Research priorities in α(1)-antitrypsin deficiency: results of a patients' and healthcare providers' international survey from the EARCO Clinical Research Collaboration

α(1)-antitrypsin deficiency (AATD) is a rare and under-recognised genetic condition. Owing to its low prevalence, international initiatives are key for conducting high-quality research in the field. From July 2018 to December 2019, the European Alpha-1 Research Collaboration (EARCO) developed and co...

Descripción completa

Detalles Bibliográficos
Autores principales: Barrecheguren, Miriam, O'Hara, Karen, Wilkens, Marion, Boyd, Jeanette, Kolda, Ewa, Lara, Beatriz, Chorostowska-Wynimko, Joanna, Ferrarotti, Ilaria, Chlumský, Jan, Clarenbach, Christian, Greulich, Timm, Miravitlles, Marc, Sucena, Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: European Respiratory Society 2020
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7792815/
https://www.ncbi.nlm.nih.gov/pubmed/33447613
http://dx.doi.org/10.1183/23120541.00523-2020

Ejemplares similares

Ejemplares similares