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How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study

AIMS: Patients with chronic heart failure (CHF) struggle to follow self‐care plans, which may lead to worsening illness and poor quality of life. Burden of treatment (BoT) describes this workload and its impact on patients' lives. Suggesting the balance between a patient's treatment worklo...

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Autores principales: Austin, Rosalynn C., Schoonhoven, Lisette, Richardson, Alison, Kalra, Paul R., May, Carl R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7754908/
https://www.ncbi.nlm.nih.gov/pubmed/32940966
http://dx.doi.org/10.1002/ehf2.13010
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author Austin, Rosalynn C.
Schoonhoven, Lisette
Richardson, Alison
Kalra, Paul R.
May, Carl R.
author_facet Austin, Rosalynn C.
Schoonhoven, Lisette
Richardson, Alison
Kalra, Paul R.
May, Carl R.
author_sort Austin, Rosalynn C.
collection PubMed
description AIMS: Patients with chronic heart failure (CHF) struggle to follow self‐care plans, which may lead to worsening illness and poor quality of life. Burden of treatment (BoT) describes this workload and its impact on patients' lives. Suggesting the balance between a patient's treatment workload and their capability to manage it is crucial. If BoT is reduced, self‐care engagement and quality of life may improve. This article describes the SYMPACT study design and methods used to explore how symptoms and management tasks impact CHF patients' lives. METHODS AND RESULTS: We used a sequential exploratory mixed‐methods design to investigate the interaction between symptoms and BoT in CHF patients. CONCLUSIONS: If symptoms and BoT are intrinsically linked, then the high level of symptoms experienced by CHF patients may lead to increased treatment burden, which likely decreases patients' engagement with self‐care plans. SYMPACT may identify modifiable factors to improve CHF patients' experience.
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spelling pubmed-77549082020-12-23 How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study Austin, Rosalynn C. Schoonhoven, Lisette Richardson, Alison Kalra, Paul R. May, Carl R. ESC Heart Fail Study Designs AIMS: Patients with chronic heart failure (CHF) struggle to follow self‐care plans, which may lead to worsening illness and poor quality of life. Burden of treatment (BoT) describes this workload and its impact on patients' lives. Suggesting the balance between a patient's treatment workload and their capability to manage it is crucial. If BoT is reduced, self‐care engagement and quality of life may improve. This article describes the SYMPACT study design and methods used to explore how symptoms and management tasks impact CHF patients' lives. METHODS AND RESULTS: We used a sequential exploratory mixed‐methods design to investigate the interaction between symptoms and BoT in CHF patients. CONCLUSIONS: If symptoms and BoT are intrinsically linked, then the high level of symptoms experienced by CHF patients may lead to increased treatment burden, which likely decreases patients' engagement with self‐care plans. SYMPACT may identify modifiable factors to improve CHF patients' experience. John Wiley and Sons Inc. 2020-09-17 /pmc/articles/PMC7754908/ /pubmed/32940966 http://dx.doi.org/10.1002/ehf2.13010 Text en © 2020 The Authors. ESC Heart Failure published by John Wiley & Sons Ltd on behalf of the European Society of Cardiology This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Study Designs
Austin, Rosalynn C.
Schoonhoven, Lisette
Richardson, Alison
Kalra, Paul R.
May, Carl R.
How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study
title How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study
title_full How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study
title_fullStr How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study
title_full_unstemmed How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study
title_short How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study
title_sort how do symptoms and management tasks in chronic heart failure impact a person's life (sympact)? protocol for a mixed‐methods study
topic Study Designs
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7754908/
https://www.ncbi.nlm.nih.gov/pubmed/32940966
http://dx.doi.org/10.1002/ehf2.13010
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