps trust issues in the informed consent process; a conceptual framework capable of providing all the necessary underlining technologies, components, and functionalities required to develop applications capable of managing the process of informed consent for AAL, powered by blockchain technology to ensure transparency; and a diagram showing an instantiation of the framework with entities comprising the participants in the blockchain network, suggesting possible technologies that can be used. CONCLUSIONS: Our conceptual framework provides all the components and technologies that are required to enhance the informed consent process. Blockchain technology can help overcome several privacy challenges and mitigate trust issues that are currently present in the consent management process of data collection involving AAL technologies. JMIR Publications 2020-12-04 /pmc/articles/PMC7748951/ /pubmed/33275111 http://dx.doi.org/10.2196/20832 Text en ©Pedro Elkind Velmovitsky, Pedro Augusto Da Silva E Souza Miranda, Hélène Vaillancourt, Tania Donovska, Jennifer Teague, Plinio Pelegrini Morita. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 04.12.2020. https://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on http://www.jmir.org/, as well as this copyright and license information must be included.
spellingShingle Original Paper
Velmovitsky, Pedro Elkind
Miranda, Pedro Augusto Da Silva E Souza
Vaillancourt, Hélène
Donovska, Tania
Teague, Jennifer
Morita, Plinio Pelegrini
A Blockchain-Based Consent Platform for Active Assisted Living: Modeling Study and Conceptual Framework
title A Blockchain-Based Consent Platform for Active Assisted Living: Modeling Study and Conceptual Framework
title_full A Blockchain-Based Consent Platform for Active Assisted Living: Modeling Study and Conceptual Framework
title_fullStr A Blockchain-Based Consent Platform for Active Assisted Living: Modeling Study and Conceptual Framework
title_full_unstemmed A Blockchain-Based Consent Platform for Active Assisted Living: Modeling Study and Conceptual Framework
title_short A Blockchain-Based Consent Platform for Active Assisted Living: Modeling Study and Conceptual Framework
title_sort blockchain-based consent platform for active assisted living: modeling study and conceptual framework
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7748951/
https://www.ncbi.nlm.nih.gov/pubmed/33275111
http://dx.doi.org/10.2196/20832
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