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The child with medical complexity

Children with medical complexity represent a big challenge for the physicians, their families and the society as well. Although there is no clear definition of this type of patients, they are affected by a chronic, often very severe condition for their whole life. They also represent a huge cost for...

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Autores principales: Gallo, Manuela, Agostiniani, Rino, Pintus, Roberta, Fanos, Vassilios
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7788740/
https://www.ncbi.nlm.nih.gov/pubmed/33407754
http://dx.doi.org/10.1186/s13052-020-00935-z
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author Gallo, Manuela
Agostiniani, Rino
Pintus, Roberta
Fanos, Vassilios
author_facet Gallo, Manuela
Agostiniani, Rino
Pintus, Roberta
Fanos, Vassilios
author_sort Gallo, Manuela
collection PubMed
description Children with medical complexity represent a big challenge for the physicians, their families and the society as well. Although there is no clear definition of this type of patients, they are affected by a chronic, often very severe condition for their whole life. They also represent a huge cost for the health care system due to their needs of continuous assistance. In this review we summarized the definitions of child with medical complexity. Then we illustrated the strategies to treat and take care of these children in order to look at them not as a burden or a cost but as an opportunity to growth and improve as clinicians and to improve the society, to give them the best life they can live. We also wanted to give voice to the physicians, the parents and the children themselves to really show and understand what are their experiences and their feelings in dealing with their conditions. We concluded with the description of one example of children with medical complexity: prematurity. We discussed the progresses in their treatment so far in order to illustrate what is the future of pediatrics. Since it has been more and more acknowledged that every child with medical complexity is unique, the future of pediatric is to organize an individualized approach and to “see things with the eye of a child”.
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spelling pubmed-77887402021-01-07 The child with medical complexity Gallo, Manuela Agostiniani, Rino Pintus, Roberta Fanos, Vassilios Ital J Pediatr Review Children with medical complexity represent a big challenge for the physicians, their families and the society as well. Although there is no clear definition of this type of patients, they are affected by a chronic, often very severe condition for their whole life. They also represent a huge cost for the health care system due to their needs of continuous assistance. In this review we summarized the definitions of child with medical complexity. Then we illustrated the strategies to treat and take care of these children in order to look at them not as a burden or a cost but as an opportunity to growth and improve as clinicians and to improve the society, to give them the best life they can live. We also wanted to give voice to the physicians, the parents and the children themselves to really show and understand what are their experiences and their feelings in dealing with their conditions. We concluded with the description of one example of children with medical complexity: prematurity. We discussed the progresses in their treatment so far in order to illustrate what is the future of pediatrics. Since it has been more and more acknowledged that every child with medical complexity is unique, the future of pediatric is to organize an individualized approach and to “see things with the eye of a child”. BioMed Central 2021-01-06 /pmc/articles/PMC7788740/ /pubmed/33407754 http://dx.doi.org/10.1186/s13052-020-00935-z Text en © The Author(s) 2021 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Review
Gallo, Manuela
Agostiniani, Rino
Pintus, Roberta
Fanos, Vassilios
The child with medical complexity
title The child with medical complexity
title_full The child with medical complexity
title_fullStr The child with medical complexity
title_full_unstemmed The child with medical complexity
title_short The child with medical complexity
title_sort child with medical complexity
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7788740/
https://www.ncbi.nlm.nih.gov/pubmed/33407754
http://dx.doi.org/10.1186/s13052-020-00935-z
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