Cargando…

Patient ambassador support: Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors

OBJECTIVE: The study explores how newly diagnosed patients with acute leukaemia and their patient ambassadors experience the mentorship during the patient ambassador support programme. METHODS: Explorative semi‐structured individual interviews (n = 28) were carried out in patients with acute leukaem...

Descripción completa

Detalles Bibliográficos
Autores principales: Nørskov, Kristina Holmegaard, Overgaard, Dorthe, Lomborg, Kirsten, Kjeldsen, Lars, Jarden, Mary
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7757225/
https://www.ncbi.nlm.nih.gov/pubmed/32596951
http://dx.doi.org/10.1111/ecc.13289
_version_ 1783626705078845440
author Nørskov, Kristina Holmegaard
Overgaard, Dorthe
Lomborg, Kirsten
Kjeldsen, Lars
Jarden, Mary
author_facet Nørskov, Kristina Holmegaard
Overgaard, Dorthe
Lomborg, Kirsten
Kjeldsen, Lars
Jarden, Mary
author_sort Nørskov, Kristina Holmegaard
collection PubMed
description OBJECTIVE: The study explores how newly diagnosed patients with acute leukaemia and their patient ambassadors experience the mentorship during the patient ambassador support programme. METHODS: Explorative semi‐structured individual interviews (n = 28) were carried out in patients with acute leukaemia (n = 15) and their patient ambassadors (n = 13). Interpretive description was the methodological framework used for the thematic analysis of the qualitative interview data. RESULTS: Identified themes were as follows: (a) exchanging life experiences (subthemes: individualised support and a meaningful return); (b) existential cohesion; (c) interreflection; and (d) terms and conditions (subtheme: break in journey). Patients experienced a feeling of being understood, the cohesion leading to hope and a feeling of being able to cope with their situation. Patient ambassadors experienced a sense of meaningfulness and gratitude for life. CONCLUSIONS: Patients and patient ambassadors experienced benefits from the individualised support. Their shared experiences created a connection and mutual mirroring, which led to a sense of hope and gratitude for life. Initiatives that introduce peer‐to‐peer support in newly diagnosed patients with acute leukaemia as part of treatment and in daily clinical practice are crucial. Future studies should further examine the feasibility of peer‐to‐peer support interventions along the trajectory of acute leukaemia.
format Online
Article
Text
id pubmed-7757225
institution National Center for Biotechnology Information
language English
publishDate 2020
publisher John Wiley and Sons Inc.
record_format MEDLINE/PubMed
spelling pubmed-77572252020-12-28 Patient ambassador support: Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors Nørskov, Kristina Holmegaard Overgaard, Dorthe Lomborg, Kirsten Kjeldsen, Lars Jarden, Mary Eur J Cancer Care (Engl) Original Articles OBJECTIVE: The study explores how newly diagnosed patients with acute leukaemia and their patient ambassadors experience the mentorship during the patient ambassador support programme. METHODS: Explorative semi‐structured individual interviews (n = 28) were carried out in patients with acute leukaemia (n = 15) and their patient ambassadors (n = 13). Interpretive description was the methodological framework used for the thematic analysis of the qualitative interview data. RESULTS: Identified themes were as follows: (a) exchanging life experiences (subthemes: individualised support and a meaningful return); (b) existential cohesion; (c) interreflection; and (d) terms and conditions (subtheme: break in journey). Patients experienced a feeling of being understood, the cohesion leading to hope and a feeling of being able to cope with their situation. Patient ambassadors experienced a sense of meaningfulness and gratitude for life. CONCLUSIONS: Patients and patient ambassadors experienced benefits from the individualised support. Their shared experiences created a connection and mutual mirroring, which led to a sense of hope and gratitude for life. Initiatives that introduce peer‐to‐peer support in newly diagnosed patients with acute leukaemia as part of treatment and in daily clinical practice are crucial. Future studies should further examine the feasibility of peer‐to‐peer support interventions along the trajectory of acute leukaemia. John Wiley and Sons Inc. 2020-06-28 2020-11 /pmc/articles/PMC7757225/ /pubmed/32596951 http://dx.doi.org/10.1111/ecc.13289 Text en © 2020 The Authors. European Journal of Cancer Care published by John Wiley & Sons Ltd This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Original Articles
Nørskov, Kristina Holmegaard
Overgaard, Dorthe
Lomborg, Kirsten
Kjeldsen, Lars
Jarden, Mary
Patient ambassador support: Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors
title Patient ambassador support: Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors
title_full Patient ambassador support: Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors
title_fullStr Patient ambassador support: Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors
title_full_unstemmed Patient ambassador support: Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors
title_short Patient ambassador support: Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors
title_sort patient ambassador support: experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7757225/
https://www.ncbi.nlm.nih.gov/pubmed/32596951
http://dx.doi.org/10.1111/ecc.13289
work_keys_str_mv AT nørskovkristinaholmegaard patientambassadorsupportexperiencesofthementorshipbetweennewlydiagnosedpatientswithacuteleukaemiaandtheirpatientambassadors
AT overgaarddorthe patientambassadorsupportexperiencesofthementorshipbetweennewlydiagnosedpatientswithacuteleukaemiaandtheirpatientambassadors
AT lomborgkirsten patientambassadorsupportexperiencesofthementorshipbetweennewlydiagnosedpatientswithacuteleukaemiaandtheirpatientambassadors
AT kjeldsenlars patientambassadorsupportexperiencesofthementorshipbetweennewlydiagnosedpatientswithacuteleukaemiaandtheirpatientambassadors
AT jardenmary patientambassadorsupportexperiencesofthementorshipbetweennewlydiagnosedpatientswithacuteleukaemiaandtheirpatientambassadors