“It seems like COVID-19 now is the only disease present on Earth”: living with a rare or undiagnosed disease during the COVID-19 pandemic

PURPOSE: Patients with rare and undiagnosed diseases (RUDs) face significant health challenges, which may be exacerbated during the COVID-19 pandemic. The goal of this study was to identify specific impacts of the pandemic on RUD patients, and targets for improving support and health-care access. ME...

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Detalles Bibliográficos
Autores principales: Halley, Meghan C., Stanley, Talia, Maturi, Jay, Goldenberg, Aaron J., Bernstein, Jonathan A., Wheeler, Matthew T., Tabor, Holly K.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: , The Author(s), under exclusive licence to the American College of Medical Genetics and Genomics 2021
Materias:
Special Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7792915/
https://www.ncbi.nlm.nih.gov/pubmed/33420343
http://dx.doi.org/10.1038/s41436-020-01069-7

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7792915/
https://www.ncbi.nlm.nih.gov/pubmed/33420343
http://dx.doi.org/10.1038/s41436-020-01069-7

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