“I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes

Limited research exists regarding the burdens associated with type 1 diabetes (T1D). The study’s objective was to understand the impact of T1D from people with T1D and caregivers of minors with T1D. Six focus groups were conducted, with a total of 31 participants. Participants included people with T...

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Autores principales: Hughes, Allyson S, Bispham, Jeoffrey, Fan, Ludi, Nieves-Perez, Magaly, McAuliffe-Fogarty, Alicia H
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2020
Materias:
Patient Experience Research Briefs
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7786674/
https://www.ncbi.nlm.nih.gov/pubmed/33457519
http://dx.doi.org/10.1177/2374373520967501
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author Hughes, Allyson S
Bispham, Jeoffrey
Fan, Ludi
Nieves-Perez, Magaly
McAuliffe-Fogarty, Alicia H
author_facet Hughes, Allyson S
Bispham, Jeoffrey
Fan, Ludi
Nieves-Perez, Magaly
McAuliffe-Fogarty, Alicia H
author_sort Hughes, Allyson S
collection PubMed
description Limited research exists regarding the burdens associated with type 1 diabetes (T1D). The study’s objective was to understand the impact of T1D from people with T1D and caregivers of minors with T1D. Six focus groups were conducted, with a total of 31 participants. Participants included people with T1D, ages 23 to 72 (n = 17) and caregivers ages 34 to 55 (n = 14). Participants were recruited from T1D Exchange Glu. People with T1D reported time spent managing diabetes had greatest impact, while caregivers reported financial and employment sacrifices as most impactful. Our findings provide insight into the real-world daily impact of diabetes.
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spelling pubmed-77866742021-01-14 “I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes Hughes, Allyson S Bispham, Jeoffrey Fan, Ludi Nieves-Perez, Magaly McAuliffe-Fogarty, Alicia H J Patient Exp Patient Experience Research Briefs Limited research exists regarding the burdens associated with type 1 diabetes (T1D). The study’s objective was to understand the impact of T1D from people with T1D and caregivers of minors with T1D. Six focus groups were conducted, with a total of 31 participants. Participants included people with T1D, ages 23 to 72 (n = 17) and caregivers ages 34 to 55 (n = 14). Participants were recruited from T1D Exchange Glu. People with T1D reported time spent managing diabetes had greatest impact, while caregivers reported financial and employment sacrifices as most impactful. Our findings provide insight into the real-world daily impact of diabetes. SAGE Publications 2020-10-21 2020-12 /pmc/articles/PMC7786674/ /pubmed/33457519 http://dx.doi.org/10.1177/2374373520967501 Text en © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Patient Experience Research Briefs
Hughes, Allyson S
Bispham, Jeoffrey
Fan, Ludi
Nieves-Perez, Magaly
McAuliffe-Fogarty, Alicia H
“I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes
title “I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes
title_full “I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes
title_fullStr “I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes
title_full_unstemmed “I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes
title_short “I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes
title_sort “i live in constant fear of highs,” the daily impact of type 1 diabetes
topic Patient Experience Research Briefs
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7786674/
https://www.ncbi.nlm.nih.gov/pubmed/33457519
http://dx.doi.org/10.1177/2374373520967501
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