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Interventions to address health outcomes among autistic adults: A systematic review

Research has shown that autistic adults have poor health outcomes. We conducted a systematic review to identify existing interventions to address health outcomes for autistic adults and to determine whether these interventions address the priorities of the autistic community. We searched PubMed for...

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Autores principales: Benevides, Teal W, Shore, Stephen M, Andresen, May-Lynn, Caplan, Reid, Cook, Barb, Gassner, Dena L, Erves, Jasmine M, Hazlewood, Taylor M, King, M Caroline, Morgan, Lisa, Murphy, Lauren E, Purkis, Yenn, Rankowski, Brigid, Rutledge, Sarah M, Welch, Savannah P, Wittig, Karl
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7787674/
https://www.ncbi.nlm.nih.gov/pubmed/32390461
http://dx.doi.org/10.1177/1362361320913664
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author Benevides, Teal W
Shore, Stephen M
Andresen, May-Lynn
Caplan, Reid
Cook, Barb
Gassner, Dena L
Erves, Jasmine M
Hazlewood, Taylor M
King, M Caroline
Morgan, Lisa
Murphy, Lauren E
Purkis, Yenn
Rankowski, Brigid
Rutledge, Sarah M
Welch, Savannah P
Wittig, Karl
author_facet Benevides, Teal W
Shore, Stephen M
Andresen, May-Lynn
Caplan, Reid
Cook, Barb
Gassner, Dena L
Erves, Jasmine M
Hazlewood, Taylor M
King, M Caroline
Morgan, Lisa
Murphy, Lauren E
Purkis, Yenn
Rankowski, Brigid
Rutledge, Sarah M
Welch, Savannah P
Wittig, Karl
author_sort Benevides, Teal W
collection PubMed
description Research has shown that autistic adults have poor health outcomes. We conducted a systematic review to identify existing interventions to address health outcomes for autistic adults and to determine whether these interventions address the priorities of the autistic community. We searched PubMed for articles that included an intervention, a primary health outcome measured at the individual (not system) level, and a sample population of at least 50% autistic adults. Studies were excluded if they were not peer-reviewed, had a focus on caregivers, were expert opinions on specific interventions, untested protocols, or interventions without a primary health outcome. Out of the 778 articles reviewed, 19 were found to meet the stated criteria. Based on the evidence gathered, two were considered emerging evidence-based approaches: cognitive behavioral approaches and mindfulness. The remaining interventions included in the review did not have sufficient evidence to support current use with this population. The majority of the studies included samples of young autistic adults, primarily male, without an intellectual disability. Anxiety, quality of life, depression, and behavioral issues were among the health outcomes measured in the final included articles. More research on preferred interventions with prioritized health outcomes of the autistic adult population is needed. LAY ABSTRACT: Autistic adults have more health problems then their same-aged peers. Yet little research has been conducted that focuses on addressing these health problems. In order to guide future research, it is important to know what intervention studies have been done to improve health outcomes among autistic adults. The project team and student assistants read studies that were published between 2007 and 2018 in the online research database, PubMed. We looked for studies published in English, which were peer-reviewed and included (1) an intervention, (2) an outcome that was related to health, and (3) a study group that included autistic adults. We did not include studies that had outcomes about employment (unless there was a health outcome), studies about caregivers or caregiving, or expert opinions about interventions. Of 778 reviewed articles, 19 studies met all of the criteria above. Within these studies, two approaches were found to have emerging evidence for their use in autistic adults: cognitive behavioral interventions and mindfulness-based approaches for improved mental health outcomes. The remaining intervention approaches did not have enough articles to support their use. Many of the outcomes were about reduced symptoms of co-occurring mental health diagnoses (e.g. reduced anxiety, depression). Most of the participants in these studies were male and did not have intellectual disability. Most study participants were adults younger than 40. There are not many intervention studies that address health outcomes among autistic adults. More research is needed on interventions which are desired by the adult autism community and address preferred health outcomes such as increased quality of life or well-being.
