Cargando…
How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study
AIMS: Patients with chronic heart failure (CHF) struggle to follow self‐care plans, which may lead to worsening illness and poor quality of life. Burden of treatment (BoT) describes this workload and its impact on patients' lives. Suggesting the balance between a patient's treatment worklo...
Autores principales: | , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2020
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7754908/ https://www.ncbi.nlm.nih.gov/pubmed/32940966 http://dx.doi.org/10.1002/ehf2.13010 |
_version_ | 1783626275306340352 |
---|---|
author | Austin, Rosalynn C. Schoonhoven, Lisette Richardson, Alison Kalra, Paul R. May, Carl R. |
author_facet | Austin, Rosalynn C. Schoonhoven, Lisette Richardson, Alison Kalra, Paul R. May, Carl R. |
author_sort | Austin, Rosalynn C. |
collection | PubMed |
description | AIMS: Patients with chronic heart failure (CHF) struggle to follow self‐care plans, which may lead to worsening illness and poor quality of life. Burden of treatment (BoT) describes this workload and its impact on patients' lives. Suggesting the balance between a patient's treatment workload and their capability to manage it is crucial. If BoT is reduced, self‐care engagement and quality of life may improve. This article describes the SYMPACT study design and methods used to explore how symptoms and management tasks impact CHF patients' lives. METHODS AND RESULTS: We used a sequential exploratory mixed‐methods design to investigate the interaction between symptoms and BoT in CHF patients. CONCLUSIONS: If symptoms and BoT are intrinsically linked, then the high level of symptoms experienced by CHF patients may lead to increased treatment burden, which likely decreases patients' engagement with self‐care plans. SYMPACT may identify modifiable factors to improve CHF patients' experience. |
format | Online Article Text |
id | pubmed-7754908 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-77549082020-12-23 How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study Austin, Rosalynn C. Schoonhoven, Lisette Richardson, Alison Kalra, Paul R. May, Carl R. ESC Heart Fail Study Designs AIMS: Patients with chronic heart failure (CHF) struggle to follow self‐care plans, which may lead to worsening illness and poor quality of life. Burden of treatment (BoT) describes this workload and its impact on patients' lives. Suggesting the balance between a patient's treatment workload and their capability to manage it is crucial. If BoT is reduced, self‐care engagement and quality of life may improve. This article describes the SYMPACT study design and methods used to explore how symptoms and management tasks impact CHF patients' lives. METHODS AND RESULTS: We used a sequential exploratory mixed‐methods design to investigate the interaction between symptoms and BoT in CHF patients. CONCLUSIONS: If symptoms and BoT are intrinsically linked, then the high level of symptoms experienced by CHF patients may lead to increased treatment burden, which likely decreases patients' engagement with self‐care plans. SYMPACT may identify modifiable factors to improve CHF patients' experience. John Wiley and Sons Inc. 2020-09-17 /pmc/articles/PMC7754908/ /pubmed/32940966 http://dx.doi.org/10.1002/ehf2.13010 Text en © 2020 The Authors. ESC Heart Failure published by John Wiley & Sons Ltd on behalf of the European Society of Cardiology This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Study Designs Austin, Rosalynn C. Schoonhoven, Lisette Richardson, Alison Kalra, Paul R. May, Carl R. How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study |
title | How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study |
title_full | How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study |
title_fullStr | How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study |
title_full_unstemmed | How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study |
title_short | How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study |
title_sort | how do symptoms and management tasks in chronic heart failure impact a person's life (sympact)? protocol for a mixed‐methods study |
topic | Study Designs |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7754908/ https://www.ncbi.nlm.nih.gov/pubmed/32940966 http://dx.doi.org/10.1002/ehf2.13010 |
work_keys_str_mv | AT austinrosalynnc howdosymptomsandmanagementtasksinchronicheartfailureimpactapersonslifesympactprotocolforamixedmethodsstudy AT schoonhovenlisette howdosymptomsandmanagementtasksinchronicheartfailureimpactapersonslifesympactprotocolforamixedmethodsstudy AT richardsonalison howdosymptomsandmanagementtasksinchronicheartfailureimpactapersonslifesympactprotocolforamixedmethodsstudy AT kalrapaulr howdosymptomsandmanagementtasksinchronicheartfailureimpactapersonslifesympactprotocolforamixedmethodsstudy AT maycarlr howdosymptomsandmanagementtasksinchronicheartfailureimpactapersonslifesympactprotocolforamixedmethodsstudy |