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Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland
Empowerment is integral to patient-centered practice, particularly as this relates to people with chronic conditions, though operationally it is poorly understood in this context. Empowerment, therefore, as experienced by patients with a chronic condition needs exploration. This article reports the...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7786655/ https://www.ncbi.nlm.nih.gov/pubmed/33457564 http://dx.doi.org/10.1177/2374373520948405 |
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author | Bennett, Louise Bergin, Michael Wells, John S G |
author_facet | Bennett, Louise Bergin, Michael Wells, John S G |
author_sort | Bennett, Louise |
collection | PubMed |
description | Empowerment is integral to patient-centered practice, particularly as this relates to people with chronic conditions, though operationally it is poorly understood in this context. Empowerment, therefore, as experienced by patients with a chronic condition needs exploration. This article reports the experience of empowerment by patients in one specialist epilepsy service in Ireland as an exemplar of broader issues affecting empowerment of patients with chronic conditions. A Frameworks Approach was used to analyze in-depth interviews with patients (n = 10) in one Irish epilepsy service. Analysis was further informed by nonparticipatory observation of service delivery. Results indicate that patients’ negative experiences of empowerment appear to be derived from traditional social norms relating to clinician patient power dimensions and social stigma internalized by clinicians at an unconscious level. With this in mind, educational approaches based upon critical social theory may provide a framework and guide to enable services to engage with these issues and embrace empowerment of patients with chronic conditions within therapeutic engagement. |
format | Online Article Text |
id | pubmed-7786655 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-77866552021-01-14 Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland Bennett, Louise Bergin, Michael Wells, John S G J Patient Exp Research Articles Empowerment is integral to patient-centered practice, particularly as this relates to people with chronic conditions, though operationally it is poorly understood in this context. Empowerment, therefore, as experienced by patients with a chronic condition needs exploration. This article reports the experience of empowerment by patients in one specialist epilepsy service in Ireland as an exemplar of broader issues affecting empowerment of patients with chronic conditions. A Frameworks Approach was used to analyze in-depth interviews with patients (n = 10) in one Irish epilepsy service. Analysis was further informed by nonparticipatory observation of service delivery. Results indicate that patients’ negative experiences of empowerment appear to be derived from traditional social norms relating to clinician patient power dimensions and social stigma internalized by clinicians at an unconscious level. With this in mind, educational approaches based upon critical social theory may provide a framework and guide to enable services to engage with these issues and embrace empowerment of patients with chronic conditions within therapeutic engagement. SAGE Publications 2020-08-13 2020-12 /pmc/articles/PMC7786655/ /pubmed/33457564 http://dx.doi.org/10.1177/2374373520948405 Text en © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Research Articles Bennett, Louise Bergin, Michael Wells, John S G Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland |
title | Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland |
title_full | Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland |
title_fullStr | Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland |
title_full_unstemmed | Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland |
title_short | Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland |
title_sort | exploring dimensions of empowerment from the patients’ perspective in one specialist epilepsy service in ireland |
topic | Research Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7786655/ https://www.ncbi.nlm.nih.gov/pubmed/33457564 http://dx.doi.org/10.1177/2374373520948405 |
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