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Psychosocial resources contributing to resilience in Austrian young carers—A study using photo novella

Caring for their chronically ill or disabled family members is a responsibility that may be assumed by children and adolescents (“young carers”) and may affect young carers’ lives in many ways. Some young carers may experience long‐term adverse health effects related to their early caring responsibi...

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Detalles Bibliográficos
Autores principales: Matzka, Martin, Nagl‐Cupal, Martin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7756732/
https://www.ncbi.nlm.nih.gov/pubmed/33124047
http://dx.doi.org/10.1002/nur.22085
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author Matzka, Martin
Nagl‐Cupal, Martin
author_facet Matzka, Martin
Nagl‐Cupal, Martin
author_sort Matzka, Martin
collection PubMed
description Caring for their chronically ill or disabled family members is a responsibility that may be assumed by children and adolescents (“young carers”) and may affect young carers’ lives in many ways. Some young carers may experience long‐term adverse health effects related to their early caring responsibilities and others may demonstrate healthy adaptation. Little research applying nonretrospective designs, however, has been done from the perspective of young carers regarding the psychosocial resources that enable them to handle the responsibility of caring for chronically ill or disabled family members. The aim of the present study, therefore, was to identify psychosocial resources used by young carers in Austria. Ten children and adolescents (aged 9–17) took photographs to illustrate their everyday lives. The photographs were then used to guide subsequent interviews. Data were analyzed following the principles of directed qualitative content analysis and using the theoretical lens of resilience. We identified two sets of psychosocial resources: (1) Personal resources comprising (a) being able to spend leisure time and (b) finding distraction from sorrows and problems. (2) Interpersonal resources comprising (a) fostering meaningful friendships, (b) receiving support from the family, and (c) bonding with the ill or disabled family member. Young carers largely have the same repertoire of resources as other children and can use them specifically to respond to the care burden. Interventions to support young carers must focus on promoting peer contact and cohesion within the nuclear family as well as bonding with the ill or disabled relative.
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spelling pubmed-77567322020-12-28 Psychosocial resources contributing to resilience in Austrian young carers—A study using photo novella Matzka, Martin Nagl‐Cupal, Martin Res Nurs Health Research Articles Caring for their chronically ill or disabled family members is a responsibility that may be assumed by children and adolescents (“young carers”) and may affect young carers’ lives in many ways. Some young carers may experience long‐term adverse health effects related to their early caring responsibilities and others may demonstrate healthy adaptation. Little research applying nonretrospective designs, however, has been done from the perspective of young carers regarding the psychosocial resources that enable them to handle the responsibility of caring for chronically ill or disabled family members. The aim of the present study, therefore, was to identify psychosocial resources used by young carers in Austria. Ten children and adolescents (aged 9–17) took photographs to illustrate their everyday lives. The photographs were then used to guide subsequent interviews. Data were analyzed following the principles of directed qualitative content analysis and using the theoretical lens of resilience. We identified two sets of psychosocial resources: (1) Personal resources comprising (a) being able to spend leisure time and (b) finding distraction from sorrows and problems. (2) Interpersonal resources comprising (a) fostering meaningful friendships, (b) receiving support from the family, and (c) bonding with the ill or disabled family member. Young carers largely have the same repertoire of resources as other children and can use them specifically to respond to the care burden. Interventions to support young carers must focus on promoting peer contact and cohesion within the nuclear family as well as bonding with the ill or disabled relative. John Wiley and Sons Inc. 2020-10-30 2020-12 /pmc/articles/PMC7756732/ /pubmed/33124047 http://dx.doi.org/10.1002/nur.22085 Text en © 2020 The Authors. Research in Nursing & Health published by Wiley Periodicals LLC This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Research Articles
Matzka, Martin
Nagl‐Cupal, Martin
Psychosocial resources contributing to resilience in Austrian young carers—A study using photo novella
title Psychosocial resources contributing to resilience in Austrian young carers—A study using photo novella
title_full Psychosocial resources contributing to resilience in Austrian young carers—A study using photo novella
title_fullStr Psychosocial resources contributing to resilience in Austrian young carers—A study using photo novella
title_full_unstemmed Psychosocial resources contributing to resilience in Austrian young carers—A study using photo novella
title_short Psychosocial resources contributing to resilience in Austrian young carers—A study using photo novella
title_sort psychosocial resources contributing to resilience in austrian young carers—a study using photo novella
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7756732/
https://www.ncbi.nlm.nih.gov/pubmed/33124047
http://dx.doi.org/10.1002/nur.22085
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