Cargando…

‘Not at the diagnosis point’: Dealing with contradiction in autism assessment teams

Social science literature has documented how the concept of diagnosis can be seen as an interactive process, imbued with uncertainty and contradiction, which undermines a straightforward notion of diagnosis as a way to identify underlying biological problems that cause disease. We contribute to this...

Descripción completa

Detalles Bibliográficos
Autores principales: Hayes, Jennie, McCabe, Rose, Ford, Tamsin, Parker, Daisy, Russell, Ginny
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Pergamon 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7814339/
https://www.ncbi.nlm.nih.gov/pubmed/33253991
http://dx.doi.org/10.1016/j.socscimed.2020.113462
_version_ 1783638039511171072
author Hayes, Jennie
McCabe, Rose
Ford, Tamsin
Parker, Daisy
Russell, Ginny
author_facet Hayes, Jennie
McCabe, Rose
Ford, Tamsin
Parker, Daisy
Russell, Ginny
author_sort Hayes, Jennie
collection PubMed
description Social science literature has documented how the concept of diagnosis can be seen as an interactive process, imbued with uncertainty and contradiction, which undermines a straightforward notion of diagnosis as a way to identify underlying biological problems that cause disease. We contribute to this body of work by examining the process of resolving contradiction in autism diagnosis for adults and adolescents. Autism is a useful case study as diagnosis can be a complex and protracted process due to the heterogeneity of symptoms and the necessity to interpret behaviours that may be ambiguous. We audio-recorded and transcribed 18 specialist clinical assessment meetings in four teams in England, covering 88 cases in two adult, one child and one adolescent (14+) setting. We undertook a qualitative analysis of discursive processes and narrative case-building structure utilised by clinicians to counteract contradiction.We identified a three-part interactional pattern which allows clinicians to forward evidence for and against a diagnosis, facilitates their collaborative decision-making process and enables them to build a plausible narrative which accounts for the diagnostic decision. Pragmatism was found to operate as a strategy to help assign diagnosis within a condition which, diagnostically, is permeated by uncertainty and contradiction. Resolution of contradiction from different aspects of the assessment serves to create a narratively-coherent, intelligible clinical entity that is autism.
format Online
Article
Text
id pubmed-7814339
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher Pergamon
record_format MEDLINE/PubMed
spelling pubmed-78143392021-01-26 ‘Not at the diagnosis point’: Dealing with contradiction in autism assessment teams Hayes, Jennie McCabe, Rose Ford, Tamsin Parker, Daisy Russell, Ginny Soc Sci Med Article Social science literature has documented how the concept of diagnosis can be seen as an interactive process, imbued with uncertainty and contradiction, which undermines a straightforward notion of diagnosis as a way to identify underlying biological problems that cause disease. We contribute to this body of work by examining the process of resolving contradiction in autism diagnosis for adults and adolescents. Autism is a useful case study as diagnosis can be a complex and protracted process due to the heterogeneity of symptoms and the necessity to interpret behaviours that may be ambiguous. We audio-recorded and transcribed 18 specialist clinical assessment meetings in four teams in England, covering 88 cases in two adult, one child and one adolescent (14+) setting. We undertook a qualitative analysis of discursive processes and narrative case-building structure utilised by clinicians to counteract contradiction.We identified a three-part interactional pattern which allows clinicians to forward evidence for and against a diagnosis, facilitates their collaborative decision-making process and enables them to build a plausible narrative which accounts for the diagnostic decision. Pragmatism was found to operate as a strategy to help assign diagnosis within a condition which, diagnostically, is permeated by uncertainty and contradiction. Resolution of contradiction from different aspects of the assessment serves to create a narratively-coherent, intelligible clinical entity that is autism. Pergamon 2021-01 /pmc/articles/PMC7814339/ /pubmed/33253991 http://dx.doi.org/10.1016/j.socscimed.2020.113462 Text en © 2020 The Authors http://creativecommons.org/licenses/by/4.0/ This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Hayes, Jennie
McCabe, Rose
Ford, Tamsin
Parker, Daisy
Russell, Ginny
‘Not at the diagnosis point’: Dealing with contradiction in autism assessment teams
title ‘Not at the diagnosis point’: Dealing with contradiction in autism assessment teams
title_full ‘Not at the diagnosis point’: Dealing with contradiction in autism assessment teams
title_fullStr ‘Not at the diagnosis point’: Dealing with contradiction in autism assessment teams
title_full_unstemmed ‘Not at the diagnosis point’: Dealing with contradiction in autism assessment teams
title_short ‘Not at the diagnosis point’: Dealing with contradiction in autism assessment teams
title_sort ‘not at the diagnosis point’: dealing with contradiction in autism assessment teams
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7814339/
https://www.ncbi.nlm.nih.gov/pubmed/33253991
http://dx.doi.org/10.1016/j.socscimed.2020.113462
work_keys_str_mv AT hayesjennie notatthediagnosispointdealingwithcontradictioninautismassessmentteams
AT mccaberose notatthediagnosispointdealingwithcontradictioninautismassessmentteams
AT fordtamsin notatthediagnosispointdealingwithcontradictioninautismassessmentteams
AT parkerdaisy notatthediagnosispointdealingwithcontradictioninautismassessmentteams
AT russellginny notatthediagnosispointdealingwithcontradictioninautismassessmentteams