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Usability and Reliability of an Accessible Patient-Reported Outcome Measure (PROM) Software: The Pediatric Evaluation of Disability Inventory–Patient-Reported Outcome (PEDI–PRO)

Importance: Patient-reported outcome measures (PROMs) are used in rehabilitation to evaluate outcomes. We integrated a new PROM for transition-age youth with intellectual and/or developmental disabilities (IDD), the Pediatric Evaluation of Disability Inventory–Patient-Reported Outcome (PEDI–PRO), wi...

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Autores principales: Kramer, Jessica M., Schwartz, Ariel E., Davies, Daniel K., Stock, Steven E., Ni, Pengsheng
Formato: Online Artículo Texto
Lenguaje:English
Publicado: The American Occupational Therapy Association, Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7784036/
https://www.ncbi.nlm.nih.gov/pubmed/33399049
http://dx.doi.org/10.5014/ajot.2020.040733
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author Kramer, Jessica M.
Schwartz, Ariel E.
Davies, Daniel K.
Stock, Steven E.
Ni, Pengsheng
author_facet Kramer, Jessica M.
Schwartz, Ariel E.
Davies, Daniel K.
Stock, Steven E.
Ni, Pengsheng
author_sort Kramer, Jessica M.
collection PubMed
description Importance: Patient-reported outcome measures (PROMs) are used in rehabilitation to evaluate outcomes. We integrated a new PROM for transition-age youth with intellectual and/or developmental disabilities (IDD), the Pediatric Evaluation of Disability Inventory–Patient-Reported Outcome (PEDI–PRO), with a computer-delivered survey platform (Accessible Testing Learning and Assessment System) to enhance cognitive accessibility. Objective: To evaluate the usability of the PEDI–PRO software and to investigate its reliability and acceptability to transition-age youth with IDD. Design: Clinical field testing and a survey; repeated-observation test–retest design. Setting: Clinicians evaluated the PEDI–PRO’s usability in school and health care contexts; research staff conducted reliability and acceptability testing in natural settings. Participants: Occupational therapists (n = 12) and physical therapists (n = 2) administered the PEDI–PRO to 39 youths with IDD. Fifty-five transition-age youth with IDD (M age = 19.7) completed the PEDI–PRO twice. Outcomes and Measures: Clinicians completed the System Usability Survey (SUS) and open-ended feedback. Youth provided feedback via a brief survey. Results: The mean SUS rating was 84.00 (SD = 11.68), exceeding the industry standard. Intraclass correlations ranged from .80 to .83 across the three PEDI–PRO domains. Internal reliability (α) was .86–.90 across domains. Youth reported that they liked the accessibility features: interface images, button sounds, read-aloud audio, and rating category choices (M = 88.8%, SD = 5.1%). Conclusions and Relevance: The PEDI–PRO supported transition-age youth with IDD to reliably report perceived functional performance. The accessible software was favorably perceived by both clinicians and youth. What This Article Adds: Design features of the PEDI–PRO make it easy to use in practice with transition-age youth with IDD. The PEDI–PRO’s cognitively accessible administrative design, including step-by-step instructions for teaching PROM use and a self-reflective questioning technique, could serve as a training model for this and other PROMs.
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spelling pubmed-77840362021-01-08 Usability and Reliability of an Accessible Patient-Reported Outcome Measure (PROM) Software: The Pediatric Evaluation of Disability Inventory–Patient-Reported Outcome (PEDI–PRO) Kramer, Jessica M. Schwartz, Ariel E. Davies, Daniel K. Stock, Steven E. Ni, Pengsheng Am J Occup Ther Research Articles Importance: Patient-reported outcome measures (PROMs) are used in rehabilitation to evaluate outcomes. We integrated a new PROM for transition-age youth with intellectual and/or developmental disabilities (IDD), the Pediatric Evaluation of Disability Inventory–Patient-Reported Outcome (PEDI–PRO), with a computer-delivered survey platform (Accessible Testing Learning and Assessment System) to enhance cognitive accessibility. Objective: To evaluate the usability of the PEDI–PRO software and to investigate its reliability and acceptability to transition-age youth with IDD. Design: Clinical field testing and a survey; repeated-observation test–retest design. Setting: Clinicians evaluated the PEDI–PRO’s usability in school and health care contexts; research staff conducted reliability and acceptability testing in natural settings. Participants: Occupational therapists (n = 12) and physical therapists (n = 2) administered the PEDI–PRO to 39 youths with IDD. Fifty-five transition-age youth with IDD (M age = 19.7) completed the PEDI–PRO twice. Outcomes and Measures: Clinicians completed the System Usability Survey (SUS) and open-ended feedback. Youth provided feedback via a brief survey. Results: The mean SUS rating was 84.00 (SD = 11.68), exceeding the industry standard. Intraclass correlations ranged from .80 to .83 across the three PEDI–PRO domains. Internal reliability (α) was .86–.90 across domains. Youth reported that they liked the accessibility features: interface images, button sounds, read-aloud audio, and rating category choices (M = 88.8%, SD = 5.1%). Conclusions and Relevance: The PEDI–PRO supported transition-age youth with IDD to reliably report perceived functional performance. The accessible software was favorably perceived by both clinicians and youth. What This Article Adds: Design features of the PEDI–PRO make it easy to use in practice with transition-age youth with IDD. The PEDI–PRO’s cognitively accessible administrative design, including step-by-step instructions for teaching PROM use and a self-reflective questioning technique, could serve as a training model for this and other PROMs. The American Occupational Therapy Association, Inc. 2021 2020-12-02 /pmc/articles/PMC7784036/ /pubmed/33399049 http://dx.doi.org/10.5014/ajot.2020.040733 Text en Copyright © 2021 by the American Occupational Therapy Association, Inc.
spellingShingle Research Articles
Kramer, Jessica M.
Schwartz, Ariel E.
Davies, Daniel K.
Stock, Steven E.
Ni, Pengsheng
Usability and Reliability of an Accessible Patient-Reported Outcome Measure (PROM) Software: The Pediatric Evaluation of Disability Inventory–Patient-Reported Outcome (PEDI–PRO)
title Usability and Reliability of an Accessible Patient-Reported Outcome Measure (PROM) Software: The Pediatric Evaluation of Disability Inventory–Patient-Reported Outcome (PEDI–PRO)
title_full Usability and Reliability of an Accessible Patient-Reported Outcome Measure (PROM) Software: The Pediatric Evaluation of Disability Inventory–Patient-Reported Outcome (PEDI–PRO)
title_fullStr Usability and Reliability of an Accessible Patient-Reported Outcome Measure (PROM) Software: The Pediatric Evaluation of Disability Inventory–Patient-Reported Outcome (PEDI–PRO)
title_full_unstemmed Usability and Reliability of an Accessible Patient-Reported Outcome Measure (PROM) Software: The Pediatric Evaluation of Disability Inventory–Patient-Reported Outcome (PEDI–PRO)
title_short Usability and Reliability of an Accessible Patient-Reported Outcome Measure (PROM) Software: The Pediatric Evaluation of Disability Inventory–Patient-Reported Outcome (PEDI–PRO)
title_sort usability and reliability of an accessible patient-reported outcome measure (prom) software: the pediatric evaluation of disability inventory–patient-reported outcome (pedi–pro)
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7784036/
https://www.ncbi.nlm.nih.gov/pubmed/33399049
http://dx.doi.org/10.5014/ajot.2020.040733
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