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Quality of life of children with spinal muscular atrophy and their caregivers from the perspective of caregivers: a Chinese cross-sectional study

BACKGROUND: Spinal muscular atrophy (SMA) is an autosomal-recessive motor neuron disease leading to dysfunction of multiple organs. SMA can impair the quality of life (QoL) of patients and family. We aimed to evaluate the QoL of children with SMA and their caregivers and to identify the factors asso...

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Detalles Bibliográficos
Autores principales: Yao, Mei, Ma, Ying, Qian, Ruiying, Xia, Yu, Yuan, Changzheng, Bai, Guannan, Mao, Shanshan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7789582/
https://www.ncbi.nlm.nih.gov/pubmed/33407670
http://dx.doi.org/10.1186/s13023-020-01638-8