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The funhouse mirror: the I in personalised healthcare
Precision Medicine is driven by the idea that the rapidly increasing range of relatively cheap and efficient self-tracking devices make it feasible to collect multiple kinds of phenotypic data. Advocates of N = 1 research emphasize the countless opportunities personal data provide for optimizing ind...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Berlin Heidelberg
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7784356/ https://www.ncbi.nlm.nih.gov/pubmed/33397487 http://dx.doi.org/10.1186/s40504-020-00108-0 |
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author | Vegter, Mira W. Zwart, Hub A. E. van Gool, Alain J. |
author_facet | Vegter, Mira W. Zwart, Hub A. E. van Gool, Alain J. |
author_sort | Vegter, Mira W. |
collection | PubMed |
description | Precision Medicine is driven by the idea that the rapidly increasing range of relatively cheap and efficient self-tracking devices make it feasible to collect multiple kinds of phenotypic data. Advocates of N = 1 research emphasize the countless opportunities personal data provide for optimizing individual health. At the same time, using biomarker data for lifestyle interventions has shown to entail complex challenges. In this paper, we argue that researchers in the field of precision medicine need to address the performative dimension of collecting data. We propose the fun-house mirror as a metaphor for the use of personal health data; each health data source yields a particular type of image that can be regarded as a ‘data mirror’ that is by definition specific and skewed. This requires competence on the part of individuals to adequately interpret the images thus provided. |
format | Online Article Text |
id | pubmed-7784356 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Springer Berlin Heidelberg |
record_format | MEDLINE/PubMed |
spelling | pubmed-77843562021-01-07 The funhouse mirror: the I in personalised healthcare Vegter, Mira W. Zwart, Hub A. E. van Gool, Alain J. Life Sci Soc Policy Research Precision Medicine is driven by the idea that the rapidly increasing range of relatively cheap and efficient self-tracking devices make it feasible to collect multiple kinds of phenotypic data. Advocates of N = 1 research emphasize the countless opportunities personal data provide for optimizing individual health. At the same time, using biomarker data for lifestyle interventions has shown to entail complex challenges. In this paper, we argue that researchers in the field of precision medicine need to address the performative dimension of collecting data. We propose the fun-house mirror as a metaphor for the use of personal health data; each health data source yields a particular type of image that can be regarded as a ‘data mirror’ that is by definition specific and skewed. This requires competence on the part of individuals to adequately interpret the images thus provided. Springer Berlin Heidelberg 2021-01-05 /pmc/articles/PMC7784356/ /pubmed/33397487 http://dx.doi.org/10.1186/s40504-020-00108-0 Text en © The Author(s) 2021 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Vegter, Mira W. Zwart, Hub A. E. van Gool, Alain J. The funhouse mirror: the I in personalised healthcare |
title | The funhouse mirror: the I in personalised healthcare |
title_full | The funhouse mirror: the I in personalised healthcare |
title_fullStr | The funhouse mirror: the I in personalised healthcare |
title_full_unstemmed | The funhouse mirror: the I in personalised healthcare |
title_short | The funhouse mirror: the I in personalised healthcare |
title_sort | funhouse mirror: the i in personalised healthcare |
topic | Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7784356/ https://www.ncbi.nlm.nih.gov/pubmed/33397487 http://dx.doi.org/10.1186/s40504-020-00108-0 |
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