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Promoting community reintegration using narratives and skills building for young adults with stroke: a protocol for a randomised controlled trial

BACKGROUND: Stroke in adults aged between 18 and 64 years old is increasing significantly worldwide. Studies have reported that this group of young stroke survivors encounters enormous difficulties reintegrating into their social roles. Individualised discussions with healthcare professionals and le...

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Autores principales: Lo, Suzanne Hoi Shan, Chau, Janita Pak Chun, Choi, Kai Chow, Shum, Edward Wai Ching, Yeung, Jonas Hon Ming, Li, Siu Hung
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7783975/
https://www.ncbi.nlm.nih.gov/pubmed/33397316
http://dx.doi.org/10.1186/s12883-020-02015-5
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author Lo, Suzanne Hoi Shan
Chau, Janita Pak Chun
Choi, Kai Chow
Shum, Edward Wai Ching
Yeung, Jonas Hon Ming
Li, Siu Hung
author_facet Lo, Suzanne Hoi Shan
Chau, Janita Pak Chun
Choi, Kai Chow
Shum, Edward Wai Ching
Yeung, Jonas Hon Ming
Li, Siu Hung
author_sort Lo, Suzanne Hoi Shan
collection PubMed
description BACKGROUND: Stroke in adults aged between 18 and 64 years old is increasing significantly worldwide. Studies have reported that this group of young stroke survivors encounters enormous difficulties reintegrating into their social roles. Individualised discussions with healthcare professionals and learning from other survivors are imperative for them to reconstruct their identities after stroke. There is also great demand for community support during their chronic stage of recovery to help them rebuild life skills to promote reintegration. METHODS/DESIGN: This is a randomised controlled trial to investigate the effects of a 24-week Narrative and Skills-building Intervention (NSI) on young stroke survivors’ community reintegration and psychosocial outcomes. A total of 208 adults aged 18–64 years old with a first-ever or recurrent ischaemic or haemorrhagic stroke and have been discharged home will be recruited and randomly assigned to receive usual care or usual care with NSI. The NSI is grounded in Narrative Theory and Bandura’s principles of Self-efficacy and Outcome Expectation, consisting of successive eight individual sessions over six months delivered by a trained facilitator (a registered nurse). Participants will be facilitated to narrate their survival experiences and rebuild core life skills. Videos of peer young stroke survivors’ experiences of recovery will be provided. Outcomes including community reintegration, depressive symptoms, health-related quality of life, self-efficacy, outcome expectation and satisfaction with performance of self-management behaviours will be measured before (T0) and immediately after NSI (T1), then six (T2) and 12 months after NSI (T3). Generalised estimating equations models will be used to compare the differential changes in outcomes across time between the two groups. Focus group interviews will be conducted with the facilitator at T1 and with the participants in the intervention group at T1 and T3. DISCUSSION: This study will evaluate the short and long-term effects of a theory-based NSI on young stroke survivors’ community reintegration and establish a new model of community reintegration after stroke to inform future research. The results will also provide valuable evidence to develop clinical guidelines for young stroke survivors’ community reintegration. TRIAL REGISTRATION: ClinicalTrials.gov identifier: NCT04560140, registered on 23 September, 2020. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12883-020-02015-5.
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spelling pubmed-77839752021-01-05 Promoting community reintegration using narratives and skills building for young adults with stroke: a protocol for a randomised controlled trial Lo, Suzanne Hoi Shan Chau, Janita Pak Chun Choi, Kai Chow Shum, Edward Wai Ching Yeung, Jonas Hon Ming Li, Siu Hung BMC Neurol Study Protocol BACKGROUND: Stroke in adults aged between 18 and 64 years old is increasing significantly worldwide. Studies have reported that this group of young stroke survivors encounters enormous difficulties reintegrating into their social roles. Individualised discussions with healthcare professionals and learning from other survivors are imperative for them to reconstruct their identities after stroke. There is also great demand for community support during their chronic stage of recovery to help them rebuild life skills to promote reintegration. METHODS/DESIGN: This is a randomised controlled trial to investigate the effects of a 24-week Narrative and Skills-building Intervention (NSI) on young stroke survivors’ community reintegration and psychosocial outcomes. A total of 208 adults aged 18–64 years old with a first-ever or recurrent ischaemic or haemorrhagic stroke and have been discharged home will be recruited and randomly assigned to receive usual care or usual care with NSI. The NSI is grounded in Narrative Theory and Bandura’s principles of Self-efficacy and Outcome Expectation, consisting of successive eight individual sessions over six months delivered by a trained facilitator (a registered nurse). Participants will be facilitated to narrate their survival experiences and rebuild core life skills. Videos of peer young stroke survivors’ experiences of recovery will be provided. Outcomes including community reintegration, depressive symptoms, health-related quality of life, self-efficacy, outcome expectation and satisfaction with performance of self-management behaviours will be measured before (T0) and immediately after NSI (T1), then six (T2) and 12 months after NSI (T3). Generalised estimating equations models will be used to compare the differential changes in outcomes across time between the two groups. Focus group interviews will be conducted with the facilitator at T1 and with the participants in the intervention group at T1 and T3. DISCUSSION: This study will evaluate the short and long-term effects of a theory-based NSI on young stroke survivors’ community reintegration and establish a new model of community reintegration after stroke to inform future research. The results will also provide valuable evidence to develop clinical guidelines for young stroke survivors’ community reintegration. TRIAL REGISTRATION: ClinicalTrials.gov identifier: NCT04560140, registered on 23 September, 2020. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12883-020-02015-5. BioMed Central 2021-01-04 /pmc/articles/PMC7783975/ /pubmed/33397316 http://dx.doi.org/10.1186/s12883-020-02015-5 Text en © The Author(s) 2021 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Study Protocol
Lo, Suzanne Hoi Shan
Chau, Janita Pak Chun
Choi, Kai Chow
Shum, Edward Wai Ching
Yeung, Jonas Hon Ming
Li, Siu Hung
Promoting community reintegration using narratives and skills building for young adults with stroke: a protocol for a randomised controlled trial
title Promoting community reintegration using narratives and skills building for young adults with stroke: a protocol for a randomised controlled trial
title_full Promoting community reintegration using narratives and skills building for young adults with stroke: a protocol for a randomised controlled trial
title_fullStr Promoting community reintegration using narratives and skills building for young adults with stroke: a protocol for a randomised controlled trial
title_full_unstemmed Promoting community reintegration using narratives and skills building for young adults with stroke: a protocol for a randomised controlled trial
title_short Promoting community reintegration using narratives and skills building for young adults with stroke: a protocol for a randomised controlled trial
title_sort promoting community reintegration using narratives and skills building for young adults with stroke: a protocol for a randomised controlled trial
topic Study Protocol
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7783975/
https://www.ncbi.nlm.nih.gov/pubmed/33397316
http://dx.doi.org/10.1186/s12883-020-02015-5
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