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Virtual Peer Support for People With Cystic Fibrosis and Their Family Members: A Program Evaluation

We sought to evaluate the feasibility, acceptability, and benefits of a virtual one-to-one peer support program for people with cystic fibrosis and their family members through a retrospective program evaluation. This peer support program was developed in collaboration with patients, health care pro...

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Autores principales: Jeffrey, Aimee, Andracchio, Lauren, Dvorak, Meg, Lomas, Paula, Smith, Beth, Borowitz, Drucy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7786709/
https://www.ncbi.nlm.nih.gov/pubmed/33457639
http://dx.doi.org/10.1177/2374373520974322
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author Jeffrey, Aimee
Andracchio, Lauren
Dvorak, Meg
Lomas, Paula
Smith, Beth
Borowitz, Drucy
author_facet Jeffrey, Aimee
Andracchio, Lauren
Dvorak, Meg
Lomas, Paula
Smith, Beth
Borowitz, Drucy
author_sort Jeffrey, Aimee
collection PubMed
description We sought to evaluate the feasibility, acceptability, and benefits of a virtual one-to-one peer support program for people with cystic fibrosis and their family members through a retrospective program evaluation. This peer support program was developed in collaboration with patients, health care providers, and CF Foundation program staff. Mentees were paired with a trained peer mentor for 3-month mentoring via video, phone, email, or text. We found that the peer support program was feasible and acceptable. Success factors include a range of positive benefits including practical support as well as social and emotional support. Two-thirds of mentees reported at least 4 different benefits. Mentors reported multiple benefits after providing support through mentoring. Our program evaluation demonstrates that virtual peer support based on informal sharing of life experiences is an achievable way to provide social support and enhance health and well-being in chronic disease management.
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spelling pubmed-77867092021-01-14 Virtual Peer Support for People With Cystic Fibrosis and Their Family Members: A Program Evaluation Jeffrey, Aimee Andracchio, Lauren Dvorak, Meg Lomas, Paula Smith, Beth Borowitz, Drucy J Patient Exp Research Articles We sought to evaluate the feasibility, acceptability, and benefits of a virtual one-to-one peer support program for people with cystic fibrosis and their family members through a retrospective program evaluation. This peer support program was developed in collaboration with patients, health care providers, and CF Foundation program staff. Mentees were paired with a trained peer mentor for 3-month mentoring via video, phone, email, or text. We found that the peer support program was feasible and acceptable. Success factors include a range of positive benefits including practical support as well as social and emotional support. Two-thirds of mentees reported at least 4 different benefits. Mentors reported multiple benefits after providing support through mentoring. Our program evaluation demonstrates that virtual peer support based on informal sharing of life experiences is an achievable way to provide social support and enhance health and well-being in chronic disease management. SAGE Publications 2021-01-03 2020-12 /pmc/articles/PMC7786709/ /pubmed/33457639 http://dx.doi.org/10.1177/2374373520974322 Text en © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Research Articles
Jeffrey, Aimee
Andracchio, Lauren
Dvorak, Meg
Lomas, Paula
Smith, Beth
Borowitz, Drucy
Virtual Peer Support for People With Cystic Fibrosis and Their Family Members: A Program Evaluation
title Virtual Peer Support for People With Cystic Fibrosis and Their Family Members: A Program Evaluation
title_full Virtual Peer Support for People With Cystic Fibrosis and Their Family Members: A Program Evaluation
title_fullStr Virtual Peer Support for People With Cystic Fibrosis and Their Family Members: A Program Evaluation
title_full_unstemmed Virtual Peer Support for People With Cystic Fibrosis and Their Family Members: A Program Evaluation
title_short Virtual Peer Support for People With Cystic Fibrosis and Their Family Members: A Program Evaluation
title_sort virtual peer support for people with cystic fibrosis and their family members: a program evaluation
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7786709/
https://www.ncbi.nlm.nih.gov/pubmed/33457639
http://dx.doi.org/10.1177/2374373520974322
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