Cargando…

Conducting focus groups in neurodegenerative disease populations: ethical and methodological considerations

BACKGROUND: Involvement of vulnerable populations in research is critical to inform the generalisability of evidence-based medicine to all groups of the population. OBJECTIVE: In this communication, we reflect on our previous research, and that of other authors, to identify and explore key ethical a...

Descripción completa

Detalles Bibliográficos
Autores principales:	Jones, Annabel, Morgan-Jones, Philippa, Busse, Monica, Shepherd, Victoria, Wood, Fiona
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2021
Materias:	Ethics
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7812104/ https://www.ncbi.nlm.nih.gov/pubmed/33441358 http://dx.doi.org/10.1136/bmjopen-2020-041869

Ejemplares similares

Acceptability of donor funding for clinical trials in the UK: a qualitative empirical ethics study using focus groups to elicit the views of research patient public involvement group members, research ethics committee chairs and clinical researchers
por: Shearman, Kirstie, et al.
Publicado: (2022)

Identifying ethical values for guiding triage decisions during the COVID-19 pandemic: an Italian ethical committee perspective using Delphi methodology
por: Zeneli, Anita, et al.
Publicado: (2021)

Conducting Research with Human Subjects in International Settings: Ethical Considerations
por: Alfano, Sandra L.
Publicado: (2013)

Cross-Cultural Considerations in U.S. Research Ethics Education
por: Heitman, Elizabeth
Publicado: (2014)

TwiC or treat? Are trials within cohorts ethically defensible?
por: Weijer, Charles, et al.
Publicado: (2017)

Ethical Considerations Regarding Classroom Use of Personal Genomic Information
por: Parker, Lisa S., et al.
Publicado: (2014)

Ethical challenges in fetal surgery
por: Smajdor, Anna
Publicado: (2010)

Ethics committees in India: Facing the challenges!
por: Kadam, Rashmi, et al.
Publicado: (2012)

Cardiothoracic surgeons in pandemics: Ethical considerations
por: Drake, Daniel, et al.
Publicado: (2020)

North Thames multi-centre service evaluation: Ethical considerations during COVID-19
por: Sunil Kumar, Namithaa, et al.
Publicado: (2021)

Biomedical authors’ awareness of publication ethics: an international survey
por: Schroter, Sara, et al.
Publicado: (2018)

Ethical issues in the access to emergency care for undocumented immigrants
por: Brenner, Jay M., et al.
Publicado: (2021)

Compliance with ethical standards in the reporting of donor sources and ethics review in peer-reviewed publications involving organ transplantation in China: a scoping review
por: Rogers, Wendy, et al.
Publicado: (2019)

Healthcare professionals’ understanding of the legislation governing research involving adults lacking mental capacity in England and Wales: a national survey
por: Shepherd, Victoria, et al.
Publicado: (2018)

Ethical issues and obligations with undocumented immigrants relying on emergency departments for dialysis
por: Kluesner, Nicholas H., et al.
Publicado: (2021)

Home pregnancy tests for iPLEDGE: ethically dealing with potential falsifications
por: Schwartzman, Gabrielle, et al.
Publicado: (2023)

Research ethics committees: Need for harmonization at the national level, the global and Indian perspective
por: Walanj, Aparna Sanjiv
Publicado: (2014)

Rapid commentary: Ethical implications for clinical trialists and patients associated with COVID-19 research
por: Delanerolle, Gayathri, et al.
Publicado: (2021)

Ethical frameworks in clinical research processes during COVID-19: a scoping review
por: Kasherman, Lawrence, et al.
Publicado: (2021)

An Ethical Anaylsis of the Arguments Both For and Against COVID-19 Vaccine Mandates for Healthcare Workers
por: Myers, MD, Melissa, et al.
Publicado: (2023)

Law enforcement information gathering in the emergency department: Legal and ethical background and practical approaches
por: Simon, Jeremy R., et al.
Publicado: (2023)

Public reporting of clinical trial findings as an ethical responsibility to participants: a qualitative study
por: Morrow, Richard L, et al.
Publicado: (2023)

Ethics and legal requirements for data linkage in 14 European countries for children with congenital anomalies
por: Claridge, Hugh, et al.
Publicado: (2023)

Protocol for a scoping review about ethics in transition programmes for adolescents and young adults with neurodisabilities
por: Bogossian, Aline, et al.
Publicado: (2018)

Registration audit of clinical trials given a favourable opinion by UK research ethics committees
por: Denneny, Carla, et al.
Publicado: (2019)

Ethical dilemmas in providing acute medical care at home for children: a survey of health professionals
por: Bryant, Penelope A
Publicado: (2020)

Baseline Ethical Principles and a Framework for Evaluation of Policies: Recommendations From an International Consensus Forum
por: Gardiner, Dale, et al.
Publicado: (2023)

Evidence for stratified conflicts of interest policies in research contexts: a methodological review
por: Graham, S Scott, et al.
Publicado: (2022)

How are adults with capacity-affecting conditions and associated communication difficulties included in ethically sound research? A documentary-based survey of ethical review and recruitment processes under the research provisions of the Mental Capacity Act (2005) for England and Wales
por: Bunning, Karen, et al.
Publicado: (2022)

Expanded Access Programs: Ethical and Practical Considerations for Biopharmaceutical Sponsors
por: Klopfenstein, Mitchell, et al.
Publicado: (2015)

Ethical Decision Diagrams on Donation After Cardiocirculatory Death Heart Transplantation Considering Organ Preservation Techniques
por: Saemann, Lars, et al.
Publicado: (2020)

Ethical issues in access to and delivery of emergency department care in an era of changing reimbursement and novel payment models
por: Kraus, Chadd K., et al.
Publicado: (2020)

Strengthening ethics committees for health-related research in sub-Saharan Africa: a scoping review protocol
por: Thurtle, Val, et al.
Publicado: (2021)

The Ethics of National Ethics Committees
por: Harris, John
Publicado: (1994)

The interactions of ethical notions and moral values of immediate stakeholders of immunisation services in two Indian states: a qualitative study
por: Varghese, Joe, et al.
Publicado: (2013)

Evaluating underpinning, complexity and implications of ethical situations in humanitarian operations: qualitative study through the lens of career humanitarian workers
por: Asgary, Ramin, et al.
Publicado: (2020)

Clinical ethics support services in paediatric practice: protocol for a mixed studies systematic review on structures, interventions and outcomes
por: Dittborn, Mariana, et al.
Publicado: (2022)

Developing an ethical framework-guided instrument for assessing bias in EHR-based Big Data studies: a research protocol
por: Qiao, Shan, et al.
Publicado: (2023)

Independent Ethical Review of Studies Involving Personal Medical Records: Report of a Working Group for the Royal College of Physicians' Committee on Ethical Issues in Medicine
Publicado: (1994)

CARING FUTURES: a study protocol for transdisciplinary qualitative research on technology-mediated care practices and theory development for ethics of care
por: Ramvi, Ellen, et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_ah9jju8f5s7m5bv6gh2mhq8jpj