Cargando…

Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland

Empowerment is integral to patient-centered practice, particularly as this relates to people with chronic conditions, though operationally it is poorly understood in this context. Empowerment, therefore, as experienced by patients with a chronic condition needs exploration. This article reports the...

Descripción completa

Detalles Bibliográficos
Autores principales: Bennett, Louise, Bergin, Michael, Wells, John S G
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7786655/
https://www.ncbi.nlm.nih.gov/pubmed/33457564
http://dx.doi.org/10.1177/2374373520948405
_version_ 1783632672580435968
author Bennett, Louise
Bergin, Michael
Wells, John S G
author_facet Bennett, Louise
Bergin, Michael
Wells, John S G
author_sort Bennett, Louise
collection PubMed
description Empowerment is integral to patient-centered practice, particularly as this relates to people with chronic conditions, though operationally it is poorly understood in this context. Empowerment, therefore, as experienced by patients with a chronic condition needs exploration. This article reports the experience of empowerment by patients in one specialist epilepsy service in Ireland as an exemplar of broader issues affecting empowerment of patients with chronic conditions. A Frameworks Approach was used to analyze in-depth interviews with patients (n = 10) in one Irish epilepsy service. Analysis was further informed by nonparticipatory observation of service delivery. Results indicate that patients’ negative experiences of empowerment appear to be derived from traditional social norms relating to clinician patient power dimensions and social stigma internalized by clinicians at an unconscious level. With this in mind, educational approaches based upon critical social theory may provide a framework and guide to enable services to engage with these issues and embrace empowerment of patients with chronic conditions within therapeutic engagement.
format Online
Article
Text
id pubmed-7786655
institution National Center for Biotechnology Information
language English
publishDate 2020
publisher SAGE Publications
record_format MEDLINE/PubMed
spelling pubmed-77866552021-01-14 Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland Bennett, Louise Bergin, Michael Wells, John S G J Patient Exp Research Articles Empowerment is integral to patient-centered practice, particularly as this relates to people with chronic conditions, though operationally it is poorly understood in this context. Empowerment, therefore, as experienced by patients with a chronic condition needs exploration. This article reports the experience of empowerment by patients in one specialist epilepsy service in Ireland as an exemplar of broader issues affecting empowerment of patients with chronic conditions. A Frameworks Approach was used to analyze in-depth interviews with patients (n = 10) in one Irish epilepsy service. Analysis was further informed by nonparticipatory observation of service delivery. Results indicate that patients’ negative experiences of empowerment appear to be derived from traditional social norms relating to clinician patient power dimensions and social stigma internalized by clinicians at an unconscious level. With this in mind, educational approaches based upon critical social theory may provide a framework and guide to enable services to engage with these issues and embrace empowerment of patients with chronic conditions within therapeutic engagement. SAGE Publications 2020-08-13 2020-12 /pmc/articles/PMC7786655/ /pubmed/33457564 http://dx.doi.org/10.1177/2374373520948405 Text en © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Research Articles
Bennett, Louise
Bergin, Michael
Wells, John S G
Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland
title Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland
title_full Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland
title_fullStr Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland
title_full_unstemmed Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland
title_short Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland
title_sort exploring dimensions of empowerment from the patients’ perspective in one specialist epilepsy service in ireland
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7786655/
https://www.ncbi.nlm.nih.gov/pubmed/33457564
http://dx.doi.org/10.1177/2374373520948405
work_keys_str_mv AT bennettlouise exploringdimensionsofempowermentfromthepatientsperspectiveinonespecialistepilepsyserviceinireland
AT berginmichael exploringdimensionsofempowermentfromthepatientsperspectiveinonespecialistepilepsyserviceinireland
AT wellsjohnsg exploringdimensionsofempowermentfromthepatientsperspectiveinonespecialistepilepsyserviceinireland