People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers

Actively engaging people with lived experience (PWLE) in stroke-related clinical practice guideline development has not been effectively implemented. This pilot project evaluated the feasibility, perceived value, and effectiveness of the Community Consultation and Review Panel (CCRP), a new model to...

Descripción completa

Detalles Bibliográficos
Autores principales: Lindsay, M Patrice, Gierman, Natalie, Harris, Jocelyn E, Arthur, Gavin, Teed, Moira E, Mountain, Anita, Gubitz, Gordon, Smith, Eric E, Dowlatshahi, Dar, de Jong, Andrea, Botly, Leigh C P
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2020
Materias:
Patient Experience Research Briefs
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7786657/
https://www.ncbi.nlm.nih.gov/pubmed/33457527
http://dx.doi.org/10.1177/2374373520956538
_version_ 1783632673031323648
author Lindsay, M Patrice
Gierman, Natalie
Harris, Jocelyn E
Arthur, Gavin
Teed, Moira E
Mountain, Anita
Gubitz, Gordon
Smith, Eric E
Dowlatshahi, Dar
de Jong, Andrea
Botly, Leigh C P
author_facet Lindsay, M Patrice
Gierman, Natalie
Harris, Jocelyn E
Arthur, Gavin
Teed, Moira E
Mountain, Anita
Gubitz, Gordon
Smith, Eric E
Dowlatshahi, Dar
de Jong, Andrea
Botly, Leigh C P
author_sort Lindsay, M Patrice
collection PubMed
description Actively engaging people with lived experience (PWLE) in stroke-related clinical practice guideline development has not been effectively implemented. This pilot project evaluated the feasibility, perceived value, and effectiveness of the Community Consultation and Review Panel (CCRP), a new model to engage PWLE in the writing and review of Canadian Stroke Best Practice Recommendations. Responses to a standardized evaluation tool indicated that participants perceived the CCRP as valued, impactful, effective, and beneficial to stroke care. This project successfully demonstrated that values, experiences, and recommendations of PWLE can be effectively incorporated into guideline content and is applicable to all guideline development processes.
format Online
Article
Text
id pubmed-7786657
institution National Center for Biotechnology Information
language English
publishDate 2020
publisher SAGE Publications
record_format MEDLINE/PubMed
spelling pubmed-77866572021-01-14 People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers Lindsay, M Patrice Gierman, Natalie Harris, Jocelyn E Arthur, Gavin Teed, Moira E Mountain, Anita Gubitz, Gordon Smith, Eric E Dowlatshahi, Dar de Jong, Andrea Botly, Leigh C P J Patient Exp Patient Experience Research Briefs Actively engaging people with lived experience (PWLE) in stroke-related clinical practice guideline development has not been effectively implemented. This pilot project evaluated the feasibility, perceived value, and effectiveness of the Community Consultation and Review Panel (CCRP), a new model to engage PWLE in the writing and review of Canadian Stroke Best Practice Recommendations. Responses to a standardized evaluation tool indicated that participants perceived the CCRP as valued, impactful, effective, and beneficial to stroke care. This project successfully demonstrated that values, experiences, and recommendations of PWLE can be effectively incorporated into guideline content and is applicable to all guideline development processes. SAGE Publications 2020-09-10 2020-12 /pmc/articles/PMC7786657/ /pubmed/33457527 http://dx.doi.org/10.1177/2374373520956538 Text en © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Patient Experience Research Briefs
Lindsay, M Patrice
Gierman, Natalie
Harris, Jocelyn E
Arthur, Gavin
Teed, Moira E
Mountain, Anita
Gubitz, Gordon
Smith, Eric E
Dowlatshahi, Dar
de Jong, Andrea
Botly, Leigh C P
People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers
title People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers
title_full People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers
title_fullStr People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers
title_full_unstemmed People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers
title_short People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers
title_sort people with lived experience at the centre of canadian stroke best practice recommendations: a model for guideline developers
topic Patient Experience Research Briefs
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7786657/
https://www.ncbi.nlm.nih.gov/pubmed/33457527
http://dx.doi.org/10.1177/2374373520956538
work_keys_str_mv AT lindsaympatrice peoplewithlivedexperienceatthecentreofcanadianstrokebestpracticerecommendationsamodelforguidelinedevelopers
AT giermannatalie peoplewithlivedexperienceatthecentreofcanadianstrokebestpracticerecommendationsamodelforguidelinedevelopers
AT harrisjocelyne peoplewithlivedexperienceatthecentreofcanadianstrokebestpracticerecommendationsamodelforguidelinedevelopers
AT arthurgavin peoplewithlivedexperienceatthecentreofcanadianstrokebestpracticerecommendationsamodelforguidelinedevelopers
AT teedmoirae peoplewithlivedexperienceatthecentreofcanadianstrokebestpracticerecommendationsamodelforguidelinedevelopers
AT mountainanita peoplewithlivedexperienceatthecentreofcanadianstrokebestpracticerecommendationsamodelforguidelinedevelopers
AT gubitzgordon peoplewithlivedexperienceatthecentreofcanadianstrokebestpracticerecommendationsamodelforguidelinedevelopers
AT smitherice peoplewithlivedexperienceatthecentreofcanadianstrokebestpracticerecommendationsamodelforguidelinedevelopers
AT dowlatshahidar peoplewithlivedexperienceatthecentreofcanadianstrokebestpracticerecommendationsamodelforguidelinedevelopers
AT dejongandrea peoplewithlivedexperienceatthecentreofcanadianstrokebestpracticerecommendationsamodelforguidelinedevelopers
AT botlyleighcp peoplewithlivedexperienceatthecentreofcanadianstrokebestpracticerecommendationsamodelforguidelinedevelopers

Ejemplares similares