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Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach

BACKGROUND: Many children with serious illnesses are receiving palliative and end-of-life care from pediatric palliative and hospice care teams at home (PPHC@Home). Despite the growth in PPHC@Home, no standardized measures exist to evaluate whether PPHC@Home provided in the U.S. meets the needs and...

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Detalles Bibliográficos
Autores principales:	Boyden, Jackelyn Y., Feudtner, Chris, Deatrick, Janet A., Widger, Kimberley, LaRagione, Gwenn, Lord, Blyth, Ersek, Mary
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2021
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7809872/ https://www.ncbi.nlm.nih.gov/pubmed/33446192 http://dx.doi.org/10.1186/s12904-020-00703-0

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