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spelling pubmed-77876742021-01-21 Interventions to address health outcomes among autistic adults: A systematic review Benevides, Teal W Shore, Stephen M Andresen, May-Lynn Caplan, Reid Cook, Barb Gassner, Dena L Erves, Jasmine M Hazlewood, Taylor M King, M Caroline Morgan, Lisa Murphy, Lauren E Purkis, Yenn Rankowski, Brigid Rutledge, Sarah M Welch, Savannah P Wittig, Karl Autism Reviews Research has shown that autistic adults have poor health outcomes. We conducted a systematic review to identify existing interventions to address health outcomes for autistic adults and to determine whether these interventions address the priorities of the autistic community. We searched PubMed for articles that included an intervention, a primary health outcome measured at the individual (not system) level, and a sample population of at least 50% autistic adults. Studies were excluded if they were not peer-reviewed, had a focus on caregivers, were expert opinions on specific interventions, untested protocols, or interventions without a primary health outcome. Out of the 778 articles reviewed, 19 were found to meet the stated criteria. Based on the evidence gathered, two were considered emerging evidence-based approaches: cognitive behavioral approaches and mindfulness. The remaining interventions included in the review did not have sufficient evidence to support current use with this population. The majority of the studies included samples of young autistic adults, primarily male, without an intellectual disability. Anxiety, quality of life, depression, and behavioral issues were among the health outcomes measured in the final included articles. More research on preferred interventions with prioritized health outcomes of the autistic adult population is needed. LAY ABSTRACT: Autistic adults have more health problems then their same-aged peers. Yet little research has been conducted that focuses on addressing these health problems. In order to guide future research, it is important to know what intervention studies have been done to improve health outcomes among autistic adults. The project team and student assistants read studies that were published between 2007 and 2018 in the online research database, PubMed. We looked for studies published in English, which were peer-reviewed and included (1) an intervention, (2) an outcome that was related to health, and (3) a study group that included autistic adults. We did not include studies that had outcomes about employment (unless there was a health outcome), studies about caregivers or caregiving, or expert opinions about interventions. Of 778 reviewed articles, 19 studies met all of the criteria above. Within these studies, two approaches were found to have emerging evidence for their use in autistic adults: cognitive behavioral interventions and mindfulness-based approaches for improved mental health outcomes. The remaining intervention approaches did not have enough articles to support their use. Many of the outcomes were about reduced symptoms of co-occurring mental health diagnoses (e.g. reduced anxiety, depression). Most of the participants in these studies were male and did not have intellectual disability. Most study participants were adults younger than 40. There are not many intervention studies that address health outcomes among autistic adults. More research is needed on interventions which are desired by the adult autism community and address preferred health outcomes such as increased quality of life or well-being. SAGE Publications 2020-05-11 2020-08 /pmc/articles/PMC7787674/ /pubmed/32390461 http://dx.doi.org/10.1177/1362361320913664 Text en © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Reviews
Benevides, Teal W
Shore, Stephen M
Andresen, May-Lynn
Caplan, Reid
Cook, Barb
Gassner, Dena L
Erves, Jasmine M
Hazlewood, Taylor M
King, M Caroline
Morgan, Lisa
Murphy, Lauren E
Purkis, Yenn
Rankowski, Brigid
Rutledge, Sarah M
Welch, Savannah P
Wittig, Karl
Interventions to address health outcomes among autistic adults: A systematic review
title Interventions to address health outcomes among autistic adults: A systematic review
title_full Interventions to address health outcomes among autistic adults: A systematic review
title_fullStr Interventions to address health outcomes among autistic adults: A systematic review
title_full_unstemmed Interventions to address health outcomes among autistic adults: A systematic review
title_short Interventions to address health outcomes among autistic adults: A systematic review
title_sort interventions to address health outcomes among autistic adults: a systematic review
topic Reviews
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7787674/
https://www.ncbi.nlm.nih.gov/pubmed/32390461
http://dx.doi.org/10.1177/1362361320913664
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