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Reporting Genetic Findings to Individual Research Participants: Guidelines From the Swiss Personalized Health Network

In 2017 the Swiss federal government established the Swiss Personalized Health Network (SPHN), a nationally coordinated data infrastructure for genetic research. The SPHN advisory group on Ethical, Legal, and Social Implications (ELSI) was tasked with the creation of a recommendation to ensure ethic...

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Detalles Bibliográficos
Autores principales: Blasimme, Alessandro, Brall, Caroline, Vayena, Effy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7759560/
https://www.ncbi.nlm.nih.gov/pubmed/33362850
http://dx.doi.org/10.3389/fgene.2020.585820