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Reporting Genetic Findings to Individual Research Participants: Guidelines From the Swiss Personalized Health Network
In 2017 the Swiss federal government established the Swiss Personalized Health Network (SPHN), a nationally coordinated data infrastructure for genetic research. The SPHN advisory group on Ethical, Legal, and Social Implications (ELSI) was tasked with the creation of a recommendation to ensure ethic...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Frontiers Media S.A.
2020
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7759560/ https://www.ncbi.nlm.nih.gov/pubmed/33362850 http://dx.doi.org/10.3389/fgene.2020.585820 |