Cargando…
Do people have an ethical obligation to share their health information? Comparing narratives of altruism and health information sharing in a nationally representative sample
BACKGROUND: With the emergence of new health information technologies, health information can be shared across networks, with or without patients’ awareness and/or their consent. It is often argued that there can be an ethical obligation to participate in biomedical research, motivated by altruism,...
Autores principales: | Raj, Minakshi, De Vries, Raymond, Nong, Paige, Kardia, Sharon L. R., Platt, Jodyn E. |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2020
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7774955/ https://www.ncbi.nlm.nih.gov/pubmed/33382835 http://dx.doi.org/10.1371/journal.pone.0244767 |
Ejemplares similares
-
Public Deliberation Process on Patient Perspectives on Health Information Sharing: Evaluative Descriptive Study
por: Raj, Minakshi, et al.
Publicado: (2022) -
Public Trust in Health Information Sharing: Implications for Biobanking and Electronic Health Record Systems
por: Platt, Jodyn, et al.
Publicado: (2015) -
Policy Preferences Regarding Health Data Sharing Among Patients With Cancer: Public Deliberations
por: Raj, Minakshi, et al.
Publicado: (2023) -
Patient-Reported Experiences of Discrimination in the US Health Care System
por: Nong, Paige, et al.
Publicado: (2020) -
The public’s comfort with sharing health data with third-party commercial companies
por: Trinidad, M. Grace, et al.
Publicado: (2020)