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Gaining insight into the views of outpatients with Huntington’s disease regarding their future and the way they deal with their poor prognosis: a qualitative study

BACKGROUND: Huntington’s disease (HD) has a poor prognosis. Decision-making capacity and communication ability may become lost as the disease progresses. Therefore, HD patients are encouraged to engage in advance care planning (ACP). To improve ACP for HD patients, there is a need to better understa...

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Autores principales:	Ekkel, Marina R., Depla, Marja F. I. A., Verschuur, Els M. L., Veenhuizen, Ruth B., Hertogh, Cees M. P. M., Onwuteaka-Philipsen, Bregje D.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2021
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7802313/ https://www.ncbi.nlm.nih.gov/pubmed/33435952 http://dx.doi.org/10.1186/s12904-020-00706-x

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